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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    How many grams of protein per day would you say you are getting and how many calories per day? I did some research on causes for low creatin and low urea.
  2. trents
    Thanks for explaining your situation in more detail. You are in a difficult place it seems, not having the control you need over what you eat. What are the possibilities in the foreseeable future of you finding another living situation where you have more control over your diet? You are seventeen so soon you will be an adult. What is in your future? Education...
  3. trents
    Two thoughts: 1. What if the testing turns out negative? That won't rule out the development of active celiac disease later in life. You may have NCGS now which will transition in to celiac later on. 2. Your plan implies dishonesty in hiding it from your doctor and your insurance company.
  4. trents
    Welcome to the forum, @Janet McAlpin! Using the gluten-free label doesn't mean there is 0 gluten in a product. It means there is <20ppm of gluten according to FDA standards. So, it is not surprising that there is some gluten in this product. What is the sensitivity of the ELISA test you are using? And the NIMA device has a reputation for giving erratic...
  5. trents
    Then it sounds like the thing you really need to focus more on is being more consistent with the gluten-free diet. Another suggestion I would make is to avoid using a lot of pre-made gluten-free food. Gluten-free facsimile flours are not enriched like their wheat counterpart and are full of empty calories. Focus on naturally gluten free foods that are nutrient...
  6. trents
    It's normal for the pee to turn yellow when taking large doses of B vitamins, particularly riboflavin (B2). That doesn't mean they are building up in the kidneys. It means the excess is being excreted. The B vitamins are water soluble.
  7. trents
    Welcome to the forum, @Kimmy88! Most toothpastes are actually gluten-free. Most meds are gluten free. There are lists available for most prescription meds to determine if they contain gluten as an intentional ingredient. Google. Remember, "gluten free" does not mean "contains no gluten" it just means it contains less than a certain parts per million of gluten...
  8. trents
    Kidney issues? What makes you say that? Villi can take up to two or three years to completely heal in mature adults adhering to a strict gluten free diet. Less time for younger people like you. Get antibody levels checked about every 6 months.
  9. trents
    Can you be specific about what supplements you are taking? The form of a supplement can be critical in how well it is absorbed. Many over the counter vitamin and mineral supplements are optimized for shelf-life rather than absorbability. For instance, take magnesium. On the store shelves you will often see Magnesium oxide or Magnesium citrate. Magnesium glycinate...
  10. trents
    Do you have a soy or peanut allergy? This shouldn't be a concern purely from a celiac or gluten sensitivity perspective.
  11. trents
    Welcome to the forum, @Sarawiththeceliac! Can you give us the reference range for your celiac test? Different labs use different reference ranges for negative vs. positive so without that a test score of 32 is not that helpful. And its that a recent test or was it done when you were 5 years old? It is imperative that you begin to observe a strict gluten...
  12. trents
    I don't think we can say that just one thing, whether vitamin D deficiency or emotional trauma, or a viral infection, or what ever is always what triggers the onset of celiac disease. We do know there is a genetic component to it and there is increasing evidence that factors creating gut dysbiosis (such as overuse of antibiotics and preservatives and environmental...
  13. trents
    Thanks for the follow-up correction. Yes, so not 10x normal and the biopsy is therefore totally appropriate to rule out a false positive or the unlikely but still possible situation of the elevated lab test number being caused by something besides celiac disease.
  14. trents
    Welcome to the forum, @Crossaint! Are you living in the same home with your mother? Your experience with the cravings is very common in the celiac community, especially among the recently diagnosed. It might surprise you to hear this but gluten has addictive qualities much like opiates. It plugs into the same pleasure sensors as gluten in the brain...
  15. trents
    TTG would refer to a blood antibody test. Not valid if you are already eating gluten free or mostly so. DQH would refer to a genetic test to see if you possess either or both of the two genes that have been connected most strongly to developing active celiac disease. The genetic test is more of a rule out measure than a diagnostic test as about 40% of the...
  16. trents
    Lactase is the enzyme that breaks down lactose. Lactase is produced in the small intestine. It is not produced in the pancreas. https://cymbiotika.com/blogs/health-hub/understanding-what-organ-produces-most-digestive-enzymes "Lactase is found in the brush border of the small intestine of humans and other mammals." https://en.wikipedia.org/wiki/Lactase ...
  17. trents
    Welcome to the forum, @Heatherisle! Yes, not uncommon for multiple celiac antibody tests to not agree. The Endomysial IGA was the first antibody test developed to detect celiac disease. It is expensive to run and has largely been replaced by the tTG-IGA. But some physicians, particularly those who have been in practice for awhile, still order the EMA...
  18. trents
    It can be almost anything for the individual but I would suggest getting in the habit of reading labels to see if there are patterns. The form of magnesium is very important. Go for magnesium glycinate. A lot of over the counter stuff puts the emphasis on shelf-life as opposed to bio-availability. Magnesium glycinate is very bioavailable, very absorbable...
  19. trents
    As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you...
  20. trents
    Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products...
  21. trents
    @Viv Hesketh, at least in some places in England there are stipends for those officially diagnosed with celiac disease. But I think it may depend on postal codes. Perhaps our Brit moderator, Cristiana, can elaborate for you.
  22. trents
    @Theresa C, not sure why you posted this question in Pete Dixon's blog about hook worm therapy for addressing celiac disease. If I were you, I would repost in the actual forum in an appropriate topic area so that your question will get more eyes.
  23. trents
    @Izelle, you are welcome! It is important to know that beginning the gluten-free diet or even a reduced gluten diet previous to celiac testing will invalidate the testing. One should seek out testing before experimenting with eliminating gluten. Also, remember that celiac disease is not a food allergy. It is an autoimmune disease. When a celiac consumes gluten...
  24. trents
    Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages. The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the...
  25. trents
    "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis...
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