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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    If the purpose of the endoscopy is to check for celiac disease they will take biopsies of the small bowel lining. But not all endoscopies are done for that purpose. You would need to be clear about the purpose of the endoscopy with the doctor ordering it.
  2. trents
    Before I comment, please supply the ranges used by the lab for negative vs. positive for both the ttg(IGA) and the ttg(IGG). Different labs use different ranges. There is no industry standard. Please supply this in a new post as you likely will not be able to edit your existing post.
  3. trents
    Welcome to the forum, @Dhruv! Many with celiac disease are asymptomatic. We call them "silent" celiacs. That doesn't mean they will always be asymptomatic, however. It could just mean their physical constitutions are stronger and providing more resistance to damage. Eventually, it will catch up to them if they continue to consume gluten and they will...
  4. trents
    I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient...
  5. trents
    To simplify this for you, there are two primary genes that have been linked to the potential for developing celiac disease, HLDQ2 and HLDQ8. You have one of them. This means you have the potential to develop celiac disease. It does not mean you have celiac disease or will develop celiac disease. It just means you have the potential to do so. Almost 40% of...
  6. trents
    knitty kitty, are you IGA deficient? I'm wondering if seronegative IGA celiacs will also be necessarily IGA deficient.
  7. trents
    You still may have NCGS. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac...
  8. trents
    Welcome to the forum, @jmiller93! What was the range used by that lab to establish positive vs. negative? Different labs use different ranges. There is no industry standard. But the number is low enough to suggest a negative test result for the tTG-IGA. That one is actually an antibody test used to detect celiac disease. The other one, the "IGA" at ...
  9. trents
    I do not think allergy testing requires you to have been consuming allergens in proximity to the testing. The testing itself supplies the allergens. There are two kinds of allergy testing that can be done. One is the skin prick panel and the other is serological. I've had both done. There is a lot of skepticism in the medical community with regard to allergy...
  10. trents
    Welcome to the forum, @damnyoureyes! Your elevated serum B12 levels are because you supplemented with B12 and would not be due to malabsorption from celiac disease. Malabsorption from celiac disease would give the opposite effect. Were you ever tested for B12 serum levels before you started supplementing with B12? I understand you were trying to find...
  11. trents
    Welcome to the forum, @Pua! Yes, many, many forum participants have been in this same boat. That is, suspecting celiac disease and testing the waters by going gluten free but then realizing they undermined the ability to bet tested for it by doing so. It's a very common mistake??? but a completely understandable decision making sequence. The symptoms...
  12. trents
    Welcome to the forum, @MomofGF! I know you said you are not looking for a dx but the symptoms you describe scream of celiac disease as opposed to NCGS (Non Celiac Gluten Sensitivity). Celiac disease does not damage the stomach lining but rather the lining of the small bowel, i.e., the intestinal area right below the stomach. This is the area where...
  13. trents
    Holli Madsen, be aware that it can be difficult to wean off of PPIs once you have been on them for an extended period of time. There is typically a rebound of GERD when going off after being on them for long periods of time. They are designed to be a short term remedy to be taken for weeks but many physicians put their patients on PPIs and leave them on for...
  14. trents
    Many celiacs are what we call "silent". That is, they don't have classic GI symptoms but begin developing other medical problems such as you describe with your husband. Also, it is unfortunate that many doctors, and in some cases their hands are tied by stingy healthcare system protocols, do bare minimum testing for celiac disease which would consists...
  15. trents
    Even though you were tested for celiac disease at 20 and it was negative, you can develop celiac disease at any stage of life. Developing active celiac disease requires to elements. The first element is the genetic potential. There have been two primary genes connected to the development of celiac disease, HLDQ 2 and HLDQ 8, and some secondary variant...
  16. trents
    Check my last post as I added some to it.
  17. trents
    If she's pooping regularly and even several times a day, how is it that she is getting "full up and bunged up"? Is there a delay in her stomach emptying into her small bowel? Well, from the testing numbers you supplied, it is obvious the results are greater than 10x normal and there really is no reasonable doubt that your daughter has celiac disease...
  18. trents
    Do you have information concerning the range for negative vs. positive for the celiac antibody blood test that was performed on your daughter? Different labs use different ranges. There is no industry standard in how these tests are constructed. The reason I ask is that it is becoming more common in medical practice to forego the gastroscopy/biopsy for confirmation...
  19. trents
    https://www.medicinesfaq.com/brand/movicol It's basically made up of three different salt compounds. I'm thinking it may irritate the gut but I don't know. At any rate, at the dosage she was using it sounds like food was moving too fast through her gut so I'm thinking the gut was overstimulated.
  20. trents
    Welcome to the forum, @sh00148! How old is your daughter? Emesis is a classic symptom of celiac disease but the movicol could be exacerbating the problem. I understand you don't want her to become impacted again but don't overdo the movicol. An ounce of prevention is worth a pound of cure but a pound of prevention may be worse than the disease itself...
  21. trents
    Welcome to the forum community, @RiosMom! Unless you are in the super sensitive subset of the celiac community, I wouldn't worry about transdermal exposure to gluten.
  22. trents
    May we ask your age? Do you have problems with your knee joints? It is common for men as they age to lose muscle mass, especially in the legs and buttocks as testosterone/DHT levels drop. And there is a higher concentration of androgen receptors in the upper body to begin with. I am 73 and I have also noticed that as knee joint pain has begun to set...
  23. trents
    I understand your frustration but there is also a significant subset of celiacs that cross react to oats and soy. You just can't eliminate all possible cross reactive ingredients.
  24. trents
    My bad. The reason it is important to rinse quinoa is because of saponins, not lectins. Some people, and I am one of them, get very ill from the saponins. Like lectins, saponins are part of the natural defense mechanism of some plants. https://www.allrecipes.com/article/should-you-rinse-quinoa/
  25. trents
    Good point. But I have been made very ill by eating unwashed quinoa that was not cooked but used in a side salad.
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