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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I agree with your doctor's interpretation. Specifically, what advice are you seeking? The one piece of advice you do need to hear is not to begin a gluten free diet until the biopsy is complete. Be sure to eat plenty of gluten containing foods until the biopsy is done or you risk invalidating the biopsy.
  2. trents
    Welcome to the forum community @DorySue! I take it to mean that your IGA score of 81 is referring to what we call "total IGA"! The total IGA is not a test for celiac disease per se. However, if total IGA is low it will drive down individual celiac antibody IGA scores toward the negative range and so can create false negatives in, for instance the tTG...
  3. trents
    As strange as it may sound, low stomach acid can actually be the culprit instead of excessive stomach acid such that taking proton pump inhibitors and frequent antacid over the counter remedies are actually counterproductive. PPIs increase stomach PH and inhibit digestion of food and the assimilation of vitamins and minerals. They are way over prescribed...
  4. trents
    I think you should assume it is safe. It has been tested to meet the standards for gluten free. Unless you are in the super sensitive subset of celiacs you likely do not need to be concerned about the difference between "gluten free" and "certified gluten free". Are you also taking a dedicated "C" supplement to address that deficiency? I doubt there is enough...
  5. trents
    Yes, there are a few medical conditions, some foods (i.e., the protein "casein" in dairy) and some medications (i.e., NSAIDs) that can cause positive blood tests without celiac disease in some people but they also cause damaged villi. So, that doesn't really fit either. I still fall back on the early stage of celiac disease hypothesis, however. I think...
  6. trents
    More than likely, either the damage to the villous lining of your small bowel was patchy and missed by the biopsy or you were in the very early stages of celiac disease such that little damage had been done to the villous lining. We suggest that at least four samples be taken from both the duodenum and the duodenum bulb to minimize the chance of missing damage...
  7. trents
    Before you remove gluten from her diet, check with the doc about whether or not an endoscopy/biopsy of the small bowel lining is planned for confirmation of what the blood antibody tests are indicating. I doubt if they would want to do a procedure like that on a two year old but you'd better ask. If she has celiac disease then once gluten is removed the...
  8. trents
    This could indicate celiac disease, yes. But can you clarify something? Your subject line is ambiguous. Are these results from two years ago or are they results for your two year old child? I take it to be the latter. If so, it is common for young children not to show positives for the IGA tests but for the IGG tests if they have celiac disease. Their immune...
  9. trents
    So, in case your gastro doc wants to do the blood antibody tests, you need to continue eating regular amounts of gluten until after the blood draw. The antibody tests usually come first and the biopsy is done for confirmation but just in case . . .
  10. trents
    Sounds like what you would find with celiac disease that was not at a super advanced stage since the villi are intact.
  11. trents
    Welcome to the forum community @tummytroubles777! Your symptoms scream either celiac disease or NCGS (Non Celiac Gluten Sensitivity). You may very well be IGA deficient. Physicians should always order a test for total IGA when they order the tTG-IGA, IMO. I would suggest you request a more complete celiac panel with these additional tests: ...
  12. trents
    @Hebie, we do get anecdotal reports of celiac disease going into remission but it usually comes back at some point. To render valid testing for the endoscopy/biopsy you should be eating 10g of gluten (an amount found in approximately 5 slices of bread) daily for at least two weeks and preferably longer. When is your endoscopy scheduled for?
  13. trents
    @DynamoCappo, you mentioned you had a colonoscopy and that after that biopsies were taken. Were the biopsies taken of the large intestine or the duodenum/duodenum bulb (upper small intestine area right below the stomach outlet)? Celiac disease cannot be diagnosed with a colonoscopy or biopsy of the lower bowel. It damages the small bowel which can only be...
  14. trents
    The above linked article might be helpful in getting an overview of celiac antibody testing. Unfortunately, many physicians are pretty deficient in their knowledge about celiac disease and operate on incomplete or outdated information. It's understandable for GPs at least as they can't know about every health issue in depth. As long as you have a doc who...
  15. trents
    I'm sorry. We miscommunicated. I thought you were speaking of blood antibody tests in your third post, not genetic tests. Here is what I mean: Blood antibody tests are usually the first thing doctors run when checking for celiac disease. If there are positives in the antibody testing then they will often order an endoscopy/biopsy to confirm. Genetic...
  16. trents
    Were there any other celiac antibody tests run besides the tTG-IGA? If not, I would certainly press for a more comprehensive celiac panel. You could be low in total IGA which would drive individual celiac antibody test scores down toward the negative range. If I were you, I'd go back to your physician and ask for these additional tests to be run: 1....
  17. trents
    Post the blood antibody test scores along with their ranges for negative vs. positive and we'll help you with that. Type them in. Posters are having lots of trouble when trying to attach pics.
  18. trents
    No. "Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy " Is simply saying that the test ordered is appropriate as a diagnostic tool for celiac disease. You do not give a reference scale to compare your score to so we don...
  19. trents
    Welcome to the forum community, @stormylynncoleman! Having the DQ2.2 variant without also having the DQ2.5 genes puts you at a fairly low risk potential for celiac disease but doesn't eliminate the possibility. Having said that, genetic testing can only be used as a rule out tool rather than to diagnose celiac disease per se. 40% of the population have...
  20. trents
    Both the antibody test and the biopsy will likely by compromised by starting the gluten free diet ahead of the testing. The results of the testing may not be valid because of this. Do you understand the point I am trying to make?
  21. trents
    Thank you for getting back to us and we're glad to hear your symptoms have improved.
  22. trents
    Welcome to the forum community, @Giga221! First, it needs to be said that genetic testing cannot be used to definitively diagnose celiac disease. 40% of the general population carries 1 or more genes that have been identified with the potential to develop celiac disease. Yet, only about 1% of the general population develops active celiac disease. From...
  23. trents
    Welcome to the forum community, @Zonisamide! Any answer to your question would necessarily be conjecture at this point. We do know that neurological disorders are among the medical problems associated with celiac disease. But to say in any particular case that celiac disease is necessarily the cause of a person's neurological problems would be impossible...
  24. trents
    Welcome to the forum community, @David G! I don't know that you can draw any conclusions one way or the other from this data. In either case, the numbers do not indicate a high degree of inflammation IMO. It does appear your son may still be getting some gluten contamination. When he was originally diagnosed, was there an endoscopy/biopsy done? If so...
  25. trents
    I would trust it, yes, to at least meet the <20ppm requirement for the FDA categorizing something as gluten free. But then, I'm not a super sensitive celiac and minor amounts of CC don't seem to cause a reaction in me. I think it is a positive sign that the source company was straightforward and gave detailed information about their cleaning procedures...
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