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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Gary, You say you were Dx with Celiac Disease 20 years ago. Are you being compliant with the celiac disease gluten free diet? You did not mention that. I was diagnosed with celiac disease about 15 years ago. One of my blood abnormalties was low iron levels. I started taking an iron supplement and still do. My iron levels are now normal. The supplement...
  2. trents
    The thing that needs to happen is that you need to go off of the gluten-free diet for two or three weeks before having that Celiac testing done again. You may need to explain the circumstances to your care provider so they can justify a repeat of the blood work. But I would not assume anything at this point about what is causing these symptoms.
  3. trents
    Too many carbs, not fat intake as was preached to us for decades, is the main cause of obesity for most of us who live in first world countries. Lately, I have cut way back on carbs and substituted some of those calories with fat calories (eggs, whole dairy products, nuts and seeds and yes, even "spam"). This, combined with moderate regular exercise, is causing...
  4. trents
    What medication? Is there actually something out on the market for Celiacs? There's been a lot of experimentation and maybe some things in trial but is there actually a med out now that works?
  5. trents
    Tablets? Do you refer to some kind of medication or to electronic devices?
  6. trents
    I had EB at about age 20 when I was at college. Started showing definite signs of celiac disease at about age 37 (elevated liver enzymes for, at the time, no known reason) and was finally dx'd with celiac disease in early 50s. It has long been postulated that certain stressors like viral infections can trigger adult onset celiac disease but this research...
  7. trents
    Sounds like that might be the case. Having said that, do you realize that a forum for Celiac Diseases is not about allergies to wheat? Celiac Disease is not an allergy. It is an autoimmune disease triggered by ingestion of wheat that causes damage to the small bowel lining.
  8. trents
    What's interesting to me is that the hypo acidity is linked to dermatitis herpetiformis but not villous atrophy. That is if I understood it correctly.
  9. trents
    Never heard of that test. There are certainly non Celiac reactions to wheat and gluten but whatever it is it seems clear to me your daughter needs to eat gluten free if you are sure that wheat/gluten are causing these symptoms.
  10. trents
    I would push for a hidascan for gallbladder issues. How long have the pain under the ribs, jaundice symptoms been going on? The whole two years?
  11. trents
    I think your hunch about this being either problems with the gallbladder or pancreas is probably correct. If you are jaundiced that seems like a tip off to me of problems with inflammation in this area of the body. Please don't dilly dally in getting this looked into. These conditions can become life threatening. Do what you need to do, through NHS or apart...
  12. trents
    I had bi-lateral pulmonary embolis after Celicac dx and I suspect I had several small ones over the years before celiac disease dx. In my case it turns out I have a genetic condition called Factor 5 Leiden which, without going into the biochemistry of it all, causes my blood to clot too easily. After I landed in the hospital with the bilateral clots I was...
  13. trents
    I just want to add, because this was not clear to me from your narrative, that alcoholic beverages are not to be considered gluten free by default. All spirits can contain at least traces of gluten unless they are produced from gluten free grains/plants and stored in containers not contaminated by gluten. As an example of the latter, wines are sometimes stored...
  14. trents
    Good questions and there are not necessarily definitive answers. First, many true Celiacs are asymptomatic or have very minor symptoms in reaction to the ingestion of gluten. That doesn't mean there is not damage to the small bowel villi going on. They are finally diagnosed as having Celiac disease usually because other things are getting out of whack...
  15. trents
    http://theceliacmd.com/2016/02/gluten-and-keratosis-pilaris-chicken-skin/ "There are no studies indicating a direct correlation between gluten ingestion and keratosis pilaris. However, it can be caused by vitamin A deficiency or essential fatty acid deficiency, both of which can occur with impaired absorption. If you have celiac disease or gluten sensitivity...
  16. trents
    Out of ideas. Doesn't sound like fibro to me as there is the asymmetry thing and you don't mention other FM symptoms like fatigue. Doesn't sound rheumatoid in nature either.
  17. trents
    That is bazaar! Have you had any neurological testing done, say like scans of the spinal column or brain? The asymmetrical nature of it makes me wonder if there is a neuro basis to your symptoms. Shingles is another possibility that comes to mind.
  18. trents
    To answer your question, the finger prick test is accurate as far as I know. I don't know why that would be any different than a lab draw with syringe. Both get blood. Anemia is extremely common with Celiac disease. The damaged lining of the gut caused by the auto immune driven inflammation characteristic of Celiac disease significantly reduces the...
  19. trents
    How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia?
  20. trents
    I just did some hasty research that didn't turn up a connection necessarily between the drug and having Celiac disease. What I did find was that for some people the drug caused "Celiac sprue like enteropathic symptoms." One article mentioned that one such patient was tested for Celiac antibodies but the results were negative. Nonetheless, I would be skeptical...
  21. trents
    I think something cyclinglady said bears repeating and that is the absence of overt GI symptoms such as pain or "D" is not a reliable indicator of something being gluten free. Many Celiacs are largely asymptomatic but gluten is still damaging their bodies.
  22. trents
    Yes, as you mentioned, adding an apple very day is an excellent move. Apples not only are a good source of fiber but they also help with GERD and settle stomachs. There is some truth to the old saying, "an apple a day keeps the doctor away." And instead of prune juice I would use whole prunes.
  23. trents
    If the liver and gall bladder checked out then I would be looking at a stomach ulcer. The pain locus seems to high for IBS. I would inquiring about an upper GI endoscopy. Also, when they investigated the gall bladder did they do a hida scan? Gall bladder problems can be difficult to run down. An ordinary ultrasound would only show stones but stones are...
  24. trents
    I was diagnosed almost 15 years ago and have been conscientious about avoiding gluten. Yet, follow up endoscopies during those first three years showed continued SB inflammation. Other issues, like elevated liver enzymes resolved, however. So there was partial victory but also some disappointment. Another impact of Celiac on my body was that my total protein...
  25. trents
    Bigchan, welcome to the forum! Your narrative is not an uncommon one. Many report that after going gluten free they still show inflammatory disease markers in followup testing. I wish it were the case that going gluten free is the magic bullet that we all have expected it to be at the outset of the Celiac journey. As more evidence mounts over the years...
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