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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    If you refer to the damage done to the villous lining of the small bowel, yes, it should heal with time and consistent gluten free eating. The damage done to the villous lining is caused by the inflammatory response to gluten caused by the immune system mistakenly interpreting it as an invader. Once you remove the gluten, the inflammation subsides and the...
  2. trents
    I understand the concept of rewarding those companies who are consistently in compliance with GFCO standards and the idea of doing so has merit but it is also true that while the cat is away the mice will play. As others have suggested, perhaps the introduction of unannounced, random drop in testing needs to be added to the mix to keep them on their toes...
  3. trents
    The reason I'm asking about this is the thought that the introduction of the iron supplement is not the only nutrient change his body is undergoing. The healing of the villous lining of the small bowel since going gluten free is allowing his digestive track to absorb all kinds of nutrients more efficiently than it was before. Have you had his iron levels...
  4. trents
    It should be safe to use this long term as this is not chemical stimulation but a bulk producing laxative that works by collecting and retaining water as it moves through the intestines. It would be no different than eating high fiber foods like fruits and veggies.
  5. trents
    Welcome to the forum, @Jimmy2014! May we presume your son is also now observing a gluten-free diet? How old is he? Did the iron supplementation begin about the same time as going gluten free?
  6. trents
    @Jennie6308, there are no industry standards for scaling the results of celiac antibody tests. Each lab develops their own test parameters. So, the only thing that counts is what the lab used that did the analysis of your celiac antibody test blood samples.
  7. trents
    Welcome to the forum, @Jennie6308! Yes, the reduction in gluten intake from the low carb diet of the past few weeks could certainly have pushed the scores in the TTG-IGA antibody test downward toward the negative range. It might also compromise the results of an endoscopy/biopsy. I'm wondering also if the Naltrexone therapy would suppress celiac antibody...
  8. trents
    Yeah, 5 days off gluten wouldn't have much if any effect on the testing. It does not appear you have celiac disease if the biopsy was negative, meaning no damage to the small bowel mucosa. It would seem your health issues are due to something else.
  9. trents
    The reason I asked is because eliminating or even seriously restricting gluten intake for weeks or months before testing will invalidate the tests due to rebound healing of the gut mucosa.
  10. trents
    By any chance had you already embarked on a gluten free diet or at least were seriously cutting back on gluten before the bloods were taken and the endoscopy/biopsy was done?
  11. trents
    Welcome to the forum, @milo2007! I have a few questions for clarity's sake. You say you have had "bloods" done. Do you refer to the specific antibody tests that are run to detect celiac disease or are you referring to general common blood work like a CBC/CMP? When you had the endoscopy done, did they biopsy the small bowel lining to microscopically...
  12. trents
    I had the same thought as Cristiana about your cough being related to GERD, which is a very common co-malady in the celiac community. If this be the case, be aware that most doctors will want to put you on a PPI (Proton Pump Inhibitor) which is not a road you want to go down if you can possibly avoid it. PPIs lower gut acidity which inhibits digestion and...
  13. trents
    Welcome to the forum, @BookLou! Many or most people with celiac disease do not have GI symptoms, or at least to any significant degree, until damage to the small intestine's villous lining becomes serious enough with time, often years of time. We call them "silent" celiacs. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which...
  14. trents
    I have had food allergy testing done and have mixed feelings about it. First, realize there is more than one method of doing it so you need to look into that. There is skin prick testing and there are blood tests. What is interesting is that you can compare the results from various kinds of testing and they can be significantly different. But there is usually...
  15. trents
    Good reads. Would seem wise for celiacs to cut down on carbs, especially simple sugars as candida thrives on them.
  16. trents
    Matt, recent guidelines for the "gluten challenge" are 10g of gluten (the equivalent of 4-6 slices of bread) daily for at least 2 weeks. And this would apply to either the antibody blood testing or the endoscopy/biopsy. The term "gluten challenge" refers to those who have been gluten free for a significant period of time but then wish to get tested for confirmation...
  17. trents
    Can you provide us with some links to said research? Historically, celiac disease has been considered to be the only known cause for dermatitis herpetiformis - such that having dermatitis herpetiformis was confirmation of having celiac disease.
  18. trents
    Matt, ditto to what RMJ said about continuing to consume gluten until the endoscopy/biopsy is done. Many have made the mistake of not knowing to do that and there was enough healing of the villous lining of the small bowel to provide results that were not clear. They you are in the dilemma of conflicting test results. Having said that, there are some cases...
  19. trents
    Ditto with what RMJ said.
  20. trents
    I think most common cooking oils are gluten free. We use canola.
  21. trents
    Sabrine, what test was used to diagnose you as have celiac disease? Have you had any vitamin and mineral deficiency testing done. If you don't eat meat it concerns me that that you may be missing some key nutrients. Some nutrients are just hard to get from non animal sources at least in sufficient amounts. Perhaps the best example is vitamin B12. Do...
  22. trents
    RMJ pretty much says what there is to say on the subject. It mostly boils down to your level of gluten sensitivity but there are other factors as well. In a production environment that is not dedicated gluten free the level of cross contamination may vary from batch to batch and from run to run. When the goal of production is not to arrive at a gluten free...
  23. trents
    Welcome to the forum, @Amanda Hunter! I'm not clear on what you are asking. I think there is a typo in your sentence. Are you asking if the yeast extract in crisps and snacks, etc. can trigger an episode of ataxia in a person with gluten ataxia? Or, are you asking if a person with gluten ataxia can safely eat crisps and snacks, etc. that contain...
  24. trents
    @BoiseNic, if most fruits give you problems, I would think you might be fructose intolerant.
  25. trents
    Have you given thought to the health risks associated with long term PPI therapy? They raise stomach PH and inhibit digestion of nutrients and also put you at increased risk for GI infections. I was on a PPI for years but managed to wean myself off it over about a year and now, after some other dietary and lifestyle changes, hardly have any problem with GERD...
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