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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @milo2007! I have a few questions for clarity's sake. You say you have had "bloods" done. Do you refer to the specific antibody tests that are run to detect celiac disease or are you referring to general common blood work like a CBC/CMP? When you had the endoscopy done, did they biopsy the small bowel lining to microscopically...
  2. trents
    I had the same thought as Cristiana about your cough being related to GERD, which is a very common co-malady in the celiac community. If this be the case, be aware that most doctors will want to put you on a PPI (Proton Pump Inhibitor) which is not a road you want to go down if you can possibly avoid it. PPIs lower gut acidity which inhibits digestion and...
  3. trents
    Welcome to the forum, @BookLou! Many or most people with celiac disease do not have GI symptoms, or at least to any significant degree, until damage to the small intestine's villous lining becomes serious enough with time, often years of time. We call them "silent" celiacs. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which...
  4. trents
    I have had food allergy testing done and have mixed feelings about it. First, realize there is more than one method of doing it so you need to look into that. There is skin prick testing and there are blood tests. What is interesting is that you can compare the results from various kinds of testing and they can be significantly different. But there is usually...
  5. trents
    Good reads. Would seem wise for celiacs to cut down on carbs, especially simple sugars as candida thrives on them.
  6. trents
    Matt, recent guidelines for the "gluten challenge" are 10g of gluten (the equivalent of 4-6 slices of bread) daily for at least 2 weeks. And this would apply to either the antibody blood testing or the endoscopy/biopsy. The term "gluten challenge" refers to those who have been gluten free for a significant period of time but then wish to get tested for confirmation...
  7. trents
    Can you provide us with some links to said research? Historically, celiac disease has been considered to be the only known cause for dermatitis herpetiformis - such that having dermatitis herpetiformis was confirmation of having celiac disease.
  8. trents
    Matt, ditto to what RMJ said about continuing to consume gluten until the endoscopy/biopsy is done. Many have made the mistake of not knowing to do that and there was enough healing of the villous lining of the small bowel to provide results that were not clear. They you are in the dilemma of conflicting test results. Having said that, there are some cases...
  9. trents
    Ditto with what RMJ said.
  10. trents
    I think most common cooking oils are gluten free. We use canola.
  11. trents
    Sabrine, what test was used to diagnose you as have celiac disease? Have you had any vitamin and mineral deficiency testing done. If you don't eat meat it concerns me that that you may be missing some key nutrients. Some nutrients are just hard to get from non animal sources at least in sufficient amounts. Perhaps the best example is vitamin B12. Do...
  12. trents
    RMJ pretty much says what there is to say on the subject. It mostly boils down to your level of gluten sensitivity but there are other factors as well. In a production environment that is not dedicated gluten free the level of cross contamination may vary from batch to batch and from run to run. When the goal of production is not to arrive at a gluten free...
  13. trents
    Welcome to the forum, @Amanda Hunter! I'm not clear on what you are asking. I think there is a typo in your sentence. Are you asking if the yeast extract in crisps and snacks, etc. can trigger an episode of ataxia in a person with gluten ataxia? Or, are you asking if a person with gluten ataxia can safely eat crisps and snacks, etc. that contain...
  14. trents
    @BoiseNic, if most fruits give you problems, I would think you might be fructose intolerant.
  15. trents
    Have you given thought to the health risks associated with long term PPI therapy? They raise stomach PH and inhibit digestion of nutrients and also put you at increased risk for GI infections. I was on a PPI for years but managed to wean myself off it over about a year and now, after some other dietary and lifestyle changes, hardly have any problem with GERD...
  16. trents
    Kefflax? Did you mean Keflex? Keflex is an antibiotic. Why would your doctor put you on that one after a seizure?
  17. trents
    My understanding is that the biopsies should not be take from the pustules themselves but from the skin adjacent to them. It can be difficult to find a dermatologist who knows how to biopsy for dermatitis herpetiformis correctly. Do you have any GI involvement in your celiac disease? Have you had blood antibody testing done or small bowel biopsy performed...
  18. trents
    Many or most chewing gums have gluten in them. Also, check the jelly beans. The tuna is high in iodine. Iodine exacerbates dermatitis herpetiformis.
  19. trents
    @SunshineFace, the latest guidelines for the gluten challenge are 10g of gluten daily for at least 2 weeks. 10g is the amount of gluten in about 4-6 slices of bread. So, I would say you need to at least one more croissant daily.
  20. trents
    This conflicts with what you said above in your second post when you said he does have dairy. Yogurts and cheeses are dairy products.
  21. trents
    Lactose is the sugar component in milk, not the protein component. Many celiacs are lactose intolerant and this causes GI distress but would not damage the mucosal lining of the small bowel. I would like to echo what Scott is saying about the likelihood of some unexpected source of gluten having entered into your son's diet. Please read the article he linked...
  22. trents
    Welcome to the forum, @Kathleey! Does your son consume dairy? A certain percentage of celiacs experience villous atrophy from CMP (Cow's Milk Protein).
  23. trents
    Products labeled "Gluten Free" but not "Certified Gluten Free" do not require a certification "stamp". The "Gluten Free" standard is less than 20ppm (the FDA standard) whereas the "Certified Gluten Free" standard is less than 10ppm. Was the Trader Joe muffin in question labeled as gluten free or certified gluten free?
  24. trents
    Welcome to the forum, @Nicole Maree! Did you mean to say you are awaiting a "colonoscopy"? A colonoscopy cannot be used to check for celiac disease. Celiac disease damages the lining of the small bowel and a colonoscopy cannot reach up that far. They used an endoscopy for that. But maybe you are also having a lower GI scoping done to check for other possible...
  25. trents
    I heavily edited my previous post. Please review. I also wanted to make you aware that there are third party celiac blood antibody test kits available for around $100 USD. You mentioned that you had celiac testing coming up later this year. That sounds like UK health system wait times. Are you in the UK? At any rate, you might consider going third...
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