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trents

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Everything posted by trents

  1. trents
    Have you been diagnosed with celiac disease or are you looking into it?
  2. trents
    Welcome to the forum, @Toaster! EMA is a celiac disease specific antibody test. It was one of the first antibody tests developed for celiac disease but it has fallen out of favor in recent years. It is an excellent test but expensive to administer as it requires the use of animal organ tissue (esophagus I think) in order to be run. Since then, a less...
  3. trents
    I found a lot of stuff on Amazon when I searched for, "Gluten free Christmas cookies".
  4. trents
    Welcome to the forum, @warren031945! Use the search tool in the upper right corner of this forum page to find articles addressing your needs. I know there have been articles done on celiac.com dealing with the question of gluten-free cheeses and candies. Whether or not you could find something already put together in one place that is gluten free is...
  5. trents
    Welcome to the forum, @Rcnc63! Well, celiac and gluten go together. Celiac disease is an autoimmune reaction triggered by the ingestion of gluten that damages the lining of the small bowel. Gluten is a protein found in three grains: wheat, barley and rye. So, for starters, bread and pasta are out. Focus on fresh meat, vegetables and fruits and cooking...
  6. trents
    Probably NCGS then and there is also the possibility of an H. Pylori infection.
  7. trents
    Yes, but it does say it is wheat free. So, if it does contain gluten, it would must have come into contact with barley or rye somehow which isn't very likely. I think a lot of companies with products like this aren't willing to claim gluten free status because they don't want to got through the expense of testing and/or incur the liability risk if some customer...
  8. trents
    I wonder that as well!
  9. trents
    I would not think abstaining from commercially processed food would have any effect on dermatitis herpetiformis. What can help with dermatitis herpetiformis is reducing iodine in your diet and, of course, you must completely abstain from gluten. Many who suffer from dermatitis herpetiformis cannot find relief until they get on a med called Dapsone....
  10. trents
    When you had the blood draw done for the antibody testing, had you already been practicing a gluten free diet? If so, that would also sabotage the results of the tTG-IGA.
  11. trents
    Welcome to the forum, @Alibee! The Tissue Transglutaminase Ab IgA (aka, tTG-IGA) is a blood antibody test designed to detect the antibodies produced by celiac disease. It is the most popular single test ordered by physicians for this purpose but there are several others that could have been ordered. This test was negative in your case. The Immunoglobin...
  12. trents
    Take a look at this: https://www.amazon.ca/Soy-Flour-32-oz-OliveNation/dp/B075SY4GZD/ The description says it is processed in a facility that also processes nuts and soy. But it does not mention processing wheat.
  13. trents
    https://en.wikipedia.org/wiki/Fibrin_glue From what I can tell, all ingredients seem to be of animal origin. The article does indicate the exact composition varies from manufacturer to manufacturer so to get a more precise answer you would likely need to find out who manufactured the fibrin in question and contact them.
  14. trents
    https://www.webmd.com/a-to-z-guides/immunoglobulin-test https://labs.selfdecode.com/blog/high-iga/ I think for total IGA to be elevated to the point of being out of normal range there would need to be some chronic inflammation or infection happening, not just a short term event. As I said, I would visit with your doctor over this and I would ask...
  15. trents
    I've never heard it said that celiac disease is a connective tissue disease. It is an autoimmune disorder that (classically) attacks the lining of the small bowel but we now know it can manifest in other body systems. It is also true that autoimmune disorders tend to cluster. That is, when you have one you often develop others.
  16. trents
    So, it sounds like you may have already been avoiding gluten before the blood draw was done for the antibody testing. Is this correct?
  17. trents
    Welcome to the forum, @Travel Celiac! The high total IGA does not indicate that your celiac disease is actively flaring up. Total IGA is not a test for celiac disease per se but rather is test given to determine if you are IGA deficient, which you are not. IGA deficient people will experience artificially low individual IGA antibody tests such as the...
  18. trents
    Welcome to the forum, @Kipman! When you say your Iga is low I assume you are referring to total IGA. Can you confirm this? If so, the antibody test score for the transglutaminase iga (what we generally refer to as tTG-IGA) test score cannot be trusted. Low total IGA (i.e., being "IGA deficient) will drive down the scores in the tTG-IGA test and can cause...
  19. trents
    Being gluten free for two weeks prior to testing can make a difference in the test results if the score is borderline.
  20. trents
    Ichthus is the Greek word (using English letters) for fish. The letters in the actual Greek word form an acronym that come from the first letters in the Greek words for "Jesus", "God's Son," "Savior". Now, back to your family's denial of your celiac disease, I think you can relate to this:
  21. trents
    Prolonged dehydration can cause kidney damage. How long has this been going on? Are you have diarrhea also? That's what the dyclomine is for I think.
  22. trents
    Thanks for noticing my avatar, or "profile pic" as you call it. It trust the ichthus symbol is meaningful to you as well. It's certainly nice to have an official diagnosis of celiac disease if that is the problem but I think you have discovered by experience in changing your eating habits that you either have celiac disease or NCGS (Non Celiac Gluten...
  23. trents
    Welcome to the forum, @nanny marley! Unfortunately, after bein on a gluten free diet or even a reduced gluten diet for weeks or months, you can expect test results to be negative.
  24. trents
    Sounds like your parents are in denial about your celiac disease. Do you have an official diagnosis? Have you been able to keep the anti nausea meds you mentioned down long enough to get into your system?
  25. trents
    Get someone to take you to the local ER and get some IV fluids on board. You already are or are at risk for serious dehydration. If you have no one who can transport you or you are too weak to make the trip in a car, call 911.
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