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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    What is a "boots pharmacist"?
  2. trents
    But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo the "gluten challenge" before testing but you need to understand that the...
  3. trents
    Well, you asked how it could be gluten free and I was just explaining how it could be. And that must be the case sense the entire dish is being marketed as gluten free. If one of the ingredients is not gluten free, then the entire dish is not.
  4. trents
    There are a number of gluten free beer products on the market these days. Where have you been? It just has to be brewed from non-gluten containing sources such as sorghum.
  5. trents
    Bright blood in the stool would indicate bleeding down at the lower end in the colorectal area as opposed to the small bowel below the stomach where celiac manifests damage to the villous lining. Are these blood stools persistent? It's not unusual for this to happen once in a while to most anyone when a small surface vessel breaks, kind of like a nose bleed...
  6. trents
    There is no question that elevated liver enzymes are connected with celiac disease. That is a well established fact. I was one of those and mild but chronically elevated ALT and AST was what led to my celiac diagnosis. About 18% of celiacs have elevated liver enzymes. I would not trust a neurologist to give a valid answer to your question about that. He/she...
  7. trents
    Welcome to the forum community, @lasthope2024! Many of the symptoms you describe seem to have been temporary and transitory. What would you say is your biggest current cause of concern and suffering? May we ask you age?
  8. trents
    1000 mcg of B12 supplementation is peanuts. You should be taking 5000 mcg. and you should be taking a high potency B-complex to boot. The B-vitamins are seldom found in isolated deficiencies but are usually deficient as a group. If you live near a Costco, their Nature Made product line is a good choice and if gluten free will be labeled as such. Most of them...
  9. trents
    How many mg or IU of B12 are you taking daily? One way to address malabsorption inefficiency is to just take more of the supplement. For example, if your absorption efficiency is 25% of normal, you could theoretically, uptake the same amount as someone with 100% absorption efficiency by taking four times as much. Are you also anemic by some chance? B12 uptake...
  10. trents
    Your symptoms definitely align with celiac disease and your endoscopy/biopsy certainly points to possible celiac disease. However, your celiac antibody testing does not. This could very likely be due to inadequate gluten consumption during the weeks/months leading up to the blood draw. Guidelines for the gluten challenge are evolving but the current trend...
  11. trents
    Welcome to the forum, @gameboy68! The lab numbers you gave are not helpful to us because you did not include the reference ranges for negative vs. positive. Especially for the celiac antibody tests this is critical info since there are no industry standards. Each lab develops their own tests and uses custom reference ranges.
  12. trents
    Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
  13. trents
    Welcome to the forum community, @Dave R! You certainly have a lot to cope with at the current time. Because of years of living with undiagnosed celiac disease, I have osteopenia but relatively minor fallout from it at this point. I'm about to turn 73 and have some lower back discomfort, particularly when sleeping and some kyphosis (curvature in the upper...
  14. trents
    Okay, I must have misunderstood. I thought your said the Mauna Loa macadamia product itself had the gluten free label.
  15. trents
    If the product has a gluten free label that would cover the flavoring component as well. But realize that in order to bear the "gluten free" label a product just needs to test under 20ppm of gluten which is not a strict enough standard for some celiacs. "Certified Gluten Free" requires a stricter standard - under 10ppm of gluten. On the other hand, you could...
  16. trents
    Then maybe the OP should talk to the gastro doc at the appointment about granting a celiac disease diagnosis on the high antibody count alone so as not to have to go through the endoscopic procedure. Cristiana, if it is true that a PCP cannot officially diagnose celiac disease then it must be true that a GI doc can do this since we do know that many in the...
  17. trents
    Very interesting! Thanks for getting back to us with what you discovered. I have long suspected there is too much emphasis on hydration these days. All the "health experts" are urging people to drink 64 oz. of free water (that's in addition to what is in our food) daily. That's a huge amount! I have always wondered if it has the effect of diluting the nutrients...
  18. trents
    Are you still consuming dairy? Along with oats, dairy is the most likely food to be cross reactive.
  19. trents
    There is still the possibility of cross contamination during processing of the ingredients, however, which would not require being listed with the allergens. However, this would likely not have any bearing except on the very most sensitive subset of the celiac community.
  20. trents
    It depends on what the vinegar was made from.
  21. trents
    Welcome to the forum community, @Sam808! There is a very short time window for editing posts and including attachments. Start a new post, have your pics ready and use the paperclip tool in the lower left corner of the new post window. There is also a file size limit for pics. With the high pixel count of today's phone cameras, you may need to resample...
  22. trents
    Welcome to the forum community, @mycarson210! Quite a story! Have any of your three children been tested for celiac disease? A couple of more recent and larger familial studies found that well over 40% of the first degree relatives of those with celiac disease had celiac disease themselves when tested, even though most of them had no clue and many were...
  23. trents
    But I'm not sure that makes sense. For it to work that way you would have to have the blood antibody tests done by a GI doc who then could declare you to have celiac disease based on the fact that your scores are 10x or greater than normal. But, in the UK can you even start with a GI doc appointment without a referral? We have numbers of reports from forum...
  24. trents
    Welcome to the forum, @User492919129! Are you still consuming dairy and oats (even gluten free oats)? It is common for celiacs to "cross react" to these two foods (and others like soy and eggs and corn) because their proteins are similar in structure to gluten. And perhaps you have developed another food intolerance, also common among celiacs. You...
  25. trents
    It seems that you may still be getting "glutened" now and then since you still report having symptoms sometimes even though they are less frequent. But, yes, to ensure a reliable test result, either via blood antibody testing or biopsy, you would need to endure the gluten challenge which would require daily consumption of 4-6 slices of bread (or the gluen...
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