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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Both are valid concerns IMO. I developed osteopenia from celiac disease and was taking alendronate for a time. Honestly though, I can't remember if it was before diagnosis or after diagnosis of celiac disease. I was diagnosed over twenty years ago. I don't remember having any problems with the med itself but I do remember stopping it because I was concerned...
  2. trents
    Welcome to the forum, @marion wheaton! Can you be more specific about why the doctors were concerned about you taking the medication? Was there a connection between their concern and you having celiac disease?
  3. trents
    Jula, terminology can be confusing and the terms "gluten sensitive" and "gluten intolerant" are used by different people to mean different things. That's why I stick to using "celiac disease" and "NCGS" (Non Celiac Gluten Sensitivity) because those are the technical terms used by the medical community and it eliminates the confusion. As you point out...
  4. trents
    Jula, welcome to the forum. What possible benefit would having an official diagnosis give you at this point in your life? You already have medical test evidence that you are a celiac (antibody tests and genetic testing) and the symptom improvement when you went off gluten confirms what the testing already pointed to. Why on earth would you risk damaging...
  5. trents
    Welcome to the forum, @ellieb13! The third party commercial celiac test kits are reliable but suffer from the same shortcomings that the average physician ordered celiac testing does. Namely, the number and kinds of tests included is pretty limited, usually just one or two antibody tests as opposed to a complete panel. Some who do have celiac disease...
  6. trents
    JettaGirl, there are a number of serum antibody tests that can be ordered when diagnosing celiac disease. Unfortunately, most physicians will only order one or two. So, a negative on those one or two may or may not add up to seronegative celiac disease since had a "full celiac antibody panel" been ordered you may have thrown some positives. False negatives...
  7. trents
    You are confusing two different things. You are confusing seronegative celiac disease, in which all celiac antibody tests will be negative despite a positive biopsy, with mixed positive and negative antibody tests. It is normal for someone with celiac disease to not have all antibody tests throw positives. That's why they have developed different antibody...
  8. trents
    @Kathleen JJ, thanks for the update! Yes, as Cristiana mentioned gluten-free facsimile baked products are generally less nutritious than their wheat counterparts. In part this is due to the fact that the ingredients themselves have less nutritional value (lots of rice, potato and tapioca starch) and in part because the alternative "flours" used in gluten...
  9. trents
    @Ems10, celiac diagnosis normally involves two steps. The first one is serum antibody testing which you may have already have had done and are waiting on the results. The second step involves and endoscopy (aka, gastroscopy) with biopsy of the small bowel lining. This second step is typically ordered if one or more antibody tests were positive, is a confirmation...
  10. trents
    Your only resort would seem to be directly contacting the manufacturer and ask some pointed questions about CC . . . and hope you get some straight answers. You are probably already aware of this but the label "Gluten Free" does not necessarily equate to zero gluten. "Gluten Free" is a standard established by the FDA whereby a product can use that label...
  11. trents
    Maybe you picked up a little intestinal virus? Maybe some ingredient in the gluten free processed foods you've been consuming is causing this. In order to simulate the texture that wheat provides, a lot of gluten free products contain ingredients that may cause digestive distress. Xanthan gum and similar polysaccharides are among the chief offenders.
  12. trents
    I think most of us, when we first got our diagnosis, imagined that going gluten free would be the magic the bullet that would restore us to perfect health. We soon find out that it usually isn't quite that simple and that celiac disease has long fingers.
  13. trents
    Yes and this is true of gluten free ready made, processed and prepackaged foods in general. In particular, hard to digest polysaccharides are commonly used in these products that give many celiacs issues and I personally don't handle some emulsifiers well. IMO, reactions to these ingredients are often mistaken for a gluten reaction.
  14. trents
    I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
  15. trents
    We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
  16. trents
    Welcome to the forum, @Celiacsugh! Have you been checked for a gastric or peptic ulcer?
  17. trents
    Welcome to the forum, @lsky! In Canada I believe your healthcare system is totally socialized so I doubt if you have the option of making direct appointments with specialists. In the U.S. it is becoming more and more that way as most people here now are covered by some government managed healthcare network and almost all providers and specialists are...
  18. trents
    Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
  19. trents
    Yes, but if you had been avoiding bread because of the stricture, that might explain the negative result of the previous celiac antibody test.
  20. trents
    Diabetes and Hashimoto's as well, huh? You are the epitome of the autoimmune cascade effect. That is, once you get one autoimmune condition you tend to develop others. But I am curious. In the sequence of these several autoimmune diagnoses, where did the celiac diagnosis come? You certainly have a lot of health issues to juggle.
  21. trents
    So, you have a couple of strikes against you when it comes to nutrient absorption efficiency.
  22. trents
    Welcome to the forum, @green-blossom! You can develop active celiac disease at any stage of life. It involves possessing the genetic potential plus some triggering stress event that turns the relevant genes on. NCGS (Non Celiac Gluten Sensitivity) is 10x more common than celiac disease but some experts feel it can be a precursor to the development of...
  23. trents
    @llisa, have you also been diagnosed with celiac disease? You don't actually say but we have assumed that.
  24. trents
    Yes, I have concerns about the calcium supplementation as well. Sounds like a good idea on the surface if you are trying to address bone density issues but when overdone it can have the opposite effect. Calcium supplementation increases gut PH (i.e., lowers gut acidity) which can interfere with vitamin and mineral (including calcium itself) absorption. Often...
  25. trents
    The forms that vitamin and mineral supplements come in can be important. Bioavailability (i.e., how well they are absorbed) is often sacrificed for the sake of cost and shelf life. The vitamin or mineral you are targeting is always chemically combined with other elements to make them into a dispensable form (such as a powder, liquid or a pill) and to give...
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