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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum community, @Dave R! You certainly have a lot to cope with at the current time. Because of years of living with undiagnosed celiac disease, I have osteopenia but relatively minor fallout from it at this point. I'm about to turn 73 and have some lower back discomfort, particularly when sleeping and some kyphosis (curvature in the upper...
  2. trents
    Okay, I must have misunderstood. I thought your said the Mauna Loa macadamia product itself had the gluten free label.
  3. trents
    If the product has a gluten free label that would cover the flavoring component as well. But realize that in order to bear the "gluten free" label a product just needs to test under 20ppm of gluten which is not a strict enough standard for some celiacs. "Certified Gluten Free" requires a stricter standard - under 10ppm of gluten. On the other hand, you could...
  4. trents
    Then maybe the OP should talk to the gastro doc at the appointment about granting a celiac disease diagnosis on the high antibody count alone so as not to have to go through the endoscopic procedure. Cristiana, if it is true that a PCP cannot officially diagnose celiac disease then it must be true that a GI doc can do this since we do know that many in the...
  5. trents
    Very interesting! Thanks for getting back to us with what you discovered. I have long suspected there is too much emphasis on hydration these days. All the "health experts" are urging people to drink 64 oz. of free water (that's in addition to what is in our food) daily. That's a huge amount! I have always wondered if it has the effect of diluting the nutrients...
  6. trents
    Are you still consuming dairy? Along with oats, dairy is the most likely food to be cross reactive.
  7. trents
    There is still the possibility of cross contamination during processing of the ingredients, however, which would not require being listed with the allergens. However, this would likely not have any bearing except on the very most sensitive subset of the celiac community.
  8. trents
    It depends on what the vinegar was made from.
  9. trents
    Welcome to the forum community, @Sam808! There is a very short time window for editing posts and including attachments. Start a new post, have your pics ready and use the paperclip tool in the lower left corner of the new post window. There is also a file size limit for pics. With the high pixel count of today's phone cameras, you may need to resample...
  10. trents
    Welcome to the forum community, @mycarson210! Quite a story! Have any of your three children been tested for celiac disease? A couple of more recent and larger familial studies found that well over 40% of the first degree relatives of those with celiac disease had celiac disease themselves when tested, even though most of them had no clue and many were...
  11. trents
    But I'm not sure that makes sense. For it to work that way you would have to have the blood antibody tests done by a GI doc who then could declare you to have celiac disease based on the fact that your scores are 10x or greater than normal. But, in the UK can you even start with a GI doc appointment without a referral? We have numbers of reports from forum...
  12. trents
    Welcome to the forum, @User492919129! Are you still consuming dairy and oats (even gluten free oats)? It is common for celiacs to "cross react" to these two foods (and others like soy and eggs and corn) because their proteins are similar in structure to gluten. And perhaps you have developed another food intolerance, also common among celiacs. You...
  13. trents
    It seems that you may still be getting "glutened" now and then since you still report having symptoms sometimes even though they are less frequent. But, yes, to ensure a reliable test result, either via blood antibody testing or biopsy, you would need to endure the gluten challenge which would require daily consumption of 4-6 slices of bread (or the gluen...
  14. trents
    Well, then, there is no possibility of the gel cap being made from wheat.
  15. trents
    By financial perks I mean there is a stipend of some kind for buying gluten free food products and free follow up care.
  16. trents
    Welcome to the forum, @MissEva! The only other possibility would be cross contamination in the manufacturing process if this medication were to indeed be a source of gluten. In other words, being made on the same equipment as other meds that did contain gluten as an ingredient. But this would be highly unlikely and even more so to afford enough gluten...
  17. trents
    I would go back to the physician and ask her if she would be willing to give you an official diagnosis based on the test results alone, explaining that you are really struggling with the symptoms while continuing to consume gluten. I'm guessing if you push her a little like that she would. If she is willing to do that then I would cancel the hospital biopsy...
  18. trents
    Your conclusion seems reasonable to me but you might want to modify your declaration to say something like, "I'm reasonably certain I have celiac disease."
  19. trents
    Welcome to the forum community @Sharm! My guess is the answer to your first question is very likely "yes" and "quite possibly" to the second one. But more importantly, you obviously have discovered the root cause of these several maladies and whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) is a rather moot point. You need...
  20. trents
    Welcome to the forum community @Blanco! Which TTG test was that for which you report the result of 1540? There is the TTG-IGA and there is the TTG-IGG. If it was the TTG-IGA your score was 77x normal and I'm surprised the physician is asking you to go forward with a biopsy as in the UK it is common to forego the biopsy when the TTG-IGA scores are 10x...
  21. trents
    There is a very short time window for editing posts. This is to thwart spammers. Physicians are trained to spot acute vitamin deficiency diseases like rickets and beriberi but not trained to spot the effects of sub acute deficiencies.
  22. trents
    Some people have genetic deficiencies that require them to use methylated forms of vitamins. B vitamins are water soluble so excess is excreted in our urine and is nontoxic. You can't overdose on the common forms of them. There is vitamin D deficiency in many parts of the world either because of lack of sunshine (climate factors) or indoor living. Our ancestors...
  23. trents
    It is common for silent celiacs to react (symptomatically) more strongly after going truly gluten free for a significant amount of time. Before diagnosis, when we are consuming gluten regularly, we force our bodies to tolerate it even though it is doing damage. When we go completely off of it, we lose that tolerance. However, as in your case, if someone is...
  24. trents
    Welcome to the forum community, @heyitsme! Some parallels between your experience and mine in that I was a silent celiac and what led to my diagnosis back around 2000 was 7 years of mildly elevated liver enzymes that could not be explained by the usual causes. I am no longer "silent" as any significant exposure to gluten after being gluten free all these...
  25. trents
    You seem to be of the not super sensitive subset of celiacs so that is in your favor when forced to eat outside of your home where you find yourself in situations where you can't maintain tight control of cross contamination. I'm like that too. Just do the best you can in choosing things from menus or when in ala carte situations. In restaurants you can request...
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