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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Personally, I hesitate to use the term "allergy" because it can communicate to people that if you eat this it may just cause me to sneeze and have watery eyes or develop an itch rash. Anaphylaxis wont' necessarily come to their mind when they here the term "allergy". That's one reason I don't like to use the term allergy when referring to celiac disease....
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TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gail, the way celiac disease works is that gluten triggers an autoimmune response that generates inflammation in the lining of the small bowel. This is the area of the intestines where all of the nutrition in our food is absorbed and why long term untreated celiac disease generally results in stunted growth and medical issues related to vitamin and mineral... -
TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gail, the way celiac disease works is that gluten triggers an autoimmune response that generates inflammation in the lining of the small bowel. This is the area of the intestines where all of the nutrition in our food is absorbed and why long term untreated celiac disease generally results in stunted growth and medical issues related to vitamin and mineral... -
My recommendation would be that you talk to the manager and/or the chef and request that anything they cook for you be cooked in its own clean pots and pans and handled with clean utensils separate from all else that is being cooked. Explain to them that you have "gluten intolerant celiac disease" and that this is medically necessary. If you just use the...
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TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gail, it is important that you not begin a gluten free diet or even reduce gluten intake until all testing is complete, whether it be the antibody blood testing or the endoscopy/biopsy. I realize in my previous post that I mistyped one of those tests I am recommending. Please see my edit back there. In the meantime, here is an overview of the tests... -
Welcome to the forum, @John Primozic! By your employer, I take it to mean your boss. What makes you believe the comments are directed at you? Does this person make these remarks in group meetings or to you personally? When you use the term "mess" do you mean fecal matter being left on the toilet or just a bad smell? If just a smell then an...
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I am a celiac but my wife is not. However, she is very supportive of my need to eat gluten free and very careful not to expose me. My wife pretty much eats what I eat but she does fix wheat things for herself like crepes and occasionally pancakes and biscuits. She is very careful to wash things well, including toaster oven racks and counter tops after she...
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TESTING $650 :(
trents replied to GAIL OROURKE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The two most important celiac marker genes are the DQ2 and the DQ8. You have a positive for one of them so yes, you have the genetic potential for celiac disease. This is not the same as saying you do have celiac disease. Genetic testing cannot be used to diagnose celiac disease since about 40% of the general population has one or both of these genes but... -
If you take magnesium glycinate instead of magnesium oxide it shouldn't have a laxative effect. Magnesium oxide is the most common form you see on store shelves (and the least expensive) but it is not well-absorbed. It draws water into the colon and this is what creates the laxative effect. Many celiacs have the opposite problem of being constipated. Your...
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Celiac Disease and My Brain and Muscles
trents replied to ling27's topic in Coping with Celiac Disease
Welcome to the forum, @ling27! Have you been officially diagnosed with celiac disease yet? We're looking forward to supporting you and hearing more of your story. Just take your time as you are able. -
Another factor that needs to be developed here more thoroughly is the nature of job setting. Does the job require frequent attendance at lunch and/or dinner meetings and are these meetings generally "on campus" or off? "The Americans with Disabilities Act (ADA) defines a disability as a physical or mental impairment that substantially limits one or...
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Yes, reach out again to therapists in your area. Lean into this. If you must travel a bit to a larger place to get appropriate counseling support, this may not be a deal breaker. Many therapists do remote sessions through zoom or other online meeting tools these days. You could go in person once in a while and meet with the therapist online most of the time...
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Welcome to the forum, @newtoceliac2024! Celiac disease has a genetic base but the genetic potential requires some epigenetic stressor for the genes to be turned on, such as a viral infection. But the stressor can be a lot of different things. Could pregnancy be one of them? Possibly, but it seems unlikely, especially given the timing of things as you...
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Thanks for the additional information, Doreyn. Sounds like your parents were too rigid when it came to managing food issues in the home. I think most parents struggle at times with trying to make sure their kids get adequate nutrition and they worry when the kids are between growth spurts and their appetites seem to disappear. But if the parents make too...
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First, realize that you only have two data points to go from so I would not consider that enough to constitute a trend. What you are looking for is a trend and two data points is not enough to establish a trend. Second, all lab values fluctuate somewhat from time to time. That is normal. The next time you get it assessed it might be lower than either of the...
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Welcome to the forum, @Luashlee! You do understand that celiac disease is not an allergy but an autoimmune disorder, right? Just checking because you mention having a wheat allergy. Do you know if the blood samples are being tested by the same lab every time? Different labs concoct these tests differently and used different scales. There is not...
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Does anyone experience these symptoms?
trents replied to Staxey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can also look into third party pay out of pocket food allergy testing if your physician isn't inclined or isn't able to order it through your national healthcare system. -
Does anyone experience these symptoms?
trents replied to Staxey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You might try Allegra or Zyrtec or Claritin to see if it helps with the mucous. They are second generation antihistamines and don't produce the drowsiness associated with Benadryl and other first generation antihistamines. They are over the counter meds, at least they are here in the USA. -
Does anyone experience these symptoms?
trents replied to Staxey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the additional information. Sounds like you are on top of it then. Concerning your cough and excessive mucous production, I would suspect you have a number of food and environmental allergies. I, too, have a lot of mucous production during my sleeping ours that some nights causes me a lot of throat clearing and coughing. Sometimes it makes... -
Does anyone experience these symptoms?
trents replied to Staxey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Staxey! The first thing and of great importance: you should not start a gluten free diet before you get tested for celiac disease. You will invalidate the testing. The testing seeks to detect antibodies in the blood produced by the immune system's reaction over time to the ingestion of gluten. For someone with celiac disease, the... -
Welcome to the forum, @Doreyn! How long has it been since you were diagnosed with celiac disease? Why have you not had an appetite for weeks? That is concerning. Are you a "foody"? Is food really important to you and is it a big part of the family culture you grew up in such as it might be in some ethnic settings? Sounds like it might be for your...