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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Carrie.j! Either making a list or taking pictures or both would work to track what you have tried that you like. Taking pictures of is easy these days with cell phones and then you could transfer the information to a spreadsheet. Whatever method you use would require consistency. That is the key. But I'm concerned that you...
  2. trents
    Yes, you can get gluten exposure transdermally and the symptoms and the severity you describe match what I experience when I get glutened orally. I do not react to casual gluten exposure transdermally but some celiacs do.
  3. trents
    Okay. I wasn't sure if you were misapplying the term "gluten" as some do by referring to "corn gluten" and "rice gluten".
  4. trents
    If your celiac panel was administered after you had started eating gluten free, the panel would have been invalidated. Any kind of testing for celiac disease, whether blood antibody panel or endoscopy with biopsy must be done while still actively consuming significant amounts of gluten daily for a period of weeks to months. When gluten is removed or reduced...
  5. trents
    What do you mean by "all forms of gluten"?
  6. trents
    At 7 years old I would not trust the results of the tTG-IGA test alone. The one shot of Dunkin Wakeup Wrap before the blood draw for antibody testing would have no impact on results. Perhaps explaining what the antibody testing is measuring would help you understand all this better. For a person with celiac disease, the consumption of gluten triggers...
  7. trents
    Welcome to the forum, @Mlsilva! By any chance, had your daughter already started the gluten free diet before the celiac blood antibody testing was done or was she cutting back on wheat-based foods? What is normal range for IgA used by the lab who did the analysis? Your daughter's score on that, what we call "total IGA" is 73 but you did not give...
  8. trents
    Welcome to the forum, @Soleihey! Undoubtedly, you are experiencing vitamin and mineral deficiencies. Superficial serological vitamin and mineral deficiency testing often does not tell the whole story as it only measures what's floating around in the blood, not what is actually getting into the tissues and being used by them. There are more in depth tests...
  9. trents
    Welcome to the forum, @Lenabeana! Because you do not work in the production area of our company, I do not think you have cause to worry about gluten exposure. I would not overthink this if I were you. Worst case scenario would be needing to wear a KN95 mask if there is enough suspended wheat dust in the office air to cause a reaction. Take one thing...
  10. trents
    The gluten challenge guidelines are in the process of being revised to reflect the fact that formerly they were not intense enough and too many people who actually had celiac disease were testing negative in the blood antibody stage of testing. But you will still find a lot of the older guidelines on the internet which generally advocated 1-2 pieces of wheat...
  11. trents
    "the reference range for my test was 0.0-14.9 U/ml." Which test or tests do you refer to? Your symptoms align well with celiac disease and the fact that you were eating a lower gluten diet and have low iron stores casts doubt on the validity of your antibody testing. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which shares...
  12. trents
    Welcome to the forum, @Sunflowers06! By any chance were you already cutting back on gluten when you had the blood draw done for celiac antibody testing? Also, a test that should have been run that wasn't is "total IGA." If total IGA is low then it will skew other IGA test down toward the negative range. I would ask for that one to be run. Are...
  13. trents
    Frankly, I don't buy one of the major assertions at the beginning of this article and that is that departing from the paleo diet is the cause of all of our modern diseases. There is no way to prove that. All we have are their bones. And ancient human lifespans were apparently very short compared to that of today.
  14. trents
    That's not my understanding of what is meant by cross reaction but you could be correct. At any rate, in this person's case, there seems to be doubt as to whether he is truly eating gluten free.
  15. trents
    Is he consuming dairy? About 10% of celiacs react to the protein casein in dairy like they do the protein gluten in wheat/barley/rye. The structures are very similar.
  16. trents
    Welcome to the forum, @Patsul! There is no way to gauge how long you have had celiac disease from the Marsh analysis alone. A better gauge would be the timing of the onset of symptoms. But even then, there can be a significant delay between the onset of the disease and the appearance of recognizable symptoms. Many celiacs are "silent" for years until...
  17. trents
    The particular magnesium formulation makes a huge difference. The vast majority of magnesium supplements on store shelves are magnesium oxide and it can have a very definite laxative effect because it isn't absorbed well and draws water into the colon. A much better choice is magnesium glycinate.
  18. trents
    Makes no difference whether it is whole wheat or white. Whole wheat is white bread with the chaff not removed. That's not the main gluten containing part of t he wheat seed.
  19. trents
    High liver enzymes, including alk phos, are common with celiac disease.
  20. trents
    If you get skin reactions from gluten it may not be practical for you to undergo the gluten challenge in order to get tested for celiac disease. Can you describe the appearance of your skin reactions? Is it a rash with small blisters in the bumps? Any physician can order a DNA test or you can pay to have a private company to do testing. 23 and Me is...
  21. trents
    Antibody testing is blood testing but you still have to be eating gluten for weeks ahead of time for it to be valid. The equivalent amount of gluten found in about 6 slices daily of wheat flour bread for at least two weeks. All celiac disease testing, whether involves checking in some way for inflammation and/or the damage caused by it to the small bowel...
  22. trents
    The noodles in the chicken noodle soup will be a good source of gluten.
  23. trents
    Many have. It's been on the market for years. Many report good results. The manufacturer of Gliadin is one of our forum sponsors. It needs to be understood that the product is intended to protect against minor exposures to gluten such as you would experience with cross contamination in a restaurant. It will not be effective if you throw caution to the wind...
  24. trents
    The "gluten challenge" guidelines have recently been under revision to advocate for more intense exposure to gluten leading up to the either the blood antibody testing or the endoscopy/biopsy. I would recommend 6 slices of wheat flour bread daily (or the gluten equivalent) for at least two weeks. It is now felt that earlier gluten challenger guidelines were...
  25. trents
    I agree with what knitty kitty is saying. Celiac disease results in vitamin and mineral deficiencies because of the damage done to the villous lining of the small bowel.
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