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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Weird celiac symptoms
trents replied to DMulder47's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
High liver enzymes, including alk phos, are common with celiac disease. -
If you get skin reactions from gluten it may not be practical for you to undergo the gluten challenge in order to get tested for celiac disease. Can you describe the appearance of your skin reactions? Is it a rash with small blisters in the bumps? Any physician can order a DNA test or you can pay to have a private company to do testing. 23 and Me is...
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Also having vision issues
trents replied to Katanya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Antibody testing is blood testing but you still have to be eating gluten for weeks ahead of time for it to be valid. The equivalent amount of gluten found in about 6 slices daily of wheat flour bread for at least two weeks. All celiac disease testing, whether involves checking in some way for inflammation and/or the damage caused by it to the small bowel... -
Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
The noodles in the chicken noodle soup will be a good source of gluten. -
I am new to Celiac
trents replied to celiacpaula's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many have. It's been on the market for years. Many report good results. The manufacturer of Gliadin is one of our forum sponsors. It needs to be understood that the product is intended to protect against minor exposures to gluten such as you would experience with cross contamination in a restaurant. It will not be effective if you throw caution to the wind... -
The "gluten challenge" guidelines have recently been under revision to advocate for more intense exposure to gluten leading up to the either the blood antibody testing or the endoscopy/biopsy. I would recommend 6 slices of wheat flour bread daily (or the gluten equivalent) for at least two weeks. It is now felt that earlier gluten challenger guidelines were...
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How much calories should someone intake? Underweight.
trents replied to DJblaze's topic in Related Issues & Disorders
Have you been following a strict gluten free diet? -
Welcome to the forum, @Lrgthrcl! Your daughter has many symptoms that point to possible celiac disease. You mention that her "ttg levels are normal." Which ttg do you refer to? ttg-iga? ttg-igg? You also mention that her "ig levels are low." Do you mean igg? I am adding an link giving an overview of celiac disease blood antibody testing: Terminology...
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Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Keep us posted when you find out more or if things change. Hope you feel better soon. -
Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Yes, but if it makes you feel worse, no need to start that early. If it doesn't then go ahead. We have no idea at this point if gluten is even an issue with you. -
Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Start loading up on gluten several weeks before the gastroenterologist appointment. He/she will likely start with blood antibody testing and if that is positive he/she may order an upper GI scoping with a biopsy. -
Absorption for newly diagnosed celiacs is compromised but not totally absent. Iron supplements are absorbed better in an acidic environment so take vitamin c along with the iron. Try oral iron first and see if you respond. If not, then you can look at infusion. Iron assimilation can be a complex thing dependent on several factors. I would also take some high...
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The same could be said about many diseases. The immune system is incredibly complex.
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How long before felling better ?
trents replied to AsmaeB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Beverage, about 10% of celiacs react to the protein in oats, avenin, the same as they do wheat gluten. It may not be that gluten cross contamination is your issue with oats but cross reaction with avenin.- 12 replies
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- acne
- alopecia areata
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Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Also, testing for celiac disease is invalidated if you have already placed yourself on a gluten free diet. -
What is the Prilosec supposed to do for the dermatitis herpetiformis? Prilosec is a GERD med.
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Welcome to the forum, @emilyyy! Countless contributors to this forum have found themselves in the same conundrum as you. But I think you have your answer. Your greater well-being since instituting a gluten free diet is not a placebo effect. However, it seems to be true that some people do need an official diagnosis to help them stay on the gluten...
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I am new to Celiac
trents replied to celiacpaula's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This may be helpful in understanding what tests are run for celiac diagnosis and which are the most reliable. I should also add that many people are not warned by their physicians that they should not begin the gluten free diet until all testing is complete. Doing so likely sabotages the results and creates false negatives. -
Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Found this: https://www.healthyhearing.com/report/52556-Can-antibiotics-cause-hearing-loss -
Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Can Minocycline cause damage to the inner ear or some component of the vestibular system? Nausea and dizziness are often closely related and dizziness can be caused by inner ear/vestibular system problems. And Dramamine is often prescribed for those who are experiencing nausea, say from sea sickness/motion sickness which, of course, involves the inner ear... -
Dealing with constant nausea and just feeling awful.
trents replied to B1rdL0ver's topic in Related Issues & Disorders
Welcome to the forum @B1rdL0ver! And why were you taking Minocycline and how long? Have you been checked for SIBO (Small Intestine Bacterial Overgrowth)? -
I am new to Celiac
trents replied to celiacpaula's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is a very short time window allowed for adding an attachment. This is purposeful as it helps thwart spammers. However, when you open a new post window you should see a paperclip symbol at the bottom and a message saying you can also just drag the file over. Having said that, a lot of users complain they cannot do attachments so I'm not sure if that... -
I am new to Celiac
trents replied to celiacpaula's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The doctor dropped the ball. I can't understand why he did not schedule for a follow-up appointment to discuss your results. But he may have elected to not use the term "celiac" because it is unfamiliar to many or most people whereas most people are aware that "gluten" causes problem for some folks for one reason or another. It is common for celiacs...