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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Gliadingoaway! You say you "avoided gluten for awhile". What was the timing of that with regard to when the biopsy and blood draw for the celiac antibody tests were done? If they coincided, that would explain the negative biopsy results and the mixed results in the blood antibody testing for celiac disease. Any testing for...
  2. trents
    Welcome to the forum, @Redlima! Not sure if this could relate to your issue but it is well-known by the celiac community that gluten has an opiate-like effect that causes some people to experience withdrawal symptoms upon going gluten free. This usually manifests itself within the first few weeks. So, I'm not sure that fits with your time frame. Also...
  3. trents
    Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check...
  4. trents
    Welcome to the forum, @Hope07! The reference range would refer to what is considered normal in healthy people. So, 7 or less would mean there is no indication of "active" celiac disease. Apparently, you are doing very will in avoiding gluten. The "Tissue Transglutaminase IGA" is the centerpiece antibody test that clinicians run when checking for...
  5. trents
    Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity).
  6. trents
    So, you are not IGA deficient. But as Russ H suggested, it looks like you may be a seronegative celiac.
  7. trents
    With regard to the Iga 106, is there a reference range given for that one?
  8. trents
    That's how I took it but I was confused because in your previous post you said of your biopsy, "and mine very much showed damage". In the celiac antibody panel that was ordered, was there a test for total IGA included, aka, "Immunoglobulin A (IgA)"? This one checks for IGA deficiency. IGA deficiency can result in false negatives for the IGA celiac antibody...
  9. trents
    Exactly what component was indicative of "weak celiac disease"? Is that a reference to the endoscopy results or the whole picture of the results of the blood test combined with the endoscopy results? Villous blunting is the hallmark of celiac disease.
  10. trents
    Of course, what you breathe in eventually winds up in the gut because it gets trapped in the mucous lining of the airway and throat.
  11. trents
    Sounds like for the good of your own mental health its time to find another living space anyway. It may be best for everyone concerned.
  12. trents
    In the U.S. endoscopies are typically done under light sedation. You wouldn't even be aware of what's going on or remember it.
  13. trents
    Yes, IMO, you need to quit and look for another job. You can't put a price on your health. It's unfortunate that your parents don't understand but they don't have to live with the ravages of unattended celiac disease. Sometimes you have to do what you have to do and just be willing to live with the fact that some people will not understand. I don't know your...
  14. trents
    Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading...
  15. trents
    Welcome to the forum, @NightRaven92! The symptoms you describe definitely align with celiac disease or at least NCGS (Non Celiac Gluten Sensitivity). That, and the family history of celiac disease, certainly warrant being tested for it. The first stage of diagnosis involves blood tests looking for antibodies that are more or less specific to celiac disease...
  16. trents
    Welcome to the forum, @Marky0320! Simple nausea and emesis is common with celiac disease when gluten is ingested but I have not heard of a connection between CVS and celiac disease per se. Are you asking this question as one who has already been officially diagnosed with celiac disease or as someone who is investigating the possibility of having celiac...
  17. trents
    Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
  18. trents
    @Tammy Rivard raises a good point, and it's the same one we face with regard to food. Companies can and do change their product formulations from time to time such that what once was gluten free no longer is and, for that matter, the opposite could be true as well. So, don't assume "once gluten free, always gluten free".
  19. trents
    Welcome to the forum, @Nattific! First, let's deal with terminology which can be very confusing because there is a great deal of inconsistency in how the terms associated with gluten disorders are used by lay people and even in the medical/scientific literature as well. Having said that, it is probably more accurate to use the term "gluten intolerance...
  20. trents
    Wheat flour is fortified with vitamins in the U.S. as a part of USDA policy. Gluten free facsimile products are not fortified. There is no government mandate for such. When you remove wheat flour by going gluten free, you may be removing a significant source of vitamins.
  21. trents
    Multivitamin products are seldom potent to offset the vitamin and mineral deficiencies that typically result from long term undiagnosed celiac disease. We commonly recommend sublingual B12, a B-complex 5-10k IU of D3, 400 mg daily of magnesium glycinate, and zinc picolinate. The forms of certain vitamins like magnesium and zinc are important since it has...
  22. trents
    Are you addressing possible/probable vitamin and mineral deficiencies through some serious supplementation?
  23. trents
    That's the spirit Beagirl!
  24. trents
    Welcome to the forum, @DanteZaffar! Are you still eating oats (even gluten free oats) and dairy? There are other foods besides those that contain gluten that can cause celiac-like reactions. We call this "cross reactivity" (not to be confused with cross contamination). Their proteins are similar enough in structure to gluten to trigger the same kind...
  25. trents
    Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific...
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