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trents

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Everything posted by trents

  1. trents
    Thanks for the additional information. From the test score and the range of what is normal which you supplied, it is apparent that the test you refer to in your first post is the Immunoglobulin A (IgA), also commonly known as "total IGA". It is not a test used to diagnose celiacc disease per se but to check for IGA deficiency. If you are IGA deficient, then...
  2. trents
    Welcome to the celiac.com community @Mimiof2! Can you be more specific about the "IGA" blood test result that came back? There are several different IGA tests that can be run when checking for celiac disease. Can you give a more complete description of the test name? Since it has been 16 years since your original diagnosis, what prompted this recent...
  3. trents
    Your new mayor is going to fix all that and make groceries free to boot I hear!
  4. trents
    @Lotte18, Cheese Its have wheat flour as a primary ingredient so they would not fall under the category of cross contamination. No celiac should consume those. Skittles, on the other hand, are actually gluten free, according to the package. But I don't eat those either.
  5. trents
    @Lotte18, I didn't say I don't use prepackaged gluten-free foods because I do use them to an extent. And, I'm not a super sensitive celiac so, I seem not to react to cross contamination exposures. I was just making the point that for most people there are alternatives to prepackaged gluten-free stuff. And the fact is, the prepackaged gluten-free foods are...
  6. trents
    Unless, that is, you limit yourself to eating only that which you make from scratch and to fresh meats, veggies and fruits. What we are talking about here is a problem created by our reliance on ready made, prepackaged gluten-free foods.
  7. trents
    Of course, manufacture in a gluten-free facility only covers part of the risk as there still could be amounts of gluten in the ingredients coming from their suppliers that are causing certain batches to exceed FDA standards in the finished product. And, as we all know, the laws governing testing of products advertised as gluten-free are very lax. Standards...
  8. trents
    Welcome to the celiac.com community @KristinH! My guess would be that something may have changed at the production facility such that cross contamination is now happening. So, the company no longer felt a liberty to deploy the gluten-free label.
  9. trents
    @Ben Cohen, another option is to purchase gluten in powdered form from a health food store. That way, with a food scale, you could weigh out precisely 10g and mix it in at intervals throughout the day with a shake and beverages.
  10. trents
    Thanks for the clarification. How old is your child? Make sure your child's testing included the Immunoglobulin A (IgA) (aka, "total IGA") to check for IGA deficiency. If IGA deficient, your child's other IGA test results, such as the tTG-IgA, could not be trusted. When there is IGA deficiency, the IGG tests are usually run reflexively. But their positive...
  11. trents
    I'll second that!🤚
  12. trents
    Good catch, knitty kitty! @Lizie certainly was not asymptomatic! But some of those symptoms were not dramatic and were inconsistent. Very typical for a lot of celiacs.
  13. trents
    @Aretaeus Cappadocia, I don't disagree with your advice about discounting the advice of "real doctors" over what is offered by this online community but I would add that the experience of a great many of us who participate in this community is that many doctors are fairly ignorant when it comes to gluten disorders and many in this community have received...
  14. trents
    @Lizie, you state, "but have had instances of accidental ingestion from cross contact I wasn't knowledgeable about before" but you also state you re asymptomatic. If you are asymptomatic, how do you know you had incidences of accidental ingestion from cross contact? Actually, many or most celiacs fit into a category we know as "silent celiac disease...
  15. trents
    Ditto to what the others have said. All the evidence suggest you have celiac disease. But @Lizie, why are you asking this question at this point in time? There are some implicit questions raised by what you have told us so far. 1. Were you given a diagnosis of celiac disease back in the fall of 2023? 2. If you were given a diagnosis of celiac...
  16. trents
    @Ben Cohen, make sure you ask your physician to order a test called "Immunoglobulin A (IgA)" (aka, "total IGA"), which tests for IGA deficiency, along with the tTG-IgA. The tTG-IgA is the primary test used these days to check for celiac disease but if you are IGA deficient, the tTG-IgA will not be accurate. Some physicians neglect to check for IGA deficiency...
  17. trents
    Typical, I suppose.
  18. trents
    @jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread)...
  19. trents
    Yes, that might work as well.
  20. trents
    @Ben Cohen, it's pretty common to react more strongly when reintroducing gluten after having been off of it for some time. Before withdrawing it, when we are eating it everyday, we force our bodies to develop some modicum of tolerance, even though it is doing us harm. If you find that consuming 10g of gluten now makes you intolerably ill, you might start...
  21. trents
    @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
  22. trents
    Welcome to the celiac.com community, @Ben Cohen! Recently updated guidelines for the "gluten challenge" call for the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least 2 weeks. To ensure valid testing, I would certainly give it longer than two weeks.
  23. trents
    @Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused!
  24. trents
    But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
  25. trents
    @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
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