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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The doctor dropped the ball. I can't understand why he did not schedule for a follow-up appointment to discuss your results. But he may have elected to not use the term "celiac" because it is unfamiliar to many or most people whereas most people are aware that "gluten" causes problem for some folks for one reason or another. It is common for celiacs...
  2. trents
    Welcome to the forum, @celiacpaula! First, a colonoscopy cannot be used to diagnose celiac disease. Celiac disease causes damage to the small bowel (the part of the intestines just below the stomach). A colonoscopy cannot reach up that far. The kind of scoping that is used for diagnosing celiac disease is called an endoscopy (aka, "upper GI"). Having...
  3. trents
    I understand your concern about the health risk you face with continuing to consume gluten. However, what happens when you go off gluten is that inflammation in the small bowel subsides and healing of the villous lining begins. It is the damage to the villous lining of the small bowel that the endoscopy/biopsy is looking for. They will send the biopsy off...
  4. trents
    By the way, I should ask you about your testing. What tests have been run so far? Blood antibody tests? Have you already been officially diagnosed as having celiac disease? Has there been mention of a second stage of diagnostic testing which consists of an endoscopy with biopsy of the small bowel lining to check for the actual damage caused by celiac disease...
  5. trents
    I'm betting your are in the throws of gluten withdrawal. Gluten has an opiate-like addicting effect and this is well-known by the celiac community. And being currently in menses is probably exacerbating the effect. By the way @goatmanvevo, welcome to the forum!
  6. trents
    There has been a lot of controversy over Degiorno gluten free pizza products being safe for celiacs. I think at one point the company actually removed the gluten-free advertising claim. Anyway, they are now claiming GFCO certification. Not sure if this represents a tightening of quality control or an entirely new formulation or a more effective gluten removal...
  7. trents
    Boy, it's really tough to avoid gluten when you travel a lot and have to eat out. Studies have shown it's the number one sabotager of gluten free eating. You may order what seems to be gluten free menu items but you have no control over how it's prepared and handled back in the kitchen. Likely it's being cooked on the same surfaces and in the same pots and...
  8. trents
    So, I'm not clear on whether you are saying your are reacting to minute amounts of gluten in supposedly "gluten-free" foods or cross reacting to other non-gluten foods.
  9. trents
    D3 (5-10k IU daily), magnesium glycinate or magnesium citrates and zinc to start with. I wouldn't take calcium long term. It can contribute to cardiovascular disease. Absorption of calcium is usually the problem rather than low dietary intake. Are you on a proton pump inhibitor (PPI) or other acid blocker? Having sufficient gut acidity is a key in proper...
  10. trents
    You are also at an age where you may be naturally beginning to lose muscle mass due to falling testosterone levels. Your decrease in activity level . . . Any particular reason for that? One thing to consider is that gluten containing flours are fortified with vitamins and minerals ala USA federal mandates. Now I am assuming you are in the USA. Gluten...
  11. trents
    Welcome to the forum, @DHaney! May we ask, are you male or female? Women tend to store body fat below the belt whereas men tend to store it in the belly. Have you lost weight or gained weight as a whole since going gluten free? Are you consuming approximately the same amount of protein and calories as before going gluten free? Have your...
  12. trents
    Consider also that your hormone med could be a source of gluten. Wheat starch can be used as a filler in pills. You might want to research that through the dispensing pharmacy.
  13. trents
    Yes, the extra data is more helpful. The most widely used test by physicians when testing adults for celiac disease is the tTG-IGA. It is considered to combine excellent sensitivity with good specificity, specificity meaning a positive is not likely to be caused by some other medical condition. However, the tTG-IGA is not as reliable for children...
  14. trents
    Which IGA? There is more than one IGA test. Please see the link I have embedded that summarizes celiac antibody testing. And could you please included the reference ranges for what is normal (negative) for the tests you cite? Each lab uses it's own reference ranges. There are no industry standards. Also, did the same lab evaluate the most recent tests that...
  15. trents
    Welcome to the forum, @ALLAN HUGHES! Have you been checked for a special kind of anemia known as pernicious anemia? It results from the destruction of the autoimmune destruction of the parietal cells that line the stomach which produce an enzyme known as "intrinsic factor" needed to absorb vitamin B12 which, in turn, is necessary to the assimilation...
  16. trents
    Welcome to the forum, @GJC! Celiac disease is baked into the genes. It never really goes away if you were diagnosed correctly at 3 years old. There are occasional reports of celiacs who seem to go into remission for a period of time but eventually there is relapse. But the thing you need to understand is that the symptoms experienced with celiac...
  17. trents
    Welcome to the forum, @LouisaM! You don't specifically say so but may we assume you have been officially diagnosed with celiac disease? First, igg antibodies are not the most reliable measure of celiac disease inflammation. They are not as specific for celiac disease as is the tTg-IGA antibody test. Was the ttg-IGA ever done in the course of your...
  18. trents
    Welcome to the forum, @ceslater! High or normal serum calcium levels mean very little when it comes to bone density sense the body will rob calcium from the bones in order to keep serum levels adequate. Celiac disease typically results in vitamin and mineral deficiencies because of damage done to the villous lining of the small bowel, the area of the...
  19. trents
    Same as Scott Adams, I take Nature Made B-Complex from Costco. Don't know if you have Costco where you live.
  20. trents
    Welcome to the forum, @ArchieK! It is common for celiacs to experience intolerance to foods in addition to gluten because of the damage cause to the gut lining by celiac disease. Common offenders are oats (even gluten free oats because the oat protein avenin resembles gluten), corn, soy and eggs. Also, it is not only the lactose in dairy that can cause problems...
  21. trents
    Despite the ominous sound of the name, maltodextrin is safe for celiacs: https://nationalceliac.org/celiac-disease-questions/maltodextrin/
  22. trents
    Kikkoman does offer some gluten free soy sauce products. We use them a home.
  23. trents
    I would like to try it before I pass judgment. If it is an improvement in taste and texture of present non wheat facsimile bread products and proves to be safe as well as competitively priced then I say let's go for it.
  24. trents
    But wouldn't you want to use it at home?
  25. trents
    Gini1, It takes at least 6 weeks of consuming say, the gluten equivalent of 6 slices of wheat flour bread daily to be confident of creating enough inflammatory antibodies to give valid testing. Eating a bunch of gluten containing food the day before isn't going to cut it. It takes a while for the antibody count to build up in the blood to a sufficient level...
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