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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to this online community @bluebnrf! Yes, you need to continue to eat generous amounts of gluten until the endoscopy/biopsy is complete. The blood testing you have had looks for antibodies produced by the inflammation gluten consumption causes in the small bowel lining of those who have celiac disease. The biopsy visually microscopically...
  2. trents
    Welcome to the forum community @Arletta! The blood tests for celiac disease check for certain antibodies produced by the inflammation that gluten ingestion causes in the lining of the small bowel of those who have the disease. Normally, the blood antibody testing comes before the endoscopy/biopsy but in your case the order was understandably reversed...
  3. trents
    Was this doctor and MD or a DO or an alternative medicine doctor?
  4. trents
    @AshyCo, that was a remarkable doctor visit! How long did all that examination and diagnosis take?
  5. trents
    Welcome to the forum, beanz420! Sounds like you are in a difficult situation.
  6. trents
    I also think we need to remember that this kind of food ingredient patronage expectation will not stop with gluten. If it's not gluten it would be corn, wheat, soy or a host of other ingredients commonly used in food products that restaurants would be asked to provide work arounds for.
  7. trents
    What do you mean by you "can't come in on celiac"?
  8. trents
    There is really nothing to tell you that you don't already know so know one can solve your dilemma without your being willing to commit to a deliberate gluten challenge for weeks/months toward the end of getting another endoscopy/biopsy. The sad part of your story is the bum steer given by your GI doc who told you you could eat gluten free up until 3 days...
  9. trents
    Yes, I personally don't have a problem with restaurants charging more when substituting gluten free bread products for their less expensive wheat counterparts as long as the charge is in line with the actual extra it is costing them to provide it.
  10. trents
    You got tomatoes coming in already!
  11. trents
    I don't know that the high cost of a loaf of gluten free bread is out of line with the cost to manufacturers of the ingredients. Have you bought a bag of gluten free flour to make your own bread lately? Remember, this is a niche market and the quantity of sales is far less than it is for mainline bread products such that the higher manufacturing costs cannot...
  12. trents
    I didn't even know Chick-fil-A offered gluten free buns. But there's a bigger question that needs to be settled here and that is does having celiac disease constitute a disability? If celiac disease is declared a disability by the government then eateries would need to absorb the cost of providing gluten free offerings in the same way they do wheelchair ramps...
  13. trents
    @Blanco, there is no need to wait for consultation with a dietician to begin the gluten free journey and hence allow healing to start. In addition, you would do well to invest in some gluten free high potency vitamin and mineral supplements as undoubtedly you have developed vitamin and mineral deficiencies that will otherwise take a long time to correct by...
  14. trents
    Yes, I think there is often a sense of elation when we first get our diagnosis and find the reason for the medical issues we were struggling with. But then the other shoe falls as we begin to really have to live out the huge social and dietary changes that recovery from celiac disease demands.
  15. trents
    @tummytroubles777, eventually it becomes the new norm. You and those around you will adjust and it won't seem so abnormal. But it takes time. It's like acquiring a physical handicap that requires you to approach life differently at every turn. If you are wheelchair bound for instance or a having a prosthetic limb, you learn that there are some things that...
  16. trents
    I do not know that there is a connection between follicular thyroid cancer and celiac disease. What I can tell you from working in a hospital patient care environment for over 20 years is that most cases of C-diff are connected to repeated and or prolonged antibiotic treatment for other infectious processes. C-diff usually arises from antibiotics killing...
  17. trents
    Welcome to this online community @ara050711! It is amazing how judgmental and cruel family members can be toward their celiac flesh and blood! Bad attitudes combined with medical ignorance! I will include a link to an article that appeared on this forum a couple years ago that I believe you will resonate with. I cannot offer any help or advice about...
  18. trents
  19. trents
    Welcome to the forum, @jennlove! The sense of relief you are experiencing is palpable in your narrative. I just want to make you aware that there is somewhere between a 10% and almost a 50% chance that your first degree relatives have or will develop active celiac disease. First degree relatives are defined as parents, siblings and offspring. Older studies...
  20. trents
    Welcome to the forum, @MegWatkins! So, you say you're not much of a cook but how have you been feeding your family up to this point? Do you resort to fast food a lot, eating out mostly, prepackaged meals? When you say you're not much of a cook, by that do you refer to cooking from scratch? The first thing to realize is that eating out is the #1...
  21. trents
    Welcome to the forum, @Patricia A Jones! Could you explain the term "acquired brain traumas"? Would this be like brain injuries from things like strokes or aneurysms? And what do you mean by your " . . . relatives, JW's were my brain retrainers"? JW's? Jehovah's Witnesses? Concerning your question about where you can order gluten-free, non-GMO foods...
  22. trents
    Refractive Celiac Disease type 2
  23. trents
    I should think it would. We're talking about whole kernel corn, right?
  24. trents
    Welcome to the forum, @Dan Maggs! It is a good idea to try cutting out dairy because celiacs are often lactose intolerant or cross react to the protein casein in dairy. Oats is another common cross reaction offender because the protein avenin in oats is similar to gluten.
  25. trents
    Genetic testing cannot be used to diagnose celiac disease since 40% of the general population have one or more celiac genes but only about 1% actually develop celiac disease. Genetic testing can be used more effectively to rule out celiac disease. That is, if you don't have any of the celiac genes, you probably don't have celiac disease but you still could...
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