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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    IBS is more common in the celiac population and visa versa.
  2. trents
    If you were tested for celiac disease while eating a no or a low gluten diet then the testing would not have been valid.
  3. trents
    During the course of all this have you been on antibiotics frequently?
  4. trents
    Welcome to the forum, @Brightstar101! Please don't get offended at this question but I would like to ask if you are serious about eating 100% gluten free since diagnosis? Apart from that, thiamine supplementation can be therapeutic in arresting non alcoholic fatty liver disease: https://journals.biologists.com/dmm/article/14/3/dmm048355/237831/High...
  5. trents
    Looks like there was no "total IGA" test run. If you are IGA deficient (low total IGA) then the negative tTG-IGA test result could be a false negative. The positive DGP-IGG certainly could indicate you have celiac disease and your symptoms certainly align with either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Also, if you have been eating a low...
  6. trents
    Welcome to the forum, @Mm123! First, many celiacs are asymptomatic for many years after the onset of the disease. We call them "silent" celiacs. Second, the endomysial IGA test (aka, "EMA") is a very very reliable indicator for having celiac disease. It is not often run these days, having been largely replaced by the tTG-IGA which is less expensive....
  7. trents
    Welcome to the forum community @Madk09! Many people are diagnosed with weak positives on the celiac antibody tests. Was the IGA test you speak of the "total IGA" test to check for IGA deficiency? IGA deficiency can lower values in the tTG-IGA test and even cause false negatives. IGA deficient people should also have other tests run such as the DGP...
  8. trents
    Welcome to the forum community, @Mrami023! Your experience is very common. Many people don't get tested for celiac disease until after they have started eating gluten free or at least started cutting back on gluten. They don't necessarily know any better and no one has told them that this may invalidate testing, either the antibody blood testing or the scope...
  9. trents
    Okay, sunflower oil. But what's the problem with sunflower oil? What connection do you see between sunflower oil and celiac disease?
  10. trents
    Welcome to the forum community, Joanne Palica! Could you explain what you found out about safflower oil that you believe is upsetting your tummy? This is not a food ingredient that I have heard other celiacs mention in connection with celiac disease reactions.
  11. trents
    Yes, you are IGA deficient and should request a more complete celiac panel that includes the tests I mentioned above that do not depend on normal IGA levels. If those other tests are negative then you could have NCGS (Non Celiac Gluten Sensitivity) for which there is no test but shares many of the same symptoms with celiac disease. But first, celiac...
  12. trents
    Biopsies do indeed come back negative sometimes for those who actually do have celiac disease and for three chief reasons: 1. The damage is patchy and the sampling was not thorough enough. 2. The celiac disease is in the very early stages and has not produced sufficient damage to show on the biopsy. 3. The gluten free diet was begun ahead of...
  13. trents
    I agree with your doctor's interpretation. Specifically, what advice are you seeking? The one piece of advice you do need to hear is not to begin a gluten free diet until the biopsy is complete. Be sure to eat plenty of gluten containing foods until the biopsy is done or you risk invalidating the biopsy.
  14. trents
    Welcome to the forum community @DorySue! I take it to mean that your IGA score of 81 is referring to what we call "total IGA"! The total IGA is not a test for celiac disease per se. However, if total IGA is low it will drive down individual celiac antibody IGA scores toward the negative range and so can create false negatives in, for instance the tTG...
  15. trents
    As strange as it may sound, low stomach acid can actually be the culprit instead of excessive stomach acid such that taking proton pump inhibitors and frequent antacid over the counter remedies are actually counterproductive. PPIs increase stomach PH and inhibit digestion of food and the assimilation of vitamins and minerals. They are way over prescribed...
  16. trents
    I think you should assume it is safe. It has been tested to meet the standards for gluten free. Unless you are in the super sensitive subset of celiacs you likely do not need to be concerned about the difference between "gluten free" and "certified gluten free". Are you also taking a dedicated "C" supplement to address that deficiency? I doubt there is enough...
  17. trents
    Yes, there are a few medical conditions, some foods (i.e., the protein "casein" in dairy) and some medications (i.e., NSAIDs) that can cause positive blood tests without celiac disease in some people but they also cause damaged villi. So, that doesn't really fit either. I still fall back on the early stage of celiac disease hypothesis, however. I think...
  18. trents
    More than likely, either the damage to the villous lining of your small bowel was patchy and missed by the biopsy or you were in the very early stages of celiac disease such that little damage had been done to the villous lining. We suggest that at least four samples be taken from both the duodenum and the duodenum bulb to minimize the chance of missing damage...
  19. trents
    Before you remove gluten from her diet, check with the doc about whether or not an endoscopy/biopsy of the small bowel lining is planned for confirmation of what the blood antibody tests are indicating. I doubt if they would want to do a procedure like that on a two year old but you'd better ask. If she has celiac disease then once gluten is removed the...
  20. trents
    This could indicate celiac disease, yes. But can you clarify something? Your subject line is ambiguous. Are these results from two years ago or are they results for your two year old child? I take it to be the latter. If so, it is common for young children not to show positives for the IGA tests but for the IGG tests if they have celiac disease. Their immune...
  21. trents
    So, in case your gastro doc wants to do the blood antibody tests, you need to continue eating regular amounts of gluten until after the blood draw. The antibody tests usually come first and the biopsy is done for confirmation but just in case . . .
  22. trents
    Sounds like what you would find with celiac disease that was not at a super advanced stage since the villi are intact.
  23. trents
    Welcome to the forum community @tummytroubles777! Your symptoms scream either celiac disease or NCGS (Non Celiac Gluten Sensitivity). You may very well be IGA deficient. Physicians should always order a test for total IGA when they order the tTG-IGA, IMO. I would suggest you request a more complete celiac panel with these additional tests: ...
  24. trents
    @Hebie, we do get anecdotal reports of celiac disease going into remission but it usually comes back at some point. To render valid testing for the endoscopy/biopsy you should be eating 10g of gluten (an amount found in approximately 5 slices of bread) daily for at least two weeks and preferably longer. When is your endoscopy scheduled for?
  25. trents
    @DynamoCappo, you mentioned you had a colonoscopy and that after that biopsies were taken. Were the biopsies taken of the large intestine or the duodenum/duodenum bulb (upper small intestine area right below the stomach outlet)? Celiac disease cannot be diagnosed with a colonoscopy or biopsy of the lower bowel. It damages the small bowel which can only be...
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