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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Did you mistype? We are used to seeing DGP-IGA and DGP-IGG instead of "DMG-". The two most targeted tests you had run for celiac disease are the tTG-IGA and the EMA. The other two are not as specific for celiac disease. The tTG-IGA is the most popular blood antibody test run by physicians for celiac disease. It combines good sensitivity with good specificity...
  2. trents
    Who is this consultant person? Is this a physician assistant of some kind? I'm confused about your posting of the tTG-IGA test results. So, anything under 19.9CU is considered normal or negative and your son's score was below that at 13.3? Yet in your first post you indicated his "TTG was elevated". When you say "elevated" do you mean by that it was...
  3. trents
    Once you begin eating gluten free, antibody numbers begin to decline and so that would sabotage testing. Unfortunately, many have made that mistake. And they were not warned about it by their doctors. The amount of ignorance in the medical community, and even the indifference, with regard to gluten disorders, is disturbing. It is slowly improving, however...
  4. trents
    Your symptoms are consistent with celiac disease but the testing you had done by your primary care doc was not as helpful as it might have been. The good news is that the GI doc will likely do more targeted testing for celiac disease. It will be very important for you to eat plenty of wheat products between now and when you see the GI doc. He/she will likely...
  5. trents
    Welcome to the forum @Jessica J! The Endomysial IGA is the centerpiece of the testing you had done and was negative. It is the most specific test available for celiac disease but may not be the most sensitive test that can be run for celiac disease. The IGA is probably what we normally refer to as "total IGA" and is not a celiac antibody test per...
  6. trents
    Welcome to the forum @ShortsGirl! People just have a hard time believing that something touted as being healthy ("whole grains" you know) and is the world over depicted as the "staff of life," as being bad for you. You might find this hard to believe but this is an attitude that still persists even with some physicians who see celiac disease as the latest...
  7. trents
    Welcome, @CatherineWang!
  8. trents
    So, DGP-IGA is postitive at 130, DGP-IGG is negative at <10 and tTG-IGA is positive at 13.3. Now, can you give us the same test results from October so we can compare numbers?
  9. trents
    You do not give before COVID and after COVID numbers to compare. Is what you posted from October or after COVID?
  10. trents
    Then it seems reasonable to me to assume your recent elevated numbers were caused by COVID. But I would certainly have them checked again within a few months. Having said that, can you be more specific about which antibody numbers were elevated? There are a number of antibody tests that can be run to detect celiac disease. Some are more specific to celiac...
  11. trents
    Since your original bloodwork and diagnosis, have you had any celiac antibody tests done pre covid? In other words, since the original celiac diagnosis and going gluten free but before covid, do you have any recent antibody test numbers to compare your post covid numbers to?
  12. trents
    I'm wondering if you have a candida issue. Candida would feed off of carbs. When you eliminate grains from your diet you eliminate most carbs.
  13. trents
    You say, "The hard stools have never ceased after decades. And it's not caused by the meat, as it can happen usually just by avoiding gluten, and sometimes needing to add in a probiotic. I'm 95% sure that this is a gigantic cleansing reaction from all the years of grains/gluten prior to switching diet." This confuses me. Are you saying the hard, compact...
  14. trents
    It's saying your GLIADIN (DEAMIDATED) AB (IGG) test is negative. Your value is 1.6. 15.0 or greater is positive (=detected). That's how I take it.
  15. trents
    Yes, the other ingredients could contain gluten because of cross contamination from possibly being processed on the same equipment that is being used for gluten containing grains or being grown, stored or transported in regions where gluten grains are also a part of the economy. But I am also saying that some of those other ingredients found in the product...
  16. trents
    There are a number of odd ingredients in that product that might cause the symptoms you describe in individuals, especially if your son is using it constantly as you say. I wouldn't necessarily jump to the conclusion that is the oat beta glucan that is the culprit.
  17. trents
    Are you saying it's not gluten free because of the oats that the beta glucan is made from may be cross-contaminated with wheat, barley or rye? Apart from that, oats themselves do not contain gluten and the term "glucan" should not be confused with gluten.
  18. trents
    MSM? You are omitting the most important ones. You should also be adding: Sublingual B12 a high potency B-complex Magnesium Glycinate 5000-1000 IU of D3 (Does your fish oil contain D3?) zinc Make sure all are gluten free.
  19. trents
    The length of your challenge is appropriate but you also need to be eating a sufficient amount of gluten daily during that time to expect a valid test result. 10 gm daily or about 3 slices of wheat bread or more.
  20. trents
    Good catch, Wheatwacke! @Carolth, a colonoscopy cannot be used to diagnose celiac disease. An endoscopy with biopsy of the small bowel lining is what is needed. A colonoscopy cannot reach up that far. The affected area is just below the outlet of the stomach.
  21. trents
    How about H. Pylori?
  22. trents
    Have you been confirmed to have celiac disease or is that being looked into?
  23. trents
    Everything we eat in some way to some degree makes war against our bodies. The real question is, what genetic factors predispose individuals to be particularly susceptible to harm from certain foods? We probably all are susceptible to different things to different degrees so the challenge is to get a handle on what those are for each us as an individual so...
  24. trents
    What kind of vitamin and mineral supplements are you on? At this stage of healing, you will need more than what you can get from your food alone. Your small bowel villous lining is still trashed and very inefficient in absorbing nutrients. Are you still consuming oats?
  25. trents
    Can you be more specific? Where in the USA or is that open at this point? Are you look for an urban environment or small town/rural?
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