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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The above linked article might be helpful in getting an overview of celiac antibody testing. Unfortunately, many physicians are pretty deficient in their knowledge about celiac disease and operate on incomplete or outdated information. It's understandable for GPs at least as they can't know about every health issue in depth. As long as you have a doc who...
  2. trents
    I'm sorry. We miscommunicated. I thought you were speaking of blood antibody tests in your third post, not genetic tests. Here is what I mean: Blood antibody tests are usually the first thing doctors run when checking for celiac disease. If there are positives in the antibody testing then they will often order an endoscopy/biopsy to confirm. Genetic...
  3. trents
    Were there any other celiac antibody tests run besides the tTG-IGA? If not, I would certainly press for a more comprehensive celiac panel. You could be low in total IGA which would drive individual celiac antibody test scores down toward the negative range. If I were you, I'd go back to your physician and ask for these additional tests to be run: 1....
  4. trents
    Post the blood antibody test scores along with their ranges for negative vs. positive and we'll help you with that. Type them in. Posters are having lots of trouble when trying to attach pics.
  5. trents
    No. "Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy " Is simply saying that the test ordered is appropriate as a diagnostic tool for celiac disease. You do not give a reference scale to compare your score to so we don...
  6. trents
    Welcome to the forum community, @stormylynncoleman! Having the DQ2.2 variant without also having the DQ2.5 genes puts you at a fairly low risk potential for celiac disease but doesn't eliminate the possibility. Having said that, genetic testing can only be used as a rule out tool rather than to diagnose celiac disease per se. 40% of the population have...
  7. trents
    Both the antibody test and the biopsy will likely by compromised by starting the gluten free diet ahead of the testing. The results of the testing may not be valid because of this. Do you understand the point I am trying to make?
  8. trents
    Thank you for getting back to us and we're glad to hear your symptoms have improved.
  9. trents
    Welcome to the forum community, @Giga221! First, it needs to be said that genetic testing cannot be used to definitively diagnose celiac disease. 40% of the general population carries 1 or more genes that have been identified with the potential to develop celiac disease. Yet, only about 1% of the general population develops active celiac disease. From...
  10. trents
    Welcome to the forum community, @Zonisamide! Any answer to your question would necessarily be conjecture at this point. We do know that neurological disorders are among the medical problems associated with celiac disease. But to say in any particular case that celiac disease is necessarily the cause of a person's neurological problems would be impossible...
  11. trents
    Welcome to the forum community, @David G! I don't know that you can draw any conclusions one way or the other from this data. In either case, the numbers do not indicate a high degree of inflammation IMO. It does appear your son may still be getting some gluten contamination. When he was originally diagnosed, was there an endoscopy/biopsy done? If so...
  12. trents
    I would trust it, yes, to at least meet the <20ppm requirement for the FDA categorizing something as gluten free. But then, I'm not a super sensitive celiac and minor amounts of CC don't seem to cause a reaction in me. I think it is a positive sign that the source company was straightforward and gave detailed information about their cleaning procedures...
  13. trents
    I certainly would not conclude that you are in the clear. There is a big question mark about whether or not you are consuming enough gluten to render valid test results. In addition, you have a family history of celiac disease, you have symptoms and you have genetic potential. A couple of recent studies done with larger groups, one of them was done by the...
  14. trents
    Welcome to the forum community @mslew10! The reason you have run across so many different "normal" values for the tTG-IGA is that there is no industry standard and each lab develops there own tests and their own scales. So, the values you posted are not helpful to us unless you also post the scale used by the lab that analyzed the blood sample. The second...
  15. trents
    Welcome to the forum community, @Carlyallyn! The test result you posted is not directly a test for celiac disease but it is what we call "total IGA" and is run to check for IGA deficiency. If a person is IGA deficient then the specific antibody tests run to check for celiac disease can yield scores that are skewed toward the negative side and so are...
  16. trents
    Although the terminology is still applied inconsistently, my perception is that there has been an evolution toward using "gluten intolerance" with reference to celiac disease and "gluten sensitivity" with reference to NCGS. Isn't vitiligo loss of pigmentation in the skin? Did you mean to connect that with a red blood cell deficiency? There can be an...
  17. trents
    Welcome to the forum community, @PhilHandy! The Tissue transglutaminase Antibody IGA or, tTG-IGA for short, is the most common celiac blood antibody test ordered by physicians when checking for celiac disease. It combines good specificity with good sensitivity and is relatively inexpensive to run. However, it can produce false negatives in the case of...
  18. trents
    Welcome to the forum community, @natalieadams! Are you sure it isn't the flu or COVID?
  19. trents
    Thanks. It is often prescribed for those with IBS. CINDYR, have you been officially diagnosed with celiac disease?
  20. trents
    Welcome to the forum community, @CINDYR! Can we ask, what is the name of the medication?
  21. trents
    Welcome to the forum community, @Cristal31! Products like this are always a crap shoot for celiacs. The gluten content from cross contamination will likely vary from one batch of the product to another and will cause reactions for those celiacs in the more sensitive range of the spectrum but not for those who are less sensitive or who are "silent" celiacs...
  22. trents
    Welcome to the forum community, @Dawn R.! Let me assure you! Many on this forum have posted about experiencing gluten ataxia and neuropathy. These are now well-known symptoms of celiac disease and also NCGS (Non Celiac Gluten Sensitivity) among those in the know. Unfortunately, it is not yet general well known in the medical community as a whole. But...
  23. trents
    So, for clarity's sake, did you start to feel unwell again only after B12 injections were discontinued or had you already begun a gluten free diet and then discontinued it?
  24. trents
    Even though the wheat straw may naturally be devoid of gluten, is there cross contamination in the processing?
  25. trents
    Welcome to the forum community, @litledebbie! The problem with any products made from "de-glutened" wheat is that the processes used to remove the gluten are never 100% thorough. There is always a residual amount left but small enough it may meet the FDA requirement of less than 20ppm for using the "gluten free" label. Another question would be, how...
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