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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Talia.io! I'm afraid your post is confusing to me. If you aren't having symptoms, how can we identify your symptoms? Are you asking about symptoms that you may be overlooking that may help you spot unexpected gluten exposure?
  2. trents
    Of course that is possible. It is also possible that the damage is patchy and the samples taken missed the affected areas. Sometimes the biopsies are not done as thoroughly as they could be. You may also have NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease and shares many of the same symptoms. There is no test for NCGS. Celiac...
  3. trents
    Welcome to the forum, @Pmayer! The Immunoglobulin A (what we call "total IGA" for short) is not a test for celiac disease per se. It is a measure of total IGA antibodies, not just those generated by celiac disease. However, if total IGA is low it will drive down the scores for individual IGA antibody components, including those for celiac disease, and...
  4. trents
    Leann horne, what is the name of the gluten protein found in wheat, barley and rye?
  5. trents
    Once you go gluten free it will invalidate all testing. But if going gluten free causes your symptoms to improve, you can assume you either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
  6. trents
    Adding to the complexity of your question is new data that suggests thorough mucosal recovery is anything but guaranteed even for those celiacs practicing a GFD and that when and if it happens it often takes years, despite improvement in clinical symptoms. https://pubmed.ncbi.nlm.nih.gov/20145607/
  7. trents
    Ideally, yes. But we don't live in an ideal world. The problem is that there is no practical way to test the effect of trace amounts of gluten in the actual gut environment of "insensitive" celiacs.
  8. trents
    Leann horne, apparently your are cross reacting to proteins found in these other grains that resemble the gluten found in wheat, barley and rye. But if when you eat rice your blood sugar drops and you faint, that does not sound like a celiac reaction. It sounds like some kind of allergic reaction.
  9. trents
    Welcome to the forum, @Amiee! Total IGA is not a celiac disease antibody test per se. However, if total IGA is low, then it can cause false negatives in the actual IGA celiac antibody tests. The Transglutaminase IgA is a celiac antibody test and it is positive in your case, indicating you do have celiac disease. Anything over 5 FLU would be positive...
  10. trents
    But don't start a gluten free diet until all testing for celiac disease is done if you intend to go for more testing. This doesn't apply to the genetic test which is not a test for celiac disease per se.
  11. trents
    IGA tTG is not the same as total IGA. IGA tTG is a particular antibody associated strongly with celiac disease. Total IGA is the whole mix of IGA antibodies which includes tTG but others as well. If total IGA is low it can drive down individual IGA scores, including the tTG IGA.
  12. trents
    The information you give seems incomplete. Did you have another test done to measure total IGA that showed total IGA was low or is the comment to that effect in your post just putting forth a possibility? Low total IGA can result in false negatives for the IgA TTG result. The data with the IgA TTG is confusing but it looks like the [<7] must refer...
  13. trents
    Please don't project your own anecdotal experience on everyone else. The term "gluten" is sometimes loosely applied to proteins found in grains other than wheat, barley and rye but for the celiac/NCGS community the term "gluten" has a more specific reference. While it is probably true that we rely too heavily on grains in our diet, it is also true that they...
  14. trents
    Welcome to the forum, @DMulder47! How long do you guess you suffered from celiac disease before getting diagnosed and going gluten free? Many of the medical problem spinoffs from celiac disease are related to vitamin and mineral deficiencies. This is the part that most doctors don't tell you about. The constant inflammation in the small bowel...
  15. trents
    You only have a short time to append pictures before the edit feature times out when you create a post. Look for the three dots in the upper right corner of a new post window.
  16. trents
    Benadryl is an antihistamine. It should have no bearing on celiac antibody levels.
  17. trents
    Cough drops or Vaporub or what? Vicks makes different products.
  18. trents
    If you are being consistent at avoiding gluten, your numbers should have been falling by now unless you are cross reacting to dairy.
  19. trents
    So, you original question was being asked out of curiosity about a possible connection between low vitamin D levels and past medical problems rather than trying to correct any current medical problems. Is this correct?
  20. trents
    Most of the people I know that get their expensive dental care done in Mexico are snow birds who winter in Yuma every year anyway.
  21. trents
    Tooth enamel loss and jawbone demineralization are common in the celiac community, especially since it typically takes many years to get a celiac diagnosis. I just had a front tooth implant competed last week and it cost me over $8k out of pocket. The tooth enamel had been "resorbed" the dentist said. My health insurance did not have dental coverage at all...
  22. trents
    Are you still having seizures, pain, head and face swelling?
  23. trents
    I would think the brain hemorrhage would have more to do with causing seizures than a vitamin D deficiency. Is the vitamin D deficiency now corrected? D is a very important vitamin, almost a master vitamin in the body.
  24. trents
    The idea that grain fed cows produce milk with gluten does not have a scientific basis. Gluten is a protein. The digestive process of the cow breaks down the proteins in the grain into constituent amino acids which are then broken down even further into smaller biochemical compounds before they enter the cows blood stream. Then those biochemicals are used...
  25. trents
    Yes, I would think a mask would help but you would need to research what kind would be needed to be effective. Nonetheless, it is not an ideal vocation for someone with celiac disease.
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