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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Do I Really Need A Biopsy?
trents replied to Krisgideon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are being consistent at avoiding gluten, your numbers should have been falling by now unless you are cross reacting to dairy. -
So, you original question was being asked out of curiosity about a possible connection between low vitamin D levels and past medical problems rather than trying to correct any current medical problems. Is this correct?
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Most of the people I know that get their expensive dental care done in Mexico are snow birds who winter in Yuma every year anyway.
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Tooth enamel loss and jawbone demineralization are common in the celiac community, especially since it typically takes many years to get a celiac diagnosis. I just had a front tooth implant competed last week and it cost me over $8k out of pocket. The tooth enamel had been "resorbed" the dentist said. My health insurance did not have dental coverage at all...
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Are you still having seizures, pain, head and face swelling?
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I would think the brain hemorrhage would have more to do with causing seizures than a vitamin D deficiency. Is the vitamin D deficiency now corrected? D is a very important vitamin, almost a master vitamin in the body.
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The idea that grain fed cows produce milk with gluten does not have a scientific basis. Gluten is a protein. The digestive process of the cow breaks down the proteins in the grain into constituent amino acids which are then broken down even further into smaller biochemical compounds before they enter the cows blood stream. Then those biochemicals are used...
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Silent celiac
trents replied to Dee may's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I would think a mask would help but you would need to research what kind would be needed to be effective. Nonetheless, it is not an ideal vocation for someone with celiac disease. -
Silent celiac
trents replied to Dee may's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes. You are breathing wheat dust which gets trapped in your mucous and travels down to your gut. Lack of symptoms does not guarantee that no inflammation is happening in the gut. Besides, you may be one of a small percentage or celiacs who do not have gut manifestation but only skin manifestation (dermatitis herpetiformis). What kind of testing have you... -
Delayed symptoms.
trents replied to Mike5572's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @Mike5572! How quickly healing of the gut happens depends on many things such as: 1. Age 2. How much damage was done to the small bowel villi before going gluten-free 3. Consistency in sticking to the gluten-free diet 4. General health and vigor. Some have stronger "constitutions" than others and just heal more... -
"Pasture raised eggs"? That sounds like it would apply to cows rather than chickens. Do you mean "free range" chickens? Another factor here with regard to food sensitivities in addition to gluten is not only what you eat but how much of it and how often. There often is a threshold of toleration for certain food sensitivities that if you stay below it...
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Celiac with other food intolerances
trents replied to LadyofLove's topic in Coping with Celiac Disease
@LadyofLove you might want to have some more general food sensitivity testing done: -
High CRP
trents replied to koalaemily's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So, you say you had a TTG IGG score of 99. Did they also do the TTG IGA antibody test for celiac disease? The TTG IGA is usually the front line test done, combining good specificity for celiac disease with good sensitivity. TTG IGG is typically a secondary test done when total IGA is low or if someone has already been practicing a low gluten diet. It isn... -
High CRP
trents replied to koalaemily's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you been checked for H. Pylori? Peptic ulcers? GERD? Hiatal hernia? Pancreatitis? -
High CRP
trents replied to koalaemily's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you been diagnosed with celiac disease? You don't really say. -
Celiac with other food intolerances
trents replied to LadyofLove's topic in Coping with Celiac Disease
Welcome to the forum, @LadyofLove! I'm afraid you have some misconceptions about being able to eventually go back to consuming dairy safely. That is not guaranteed. It is true that many celiacs are able to return to consuming dairy once there is thorough healing of their damaged small bowel villous lining, but not all can. And even if they can, thorough... -
What is a good brand
trents replied to Maria101's topic in Gluten-Free Foods, Products, Shopping & Medications
Gastro docs do endoscopies. But the weeks of 10gm of daily gluten consumption still applies for that procedure as it does for the blood antibody testing. Unfortunately, many celiacs find that once they have been off of gluten for a significant period of time and then try to go back on it for the gluten challenge for testing that they have stronger reactions... -
Welcome to the forum, @RTesp! Dairy intolerance is very common in the celiac population but often improves with time as healing of the atrophied villous lining of the small progresses. Thorough healing of the villous lining may take two years or more. Dairy intolerance can be due to either the lactose (sugar component) or the casein (protein) in dairy. Intolerance...
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What is a good brand
trents replied to Maria101's topic in Gluten-Free Foods, Products, Shopping & Medications
If you are going to do a gluten challenge it is best to see a doctor so that if it is positive it will be a part of your medical record. You would need to be eating 10gm of gluten (about 3 slices of wheat bread) daily for several weeks to build up enough antibodies (if you have celiac disease) to produce valid test results. Celiac disease is not an allergic... -
Need answers help and/or advice
trents replied to SJBowman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@SJBowman, if they do an endoscopy on her, push for a biopsy of the small bowel lining to check for the damage caused by celiac disease. They might as well do that while down there. A colonoscopy doesn't go up as far as the small bowel/duodenum where celaic disease manifests itself in the gut. From experience, the celiac community here knows that celiac... -
Need answers help and/or advice
trents replied to SJBowman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you asked any physician to test her for celiac disease? The first stage of diagnosis is a simple blood draw to check for celiac antibodies. Explain to the doctor that there is a history of celiac disease in the family. She must have been eating regular amounts of gluten containing foods in order for the blood tests for celiac disease to be accurate,... -
What is a good brand
trents replied to Maria101's topic in Gluten-Free Foods, Products, Shopping & Medications
I see no reason for you to go back on gluten just to take the test to differentiate whether or not you have celiac disease or sensitivity. At the end of the day they both call for the same treatment, i.e., avoid gluten. I've already addressed the vitamin and mineral question. Vitamin and mineral supplements are not as important if you have sensitivity instead... -
how does this seem to you
trents replied to florida2001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
By "IGA" I'm sure total IGA is meant. -
What is a good brand
trents replied to Maria101's topic in Gluten-Free Foods, Products, Shopping & Medications
If you don't have celiac disease you could have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease, is 10x more common but for which there is not diagnostic test. Celiac disease must first be ruled out. With both conditions, it is necessary to eliminate gluten from your diet. Celiac disease is not an allergy to... -
how does this seem to you
trents replied to florida2001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Her stool texture (before probiotics) and stomach pain, as well as her low iron and red blood cell values (hemoglobin, MCV, MCH, MCHV) could be caused by celiac disease. The positive positive fecal occult blood test could also explain these things as it suggests she has bleeding in the GI track somewhere. The two blood tests for celiac antibodies (EMA, tTG...