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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum community, @Hannah2907! I know this is going to be all very confusing, Hannah, but the first thing to realize is that celiac disease is not an allergy and it cannot be diagnosed by allergy testing. It is an autoimmune disorder characterized by an inflammatory reaction to the ingestion of the protein "gluten" which is found in wheat...
  2. trents
    Do you have online access to your celiac panel test results such that you could post them? tTG-IGG is kind of a secondary test. A weak positive in that one could indicate celiac disease but since it isn't as specific a marker as the tTG-IGA it is not real convincing. You could also have NCGS (Non Celiac Gluten Sensitivity) for which there is no test. Celiac...
  3. trents
    Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about...
  4. trents
    There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX...
  5. trents
    There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
  6. trents
    Do you believe your swallowing is a manifestation of your neuropathy? I'm thinking if you are having trouble getting food down you need to focus on consuming things that have a high nutritional density so that whatever you are able to get down counts for something. Have you looked at Boost and other high protein/high calorie shake products? They are fortified...
  7. trents
    No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing...
  8. trents
    The reference ranges are usually included in the data but they may be cryptically expressed. Just type in everything from the results as it appears in the form you have it. Put it all in a new post window. We'll unpack it for you.
  9. trents
    Christiana makes a good point. Long term undiagnosed and untreated (by a gluten-free diet) celiac disease inevitibly results in vitamin and mineral deficiencies because of the damage done to the villous lining of the small bowel - the part of the intestines where essentially all nutrition is absorbed. Keep eating plenty of gluten until all testing for celiac...
  10. trents
    Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes.
  11. trents
    @shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.
  12. trents
    And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical.
  13. trents
    Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
  14. trents
    We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
  15. trents
    Welcome to the forum, @AlyO! Diarrhea is a classic symptom when exposed to gluten among those with celiac disease. But it could certainly be due to an intestinal bug or even food poisoning. Just because others in the family might not become ill doesn't rule out the possibility of a non-gluten intestinal pathogen of some kind. Different people will have...
  16. trents
    Anemia can contribute to false negatives in the celiac antibody testing as can low total IGA. Do you have a record of what blood antibody tests they ran? Also, did they do a biopsy when they did the endoscopy?
  17. trents
    How does your daughter react physically/symptomatically when she gets glutened? I'm not a super sensitive celiac but if I get much more than a trace I get violently ill with hours of intense abdominal cramping, emesis and diarrhea. The amount of soy sauce in small appetizer-sized cup of soup at a Chinese restaurant will do it for me. So, I would do anything...
  18. trents
    Download a free program called Irfanview. Use the resampling tool to reduce the number of pixels in the picture.
  19. trents
    I just wanted to add that another way of saying much of what I said in my previous post is that it is important to take control of the situation rather than letting it control you. Let go of the elements you can't control but cease control of the ones you can. Don't fear what others will think about you. You need to do what you need to do to protect your...
  20. trents
    Welcome to the forum community, @jessiemariecar! Your angst is a familiar struggle to many in this online community and in the celiac/gluten sensitive community as a whole. So, the first thing I want you to know is that you are not alone. Let me offer some suggestions that will not totally eliminate all risks. Nor will they eliminate all social...
  21. trents
    Celiac disease damages the lining of the small bowel . . . the part of the intestines immediately below the outlet of the stomach. You describe your problems as being in the "upper stomach". To me, your issues seem to fit better with GERD or a hiatal hernia or perhaps an ulcer. Has anyone done an upper GI scoping on you recently?
  22. trents
    Welcome to the forum, @HayleyC123! There is a very short time window for attaching photos. This serves the purpose of thwarting scammers. So, that should probably be the first thing you do instead of entering the text of your message. Open a new post window and try again. You should see a paperclip icon on the lower left corner of the new post window...
  23. trents
    One elevated celiac "marker" can indeed mean something! We call them antibody tests, by the way. But it is also important to know which one it was that was elevated because some are more specific to celiac disease than others and also to know how high the score was on that marker. So, can you give more information please. Which antibody test was high? What...
  24. trents
    Some celiacs claim that they can eat sourdough bread without problems. Others cannot. There is not a scientific consensus behind the sourdough idea yet but we do know the sourdough biochemical process does some altering of the gluten protein. I would be skeptical of that being a go to source for carbs. The thoroughness of the protein alteration may vary tremendously...
  25. trents
    Yes. And the gluten challenge protocol has of late been revised to reflect the need for more intense exposure to gluten during the challenge period because medical professionals have come to realize the former protocol was to lax and failing to reliably produce positive test results in those who actually proved to have celiac disease. The thinking of late...
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