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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Good idea, @LynnM! That would be helpful to other celiacs who find themselves on the more sensitive end of the spectrum. You might also want to send them information about how to initiate the process with GFCO. But just a word of caution here, don't be surprised if the company is reluctant to pursue this certification as it can tie their hands with regard...
  2. trents
    Cutting out major sources of gluten in one's diet is pretty easy. It's the hidden sources where it shows up in products you would never expect to find wheat in (like soy sauce and Campbell's tomato soup, most canned soups, many pork n' bean products), medications, supplements, oral hygiene products, etc. that are the things that trip you up. And then there...
  3. trents
    Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance...
  4. trents
    Have you had B12 levels checked?
  5. trents
    Maltodextrin is typically made from corn.
  6. trents
    Are you taking any vitamin and mineral supplements to address the deficiencies and if so, are they gluten-free?
  7. trents
    Welcome to the forum, @AnneBSunflower! Can you be more specific about the gluten antibodies? Which ones were found? Do you have access to the report and can you post the results? What is a "GI map"? How was this done? Is this a fecal matter test? Are you still consuming oats? Even "Gluten-free" oats? Have you checked all meds and supplements...
  8. trents
    Welcome to the celiac.com, @Rejoicephd! 1. "Gluten Free" does not equate to "contains no gluten". According to FDA advertising regulations, it means it cannot contain more than 20ppm of gluten. This is a good standard for most in the celiac community but not good enough for those on the sensitive end of the spectrum. If you find the "Certified Gluten...
  9. trents
    @miguel54b, I hear you. Some medical professionals have this attitude that gluten disorders are the latest "fad" disease and are very dismissive. Many of us have suffered much and suffered much bodily damage by having our complaints dismissed as hypochondria or misdiagnosed as some other medical problem. But let me offer a little education about gluten disorders...
  10. trents
    If your total IGA is low then the values for the other IGA tests cannot be trusted. They will be depressed. Celiacs who have the DQ2 gene typically are on the more sensitive side as opposed to those who only have the DQ8. But keep in mind that having either or both of those genes does not equate to having celiac disease as 40% of the general population...
  11. trents
    Welcome to celiac.com, @Wamedh Taj-Aldeen! Just curious, what is your relationship to the patient? Are you the attending physician? A medical student? A consulted physician? Was a total IGA test ordered? Some physicians are under the dated and mistaken impression that such is only necessary in young children. If total IGA is low, other IGA antibody...
  12. trents
    Welcome to the forum, @dominiqueccms! Unfortunately, your story is all too common. Some older physicians are dismissive when it comes to gluten intolerance disorders and have this attitude like, "It's the latest fad disease." My advice to you is to get another doctor who has more current knowledge in this area and will take this seriously. In the meantime...
  13. trents
    By the way, you need to repost those numbers in your first post and add the reference ranges. Different labs use different reference ranges so the test scores by themselves aren't very helpful, especially when the values may be borderline positive. It would need to be in a new post window as the edit function times out quickly such that you can't go back...
  14. trents
    Welcome to celiac.com, @Cat M! Were you consuming generous amounts of gluten for a significant period of time (weeks/months) before the blood draw and test results you posted? I ask because you say you would like to be retested after consuming gluten for a few weeks. Current guidelines for the gluten challenge call for the daily consumption of at least...
  15. trents
    @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of...
  16. trents
    I see nothing in the ingredient list that concerns me from a gluten intolerant perspective. Historically, how has your 13 yr. old been treated for his acne? When I was a teenager I had acne issues (this was in the 1960s) and was put on a long term regimin of tetracycline. It helped the acne but I am convinced it altered my gut microbiome and contributed...
  17. trents
    Yes, but knowing you have "a gluten problem" does not distinguish between gluten sensitivity and celiac disease, an important distinction when it comes to long range health implications and how strict you need to be in avoiding gluten. And in reality, many people find they cannot stick to the gluten free diet until they have a formal diagnosis. Without that...
  18. trents
    This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.
  19. trents
    This caught my attention: "More importantly, these changes may not go away completely—even when the patient is following a strict gluten-free diet. Previous research has shown that neurological damage caused by gluten may be long-lasting or even permanent in some cases. This underscores the importance of early diagnosis and strict adherence to a gluten-f...
  20. trents
    Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
  21. trents
    You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
  22. trents
    Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...
  23. trents
    Welcome to the forum, @NCalvo822! Ditto to what Scott said. But let me ask you, what method or methods did your physician use to diagnose you as having celiac disease? Normally, it is a two step process. The first step involves a blood test that looks for certain antibodies produced by celiac disease. The second step involves an upper GI scoping and biopsy...
  24. trents
    @isi keller, seems like you are confusing glycemic index with gluten intolerance. Wheat, barley, rye and some cultivars of oats are the only grains that contain the protein gluten. Other grains have similar proteins more or less similar to gluten that are informally referred to as gluten but technically speaking, they are not.
  25. trents
    I was always under the impression that type 1 Diabetes onset always happened in childhood. Everyone that I know with type 1 has had it all for most of their lives.
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