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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself.
  2. trents
    Wow! I think the answers to your questions seem obvious to me but I'll oblige you. It's invasive because they are running a scope into an orifice and down through much of your body. Any procedure that invades the body is invasive. It's expensive because you are paying a trained professional (a doctor) to do it, plus nurses and an anesthesiologist...
  3. trents
    The other thing to understand is that if the blood antibody testing is negative, it is most likely that the endoscopy/biopsy will also be negative. The blood tests are checking for antibodies from the damage caused by celiac inflammation. The biopsy is checking optically for the same damage. If there are no antibodies being produced then there is no damage...
  4. trents
    Technically speaking, the blood test is not required before the endoscopy/biopsy but you may have a hard time finding a physician willing to do an endoscopy/biopsy without it having been preceded by positive celiac blood antibody test scores. Positive antibody test scores provide the justification for going forward with an invasive, expensive procedure that...
  5. trents
    @LeeRoy83, what RMJ is referring to is the test for IGA deficiency, often called "total IGA". It is not a celiac diagnostic test per se. However, if this test score is low (i.e., you are IGA deficient), the celiac IGA test scores cannot be trusted as they will be artificially low which may include false negatives. Possibly, RMJ is correct. But I'm looking...
  6. trents
    The reality is, returning to gluten consumption makes some people so ill that they cannot complete the gluten challenge. There is no shame in that. Nonetheless, they must live with the ambiguity of not knowing whether they have celiac disease or NCGS. Another reality is that at the end of the day, both conditions require complete abstinence from gluten and...
  7. trents
    There are some other things that can cause elevated blood antibody numbers on the celiac tests. Some other diseases, some medications (olmesartan, NSAIDs) and even some other intolerances to non-gluten foods, especially dairy. But the odds are, the elevated numbers are caused by celiac disease.
  8. trents
    The 10g of gluten daily doesn't have to come only from bread. It can include pasta, cake, wheat-based cereal, etc. I wouldn't obsess over it. The main point is, don't skimp on gluten. Eat normal amounts of wheat products just like someone would who isn't dealing with a gluten disorder. If you really want to make sure you are getting 10g of gluten daily...
  9. trents
    Your physician will likely refer you for a GI consult for the purpose of an endoscopy with biopsy of the small bowel lining to check for the damage to the villi caused by celiac disease. As Christiana said, keep eating generous amounts of gluten until all testing is over or you will invalidate any future testing or procedures.
  10. trents
    Welcome to the forum, @xxnonamexx! First, some terminology clarification. There is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). NCGS is also referred to simply as gluten sensitivity. You will also hear the term "gluten intolerance" which is a generic term for either. But in the real world, these terms often get used indiscriminately...
  11. trents
    Another variable or "weakness" of this study is lack of verification that the gluten-free group was actually gluten-free. Were their antibody levels tested? This might call into question some of the conclusions which stated that oral symptoms persisted even after dietary changes were made.
  12. trents
    The "IgA 47-310 normal range" = is the total IGA test I mentioned in an earlier test. It goes by a number of names. He is not IGA deficient.
  13. trents
    I would make sure he gets checked for B12 and D deficiencies at the minmium. Ferritin is a storage protein for iron. If it is low, it could mean his iron needs are currently being met by robbing from storage but the storage is not being replenished. I find it interesting that his fatigue set in during the winter months. If you live in a northern latitude...
  14. trents
    @LizzieF, if you will be seeking repeat blood antibody testing after undergoing a more rigorous gluten challenge, make sure your physician orders the "total IGA" test to check for IGA deficiency. If you are IGA deficient, all other IGA test scores will be artificially low and this can result in false negatives. Can you list the blood antibody tests that...
  15. trents
    Welcome to the forum, @LizzieF! Yes, I also question whether or not your exposure to gluten before either the endoscopy/biopsy or the antibody testing was long enough or intense enough to render valid test results. Guidelines for the "gluten challenge" have recently been revised to recommend more intense exposure: at least 10g of gluten (about the amount...
  16. trents
    Chris, has your husband had a recent checkup with detailed bloodwork (CBC and CMP)? Has he been checked for vitamin and mineral deficiencies?
  17. trents
    Welcome to the forum, @Stuartpope! With Marsh 3b damage to the villous lining of the small bowel, your son is likely deficient in a number of vitamin and minerals due to poor absorption, not just iron. B12 and all the other B vitamins are likely low. I would suggest looking into a high quality gluten-free B complex, D3, magnesium glycinate (the form...
  18. trents
    Not sure about the state of my osteopenia. I haven't had a DEXA scan done since about age 50 and I'm now 74. No fractures, though. I have significant curvature of the upper spine (kyphosis) but that was well along by the time I was diagnosed with celiac disease almost 25 years ago. So, I think it may have been arrested at least.
  19. trents
    Zinc is also a very important supplement when it comes to infection resistance.
  20. trents
    Jordan Carlson, Wheat flour is fortified with vitamins ("enriched") where as gluten free facsimile flours are not. So when you eliminate wheat flour from your diet you may lose a significant source of nutrition. At the same time, gluten-free prepackaged foods are practically devoid of vitamins and minerals, consisting mostly of highly processed high...
  21. trents
    Reply to Sanna King: As you have withdrawn gluten from your diet you have lost all tolerance to it that you had when consuming it on a regular basis. This is normal. Not everyone experiences it but it is common. It has been my experience as well. When I was consuming gluten every meal every day for years after the onset of celiac disease but before diagnosis...
  22. trents
    ome value? Is that a typo? I don't see that on any of the test results you post and I've never heard of that one.
  23. trents
    Migraines are a recognized symptom of celiac disease. The incidence of it is higher in the celiac community than in the general population. It is one of mine. Well, keep us posted. Do you have a follow up appointment scheduled yet? Again, let me stress that it is important to not begin the gluten free diet or even a reduced gluten diet until all testing...
  24. trents
    They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only...
  25. trents
    Yes, all your test scores point to celiac disease. I think this is the first time I have ever seen all positives on a full celiac panel. But then, seldom do do physicians order a full celiac panel. Many or most will only order the TTG-IGA. By the way, your score for that one at 128 far exceeds 10x the upper limit of normal. In Europe, many doctors would grant...
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