Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,508

  • Joined

  • Last visited

  • Days Won

    518

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    @Theresa C, not sure why you posted this question in Pete Dixon's blog about hook worm therapy for addressing celiac disease. If I were you, I would repost in the actual forum in an appropriate topic area so that your question will get more eyes.
  2. trents
    @Izelle, you are welcome! It is important to know that beginning the gluten-free diet or even a reduced gluten diet previous to celiac testing will invalidate the testing. One should seek out testing before experimenting with eliminating gluten. Also, remember that celiac disease is not a food allergy. It is an autoimmune disease. When a celiac consumes gluten...
  3. trents
    Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages. The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the...
  4. trents
    "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis...
  5. trents
    First of all, being able to return to foods that you have developed a sensitivity to in connection with celiac disease is not a given. You may or may not be able to do this with time. But the ability to do so seems to be connected with the healing of the villous lining of the small bowel which often takes 2-3 years in adults after attaining to consistently...
  6. trents
    Welcome to the forum, @Waterdance! Constipation and diarrhea are classic celiac symptoms and hemorrhoids is usually the outworking of either or both of those two problems. But I'm curious about your statement, "I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease." Perhaps your understanding of what that encompasses is...
  7. trents
    I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes...
  8. trents
    Yes, probably slipped his mind. Grace is in order here is my thought.
  9. trents
    But if you were not in the office and would not not have access to your phone, how could he inform you of the change in venue?
  10. trents
    Read and understood with sympathy. Food for thought, excuse the pun. For future reference, is there an officemate you can count on to alert you when the group makes sudden changes in plans like that? Someone who is truly looking out for you?
  11. trents
    Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range...
  12. trents
    No. It's over the counter. Readily available on Amazon. Good bio availability but shelf-life is not as good as thiamine mononitrate which is the most common form found in over the counter vitamin products.
  13. trents
    Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
  14. trents
    Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?
  15. trents
    Welcome to the forum, @Garlic! This kind of question is always a gray area and the answer must be nuanced. Ideally, every celiac should stay away from any potential source of gluten, however small. But we don't live in an ideal world and sometimes it is appropriate to take risks as long as the risks aren't too large and the consequences not too drastic. Realize...
  16. trents
    @alltheceliacquestions, 20ppm, even 10ppm will still cause reactions in the more sensitive subset of celiacs.
  17. trents
    "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong...
  18. trents
    Welcome to the forum, @ARutherford! Have you considered that your child may have gluten intolerance/celiac disease? It's not an allergy, it's an autoimmune response to the ingestion of gluten. It cannot be diagnosed by allergy testing but there are some specific antibody blood tests that any physician can order to check for it. Ask for a "total IGA test...
  19. trents
    Good idea, @LynnM! That would be helpful to other celiacs who find themselves on the more sensitive end of the spectrum. You might also want to send them information about how to initiate the process with GFCO. But just a word of caution here, don't be surprised if the company is reluctant to pursue this certification as it can tie their hands with regard...
  20. trents
    Cutting out major sources of gluten in one's diet is pretty easy. It's the hidden sources where it shows up in products you would never expect to find wheat in (like soy sauce and Campbell's tomato soup, most canned soups, many pork n' bean products), medications, supplements, oral hygiene products, etc. that are the things that trip you up. And then there...
  21. trents
    Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance...
  22. trents
    Have you had B12 levels checked?
  23. trents
    Maltodextrin is typically made from corn.
  24. trents
    Are you taking any vitamin and mineral supplements to address the deficiencies and if so, are they gluten-free?
  25. trents
    Welcome to the forum, @AnneBSunflower! Can you be more specific about the gluten antibodies? Which ones were found? Do you have access to the report and can you post the results? What is a "GI map"? How was this done? Is this a fecal matter test? Are you still consuming oats? Even "Gluten-free" oats? Have you checked all meds and supplements...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.