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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, all your test scores point to celiac disease. I think this is the first time I have ever seen all positives on a full celiac panel. But then, seldom do do physicians order a full celiac panel. Many or most will only order the TTG-IGA. By the way, your score for that one at 128 far exceeds 10x the upper limit of normal. In Europe, many doctors would grant...
  2. trents
    The < value is the limit of normal. The last one, Immunoglobulin A (IgA) is not a celiac antibody test per se but what we call "total IGA" which is looking for IGA deficiency. If a person is IGA deficient, their IGA celiac antibody test scores will be artificially low which can result in false negatives. Total IGA "normal" is given as a range rather than...
  3. trents
    Welcome to the forum, @Jessica H! We can't comment as you did not include the reference ranges for the various tests and there are not yet industry standards for the various celiac antibody tests that are available. Each lab creates the tests a little differently and uses their own scales. So, can you repost the info but with the reference ranges this...
  4. trents
    The idea that celiac disease is primarily limited to those of European decent is a dated notion. We now know better. In the last three or four decades our knowledge of celiac disease and our understanding of the symptomology connected with it has broadened greatly. We now have better diagnostic tools and there is a greater awareness of gluten-related disorders...
  5. trents
    But why are you asking about In Vitro Fertilization treatment safety on a forum that has nothing to do with that?
  6. trents
    Welcome to the forum, @Emma2322! Can you give us some context here? This online community exists to support those with gluten-related disorders such as celiac disease and gluten sensitivity. Does your cousin suffer from a gluten-related disorder?
  7. trents
    Welcome to this online community, @Mina H! 1. Apart from any consideration of crypt hyperplasia, villous atrophy is the hallmark of celiac disease. There are some other things that can cause villous atrophy such as an intolerance to cow's milk protein (CMP), chronic NSAID use, a certain blood pressure med, certain parasitic intestinal infections and...
  8. trents
    Welcome to the forum, @Terrance Donald! Are you actually allergic to gluten or do you say that meaning you either have celiac disease or NCGS (Non Celiac Gluten Sensitivity), neither of which are allergies?
  9. trents
    Essentially all of our UK forum participants who are in the process of a celiac disease diagnosis report that after their blood antibody testing is done, they have to wait many months to get the endoscopy/biopsy for confirmation. My impression is that the UK/European health care models do great at addressing routine healthcare needs but poorly at specialty...
  10. trents
    Testing for celiac disease, whether blood antibody testing or biopsy procedure, will likely be invalidated when the gluten consumption has been discontinued ahead of the testing or the procedure for more than a couple of weeks or so. For the person with celiac disease, the consumption of gluten results in the production of specific antibodies that can be...
  11. trents
    Welcome to the forum @Bridget connors! When you had the blood antibody testing done and the biopsy, had you already been restricting your gluten intake for a significant period of time, say weeks or months at least?
  12. trents
    I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea...
  13. trents
    Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did...
  14. trents
    Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's. Have you had your celiac antibody levels checked recently?
  15. trents
    Don't we wish there were!
  16. trents
    The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that...
  17. trents
    Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think...
  18. trents
    Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac...
  19. trents
    Welcome to the forum, @Jodi Lee K! You say you have had celiac for three years. By that, do you mean you were diagnosed with celiac disease three years ago? Have you been practicing gluten free eating that entire three year time?
  20. trents
    I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten...
  21. trents
    Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
  22. trents
    Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications...
  23. trents
    Moms Across America for one. Here's the article that kicked off long thread and more than one thread on Celiac.com this past summer: Our community feels the testing needs to be tightened up. As of now, GFCO allows food companies to do self-testing and self-reporting. Testing is also done We strongly believe testing needs to be done more frequently...
  24. trents
    Welcome to the forum, @CiCi1021! Well, to begin with, most of us have found it isn't necessary to buy a lot of specifically labeled "gluten free" or "Certified Gluten Free" prepackaged food items as long as you are willing and able to cook from scratch. This is especially true since testing by celiac watchdog groups has cast some serious doubt on how...
  25. trents
    I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc...
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