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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Have you tried a diet with a lower carb, higher fat content, something similar to the Keto diet? Are you familiar with the ketogenic diet? Fat satisfies and so curbs hunger and levels out blood sugar.
  2. trents
    But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
  3. trents
    But there will still probably be times when you will get together with your brother and father in their home when food will be involved. You need to think through how you will handle that. In the meantime, separate your stuff from their stuff and keep it under lock and key if necessary.
  4. trents
    Okay, so two issue here: 1. Your brother is creating CC (Cross Contamination) problems by using your gluten free food items and mixing into them gluten containing food. I would suggest you consider keeping your gluten free food items in your bedroom instead of the kitchen. Consider getting a small fridge that will fit in your bedroom for things that...
  5. trents
    Welcome to the forum, Drewy! So help me understand about the Tacos and "trying to keep my gluten free food from my dad and brothers gluten food." When you say, "keep my gluten free food" from them, do you mean they take your gluten free food items and then use them to make meals that also us gluten things? So, for instance, they would make taco...
  6. trents
    As Scott pointed out, there are too many variables to be able to give a black and white answer to your question. Another variable I would mention is the huge range in sensitivity to small amounts of gluten exposure that is found in the celiac community. What will trigger a reaction in one celiac may not in another. One more variable is the amount of gluten...
  7. trents
    Welcome to the forum, @Chris Tonelli! Has she been officially diagnosed with celiac disease? When gluten containing grains are removed from the diet, so is a major source of vitamin and mineral content. Gluten-free flours are not required to be enriched with vitamins and minerals by the FDA as are mainline flours. Your granddaughter should be on...
  8. trents
    You are more than welcome. Blessings on your work in this area and thank you for watching out for those of us with gluten disorders.
  9. trents
    Why would B12 give you hives? Never heard of that! Are they saying some filler in the B12 tablet is causing the hives?
  10. trents
    You are not already cutting back on gluten are you? You should be eating normal, even generous amounts of gluten for weeks before the blood test and also before the biopsy if that is ordered as a follow-up to the blood testing.
  11. trents
    Welcome to the forum, @Zoe26! You seem to have thought through all the possible answers to your own questions so I don't have any insight to give. But at this point I certainly would eliminate all foods that know are causing him problems and get him back to good health. Right now you are dealing with too many variables to be able to come to any firm...
  12. trents
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3482388/ "celiac disease has a multifactorial inheritance, so it does not depend on specific mutations of a single gene but it is caused by a combination of environmental factors and variations in multiple genes [18,19]." To answer your question, I think "normal" means it is not a variant of that gene...
  13. trents
    ALT and AST and they steadily increased over a period of seven years until I was diagnosed with celiac disease and went gluten free. Within three months of adopting a gluten free diet they were both back within normal range. They were never super high but, if I recall correctly, like you would see in someone with advanced cirrhosis but were chronically mildly...
  14. trents
    To have high IGA antibodies but negative IGG antibodies is not unusual, nor is the reverse of that unusual. It is seldom the case that all antibodies are positive. Concerning stool testing for celiac disease, I do not believe there is general agreement within the medical community that such is a reliable diagnostic tool.
  15. trents
    Wheatwacked makes an excellent point. Make a point to request that the gastroscopy specifically includes taking biopsies to check for the damage to the villous lining of the small bowel caused by celiac disease.
  16. trents
    Yes, it does make sense.
  17. trents
    Are you aware that the food labels "Gluten Free" and "Certified Gluten Free" are not equivalent? And are you aware that neither of them actually mean there is no gluten in the product, just that the gluten level is below a certain level? Gluten Free is an FDA designation indicating there should be less than 20 ppm of gluten and Certified Gluten free is a...
  18. trents
    I might suggest taking a bullet list with you to your next appointment with concisely worded symptoms and test requests. That would cut to the chase and economize the time you do have with the doc.
  19. trents
    CeeBee, you might find this interesting and even share it with your doctors: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7868701/ I hope you aren't insulted by this comment, but I have gotten the definite impression from following many postings on this forum that your healthcare system there in the UK is rather inflexible when it comes to ordering diagnostic...
  20. trents
    Welcome to the forum, @CeeBee1807! Essentially all of the symptoms you list are classic celiac disease symptoms. By the way, what eventually led to my own celiac diagnosis was elevated liver enzymes. Judging by some of the terms you employ (gastroscopy, nan) and the protracted wait times for scheduling procedures within your healthcare system, I...
  21. trents
    One important blood test that was not run in connection with your testing for celiac antibodies is what we commonly call "total IGA". If one is IGA deficient, individual IGA antibody test scores, such as the ttg-IGA can be falsely negative: See the section entitled, "IgA Levels/Deficiency Blood Test" from this article:
  22. trents
    Welcome to the forum, Cassie! That was one long sentence! A few periods stuck in here and there would have made it a little more readable. You must have composed it on hour phone. Yes, the biopsy was probably made invalid because you had been on a gluten free diet. The biopsy looks for the damage caused by celiac disease to the lining of the small bowel...
  23. trents
    How long has this been goin on? May we ask your age? What you describe sounds like it could be gluten-induced neurological damage of some kind which may not be detectable by testing designed to diagnose other kinds of neurological disorders. And it may not be completely reversible. What is noteworthy is that your symptom list became longer when you went...
  24. trents
    Grains are high in plant defense chemicals known as lectins. Lectins are not well-tolerated by many in the celiac community.
  25. trents
    Yes, by all means, get another doc. Believe me, the ignorance about celiac disease in the medical community sometimes amazes me! Some of them treat it as if it were the latest "fad" diagnosis. It is getting better but there are a lot older docs, even GI specialists out there, who are operating on very outdated notions concerning celiac disease.
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