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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc...
  2. trents
    It is also possible that since eating the fries you have been glutened again during the week. I would double check the food in your cupboard and reread the ingredient lists. Food companies can and do change their formulations from time to time such that something that used to be gluten free is no more. What I am saying is, don't assume the distress you are...
  3. trents
    Welcome to the forum, @shell504! The IGA 401mg/dl is not a test for celiac disease per se but a check to see if you are IGA deficient. People who are IGA deficient will produce celiac blood test antibody scores that are artificially low which can result in false negatives for the individual antibody tests such as the TTG IGA. You did not include reference...
  4. trents
    Had you eaten fries at this restaurant before without issue? Sounds to me like it could be glutening plus something else like a stomach bug, a little food poisoning or gallbladder problem. Make we ask your age?
  5. trents
    Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister...
  6. trents
    Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures...
  7. trents
    "Similar proteins to the gliadin found in wheat exist as secalin in rye, hordein in barley, and avenins in oats, and are collectively referred to as 'gluten'. The gluten found in all of these grains has been identified as the component capable of triggering the immune-mediated disorder, celiac disease." https://pubmed.ncbi.nlm.nih.gov/28244676/ ...
  8. trents
    We all would but that one is a pipe dream. There just isn't enough demand from a business standpoint to justify a whole fast food chain converting operations to comply with GFCO standards.
  9. trents
    A high percentage of celiacs can't tolerate dairy and they react to it like they do gluten. I would suggest a trial of removing that from your kid's diet for several weeks to see if symptoms improve. Same with oats, even gluten free oats, contain the protein "avenin" which is similar enough to gluten that it causes a gluten-like reaction in about 8% of celiacs...
  10. trents
    It depends on what kind of allergy testing you want done and whether or not your insurance will allow you to make direct appointments with specialists. Serum allergy tests can be ordered by a PCP using a blood draw. Epidermal "prick panel" allergy testing would need to be done by an allergist. There is also something called ALCAT food sensitivity testing...
  11. trents
    1/1/2 slices of bread is likely not enough. Current guidelines for the gluten challenge are recommending 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread. Physicians in practice are often working from outdated info.
  12. trents
    Please list the ingredients of the granola. It may have nothing to do with gluten but an allergy or sensitivity to some ingredient.
  13. trents
    In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores...
  14. trents
    I would ask to have celiac antibody blood tests done. These tests would not be valid, however, unless you were eating normal amounts of gluten for weeks or months leading up to the blood draw. So, not sure how the FODMAP diet figures into that. Ask for a minimum of 1. total IGA and 2. TTG-IGA. "Villi are swollen, congested, and shorter." "Moderate...
  15. trents
    This. How long has it been since you were tested for celiac disease?
  16. trents
    You have been doing all the right things to manage your celiac disease since diagnosis so what would you have changed? Perhaps the only negligence was not seeking follow-up testing sooner and more regularly. But even then, what would you have done differently as far as the day to day management of your celiac disease? I assume you realize that when something...
  17. trents
    No, one crumb from a month before the blood test would not materially affect the results of the test. I sense you are devoting a lot more "worry energy" to this than it deserves. That will do you more harm than a tick over normal on the TTG-IGA score.
  18. trents
    The do what? Give you a gluten-like reaction you mean?
  19. trents
    Different labs use different reference ranges for celiac-related tests. They concoct the tests a little differently in each place so the ranges are custom. So, I would trust the lab that analyzed the test and not google.' All celiac diagnostic tests are less than 100% specific. That is to say, there are other medical conditions, some medications, some...
  20. trents
    Welcome to the forum, @PA Painter! Are the oats you are using either gluten free or GFCO certified gluten free? It is not well-known but there are certain cultivars of oats that contain gluten. If you are using mainstream food industry oat brands there are two threats: 1. cross contamination from other grains containing gluten in the fields, in...
  21. trents
    First, the IGA score of 415 probably refers to what we call "Total IGA" rather than a specific IGA test for celiac disease per se. Physicians should always order this test along with other IGA tests to look for IGA deficiency. Total IGA checks for IGA deficiency. If you are IGA deficient, then other IGA tests will be artificially low and false negatives can...
  22. trents
    Well come to the forum @AdelaW! One positive celiac blood antibody test with flattened villi in the small bowel would strongly support a diagnosis of celiac disease. There are some other medical problems that could cause these things but the odds of this being the case are very small when compared to the likelihood of celiac disease being the culprit...
  23. trents
    This may help you get off onto the right foot: There usually is quite a learning curve involved in attaining to consistency in gluten free eating. Attaining a "low gluten" diet is easy because you simply cut out the obvious things like bread and pasta. It's the places gluten is found in the food industry that you would never expect that trips up newbies...
  24. trents
    Welcome to the forum, @kim91380! A little education perhaps is in order here. I hope you aren't offended. The tests don't measure blood levels of gluten but the blood levels of the antibodies produced by the immune system as it attacks the gluten that comes in contact with the cells that line the small bowel. So, as we eliminate gluten from the diet...
  25. trents
    Guest, thanks for the clarification. I think I understand your point now. Yes, I realize gluten can produce non Gi Reactions. Let us know if you find out that there is gluten in these inhalers. I have my doubts but gluten does show up in strange places. It could also be manufacturer dependent of these inhaler products are generic.
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