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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Keep in mind that if you decide to get any repeat testing done for celiac disease, whether it be blood antibody testing or endoscopy/biopsy, those tests are invalid if you are already on a gluten free diet. If you start a gluten free diet at some point as an experiment, you would need to go back to eating generous amounts of gluten (the amount in approximately...
  2. trents
    Welcome to the forum, @beyondbabs23! Your post is confusing. You typed, "They ran a Celiac blood test, ESR, CRP and fecal calprotectin test. All were negative but they state Celiac was positive and needed EGD." It is not true that all your celiac blood tests were negative. The Deamidated Gliadin Abs, IgG (aka, "DGP-IGG") at 41 is positive and that is...
  3. trents
    Chrissyjo, here is an article outlining the various blood tests that can be used to check for celiac disease: Many physicians will only order the ttg-iga test. It is the single best blood test tool for celiac diseae and relatively inexpensive. However, it is not a good choice if a person is IGA deficient and many physicians neglect to check for that...
  4. trents
    The Immunoglobulin A is aka "total IGA" and it is not deficient at 90. Tissue Transglutaminase AB, IGA, aka "ttg-iga" is the most popular celiac antibody test run as it is inexpensive and combines excellent sensitivity with very good specificity. It is typically the first blood test tool out of the physician's diagnostic bag and the best single one in...
  5. trents
    Yes, it would mean that the wheat starch contains less that 1% gluten. Gluten is not the only protein in the wheat kernel: https://engrain.us/understanding-wheat-protein-content/ It sounds like to me you have a good handle on the variables and hence the questions. The only way to nail this down any further would be to have the starch in question tested...
  6. trents
    Welcome to the forum, @Chrissyjo! Can you be more specific about which blood test or tests were done most recently for celiac disease? Do you have documentation to refer to or online access to your medical tests? There are a number of blood tests that can and should be run for celiac disease and many physicians are not well versed on which to run to...
  7. trents
    The importance of determining whether or not your daughter has celiac disease as opposed to NCGS in relation to cross contamination may be a false paradigm. There seems to be this assumption out there that if you have NCGS you don't have to be as careful in avoiding gluten as you do if you have celiac disease. We now know that gluten can be harmful in many...
  8. trents
    Yes, it is certainly possible that you did the scope before damage was done to the small bowel villous lining. With children, the damage to the villi seems to lag behind the symptoms and their positive antibody tests. Their bodies are so resilient and I think it is also true that most adults have the onset of celiac disease long before the symptoms get bad...
  9. trents
    Welcome to the forum, Inwalser96! Studies show that eating out is the #1 way to sabotage the gluten free diet. You may order stuff that is gluten free but you have little or no control over how it is cooked and handled back in the kitchen to prevent cross contamination. Our administrator, Scott Adams, tells the story of ordering gluten free pasta at...
  10. trents
    Helen, you may know this already but your post above was confusing in this regard. Blunted villi would refer to what is found by endoscopy and biopsy of the small bowel, not the stomach. And to say that the biopsy was normal despite having blunted villi is a contradiction unless, that is, the biopsy referred to was of the stomach and not of the small bowel...
  11. trents
    Then get home to be "crook" for days after. N00dnutt, is that a typo or an downunderism?
  12. trents
    Welcome to the forum, @Tracey Thomas! Can you be more specific about the the blood test that was done for celiac disease? There isn't just one that can be run so it would be helpful to know which one or which ones were run to get an idea if others should have been run that weren't. Here is an article to help you understand what I'm talking about: In...
  13. trents
    I think you may be confusing lectins with lecithins: https://www.verywellhealth.com/lecithin-benefits-and-nutrition-4771091
  14. trents
    That's the highest ttg-IGA value I have ever encountered and I've been participating on this forum for many years. Tell us more about what led you to get tested. What symptoms were you experiencing? With those high ttg-iga numbers I would expect your small bowel lining to be pretty well trashed unless your celiac disease is of very recent onset.
  15. trents
    I nearly always get hungry right before bedtime as well. I think I've kind of gotten into a habit of snacking before bed so my body expects it. I've also found that eating a few Simple Mills gluten free almond crackers or something similar takes the edge off so I can sleep. But if I try to ignore the hunger I have a hard time getting to sleep.
  16. trents
    Wheatwacked, what is your source of fermented pickles? Do you make your own. Boy, them is expensive on Amazon! Can you find them in regular grocery stores or is it specialty healthfood store kind of item. I don't know that I've ever seen them on grocery shelves but I never really looked close either.
  17. trents
    Gluten is not actually a lectin but it has some lectin-like properties. You have actually eliminated all lectins from your diet? I don't think you can do that without going entirely over to a carnivore diet. Lectin is found in almost all plant-based foods. Some have higher levels of lectins than others, of course: https://newsnetwork.mayoclinic.org/discussion...
  18. trents
    Depending on the severity of the damage, the resolution of the scope used and the experience level of the one doing the scoping, they can often recognize the damage done by celiac disease while doing the scoping. But the official report awaits the microscopic analysis done by the lab where the biopsy samples were sent.
  19. trents
    Welcome to the forum, @holl4088! Was this the ttg-IGA test score? Different labs uses different scales to score celiac antibody tests and different units of measurement might also be used. The tests aren't standardized so it would be helpful if you would post the range for negative vs. positive for the test used by the lab who analyzed it. There is only a...
  20. trents
    Welcome to the forum, @NimaWishing! You may already know this but the difference between "Gluten Free" and "Certified Gluten Free" is the difference between having less than 20 ppm and less than 10 ppm. "Gluten Free" is an FDA standard and "Certified Gluten Free" is a standard of the GFCO, a nongovernmental third party certifying organization recognized internationally...
  21. trents
    It is also possible that because you have been alternating between being gluten free and not gluten free, the damage to your small bowel villi was less than it might have been had you not been gluten free for extended periods of time. But again, there are other possible causes for villi damage besides celiac disease. I would also inject a corrective...
  22. trents
    Welcome to the forum, @Grace Mattaliano! In order to answer your question, we need to know more about the wheat starch. Not all wheat starch is the same. Has the wheat starch being used in these projects been processed and chemically treated so as to remove the gluten (or most of it) such as we see in some "gluten free" pizza products or some bulk laxative...
  23. trents
    I suspect the paragraph from this article "Genetic Considerations" is loaded with potential for unraveling many of the mysteries and variables we see in the celiac community such as: 1. Why some celiacs are so much more sensitive than others, i.e. why trace amounts of gluten create reactions in some but not others 2. Why some celiacs take much longer...
  24. trents
    Because reintroduction of gluten after trialing gluten free eating seems not to aggravate symptoms, I doubt it's celiac. But have you truly been gluten free or just eating lower gluten? There's quite a learning curve involved you know in attaining a truly gluten free state and studies show that most who claim to be eating gluten free actually aren't because...
  25. trents
    Welcome to the forum, Zebra! Here are some things besides celiac disease that can cause villous atrophy: https://www.verywellhealth.com/villous-atrophy-562583
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