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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    A Chipotle will be opening in our small town this month and I am excited. I probably will not use it often but it is a reasonable fast food option for me when family wants to do fast food. I am not supersensitive.
  2. trents
    Nonetheless, unless you are a supersensitive celiac, Chipotle would seem to be one of the better options when you must eat out. I'm not suggesting that any celiac, supersensitive or not, should ignore cross contamination issues but sometimes you are in situations where you have to make choices between options that are less than perfect.
  3. trents
    Have you looked into SIBO (Small Intestine Bacterial Overgrowth)? Also, MCAS (Mast Cell Activation Syndrome)/histamine intolerance (they go together like a hand and glove). Both of the above are common in the celiac community.
  4. trents
    The problem with dairy isn't necessarily lactose which is the sugar component. It can be but the other issue and the more serious one from the standpoint of celiac disease is the protein casein. It can damage intestinal mucosa just like gluten. https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/
  5. trents
    Welcome to the forum, @Rhenriksen! A few thoughts. First, learning to eat truly gluten free is a real learning curve for most people because of all the ways gluten is hidden in the food supply that you would never expect and because of cross contamination. If you are still eating out you are almost guaranteed to be getting glutened through cross...
  6. trents
    Okay, then. It definitely looks like TTG-IGA to me and your score far exceeds the 10x or greater that is becoming the new standard for official celiac disease diagnosis criteria without biopsy. Talk to your physician about this.
  7. trents
    Do you have a reference range for the Serum Tissue Transglutimate? Different labs used different reference ranges so just giving the raw score of >100 is necessarily helpful. And the terminology they employed for that one is unusual. So, I'm not sure if they are referring to what we call "total IGA" or what we abbreviate normally as TTG-IGA? I think it...
  8. trents
    Welcome to the forum, @alannahP! Excellent question but I don't know that I have ever seen any TTG-IGA score be "0". But then again, I only see TTG-IGA scores of people who have celiac disease. It would be interesting to know if people who don't have celiac disease would necessarily have a "0" TTG-IGA score or if a very low TTG-IGA score is normal for...
  9. trents
    Perhaps the sorghum was cross contaminated with a gluten containing grain in the field or in harvesting, transport, storage or processing. Or it could be that something other than gluten is causing a gluten-like reaction when you consume sorghum. But the fact is, the protein component of sorghum is different than gluten. Gluten is found only in wheat, barley...
  10. trents
    In some countries, like the UK, there are tangible benefits to having an official celiac diagnosis such as government stipends to offset the cost of gluten free food and supplemental follow-up care. Also, some people find it difficult to stay on the gluten free bandwagon without an official diagnosis. But I hear you. If the toll on your health and livelihood...
  11. trents
    Keep us posted.
  12. trents
    There is also something called "seronegative celiac disease" in which there is damage to the villous lining of the small bowel but no celiac antibodies are produced by the immune system. It's not very common and there can be numerous causes including infections, some medications and even some nongluten foods. If you have dermatitis herpetiformis, that...
  13. trents
    None of your test results suggest celiac disease but your symptoms suggest either celiac or NCGS. There is another test mode for celiac disease that might be pursued and that is an endoscopy with biopsy of the small bowel lining to check for the damage caused by celiac disease inflammation. This is the gold standard test for celiac disease and is usually...
  14. trents
    Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient...
  15. trents
    As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease...
  16. trents
    There really is no test for diagnosing celiac disease that does not require the consumption of wheat for weeks or months ahead of the testing. All testing either measures the antibodies produced by the inflammation in the small bowel lining produced by gluten consumption or looks for the damage the to that lining that the inflammation causes. If you take...
  17. trents
    endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above...
  18. trents
    Recently updated "gluten challenge" guidelines recommend the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least 2 weeks leading up to the test day. That's for those who have been gluten free for a significant time and are seeking an official diagnosis through testing. Your case is different...
  19. trents
    Welcome to the forum, @PixieDixie! 1. Celiac disease is an autoimmune disorder. The body mistakenly identifies gluten as a threat and sends attacker cells to the lining of the small bowel when gluten is ingested, causing inflammation which, over time, begins to damage the "villous lining" of the small bowel. The villous lining of the small bowel is made...
  20. trents
    Maybe you are allergic to the Simbicort. I would suggest talking to your physician about an alternative inhaler medication.
  21. trents
    Welcome to the forum, @Iris Kraft! Are you remembering to rinse your mouth out with water after using these inhalers?
  22. trents
    Sorry, I wish I had some good advice. When I make mistakes like this I get violently ill after about 2 hr. with intractable emesis for 2-3 hours, awful gut cramps, followed by several hours of diarrhea. I don't know of anything that really helps because I can't keep anything down.
  23. trents
    "Gluten-free" wheat starch flours are not new. The more sensitive subset of celiacs tend to still react to them because the processes they use to remove the gluten, which is the protein component of wheat, is not 100% efficient. That is, it removes most of the gluten, enough maybe to meet the less than 20ppm standard used by the FDA for gluten free food advertising...
  24. trents
    I am a celiac, officially diagnosed almost 25 years ago but I have laboratory evidence that the onset was at least 13 years prior to that when my liver enzymes became mildly but persistently elevated and there was no other explanation. My GI symptoms were relatively minor and back then they were only looking for classic GI symptoms when considering a diagnosis...
  25. trents
    Welcome to the forum, @VinnieVan! No, never heard it called that. What was the physician's racial/ethnic profile? IIRC, The connection between gluten and celiac disease was made during the WW2 era in Holland when the Germans blockaded a region along the Rhine River and the local populace did not have access to wheat flour. A local physician began to...
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