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trents

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  1. trents
    trents's post in Diagnosis was marked as the answer   
    Yes, that's it. If your score was 10x normal you would likely be declared as a celiac without further diagnostics. Since it is not, you will likely be recommended for an endoscopy with biopsy to check for damage to the small bowel villous...
  2. trents
    trents's post in Positive/ elevated test results: tTg-IgA, DGP-IgA, and DGP-IGG, plus have HLA DQ2 gene. But negative for Endomysial antibody scr. Could this be false positive for celiac disease? was marked as the answer   
    A false positive is possible but the EGA is not as sensitive a test as the tTG-IGA. It is normal with celiac disease to have some positive and some negative blood antibody test scores. And it is possible that you will show negative on...
  3. trents
    trents's post in Silent celiac was marked as the answer   
    Yes. You are breathing wheat dust which gets trapped in your mucous and travels down to your gut. Lack of symptoms does not guarantee that no inflammation is happening in the gut. Besides, you may be one of a small percentage or celiacs...
  4. trents
    trents's post in Test and biopsy results - no confirmation from MD yet was marked as the answer   
    Welcome to the forum @Vera W!
    Both your bloodwork and your biopsy are positive for celiac disease. Of note is that your immunoglobulin A (IgA), what we often call "total IGA" is low. This one is not a celiac antibody test per...
  5. trents
    trents's post in Diagnosis help was marked as the answer   
    The onset of celiac disease can happen at any stage of life. Before onset you will possess the genetic potential but all other tests will be negative.
  6. trents
    trents's post in Labs highly indicative, endoscopy this week...what questions should I ask? was marked as the answer   
    Just make sure all your vitamin and mineral supplements are gluten free. Costco is a great place to get many of them. Their Nature Made and Kirkland Signature brands are generally gluten free and will say so on the bottle/package if they...
  7. trents
    trents's post in High Platelets 461 was marked as the answer   
    Your platelet count is higher than normal but not way higher. I would keep an eye on it and see if it continues to climb.
  8. trents
    trents's post in Does anyone know the correct way to prepare for Celiac blood test? was marked as the answer   
    Welcome to the forum, rmcozart22!
    The Mayo Clinic guidelines are the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of the blood draw for celiac antibody testing....
  9. trents
    trents's post in Gluten ataxia symptoms was marked as the answer   
    Welcome to the forum, Coranne!
    It will vary significantly from person to person and depends in large part on how much damage has been done to you neurologically. And some people never get complete resolution because the damage...
  10. trents
    trents's post in Curious was marked as the answer   
    A very common experience, Treza. I was essentially a silent celiac and only diagnosed because of persistently elevated liver enzymes for 13 years leading up to diagnosis. There is much ignorance and outdated knowledge in the medical community...
  11. trents
    trents's post in 2.5 year old son diagnosed with DH and celiacs . . . . was marked as the answer   
    Welcome to the forum, Carianne!
    Quite a few of our forum members report that reducing iodine intake helps significantly with DH.
  12. trents
    trents's post in Questions after blood test results was marked as the answer   
    What was confusing, however, was that "a note from the lab to say IgA TTg results to follow came after the result for the anti-tissue transglutaminase had already been given.
     
    Rachy265, I expect the physician will want ...
  13. trents
    trents's post in Question in regards to antibodies was marked as the answer   
    Normal range of serum vitamin D is between 30 and 100 ng/mL
  14. trents
    trents's post in Glucose syrup, friend or foe? was marked as the answer   
    Now, I am assuming you have been diagnosed with celiac disease or at least NCGS. Given that assumption, you would seem to be in that subset of people with a gluten disorder who are quite sensitive such that even traces of gluten cause...
  15. trents
    trents's post in My Son’s celiac test result was marked as the answer   
    Welcome to the forum, Irishgirl5@
    First and foremost, you should not put your son on a gluten free diet until all testing is complete. Doing so beforehand will sabotage any tests for celiac disease. If you trial a gluten free...
  16. trents
    trents's post in Possible celiac? Please help! was marked as the answer   
    Since you had already cut back on gluten you cannot trust the blood work that was done to check for it. Mayo Clinic guidelines are two slices of wheat bread or the gluten equivalent daily for 6-8 weeks leading up to the blood draw. You...
  17. trents
    trents's post in Coeliac screen - did I eat enough gluten? was marked as the answer   
    Welcome to the forum, whaleroad!
    It's not clear to me if you ate the two crumpets every morning leading up to the blood draw or just once during that time.
    The Mayo Clinic guidelines for a pretest "gluten challenge" is...
  18. trents
    trents's post in monosaccharides, oligosaccharides, polyols was marked as the answer   
    Being certified organic has nothing to do with containing  monosaccharides, oligosaccharides or polyols. These things are natural compounds found in grains, vegetables and fruits. The first two are sugars and polyols are sugar alcohols. ...
  19. trents
    trents's post in Not sure I want to get tested...Can I just not? was marked as the answer   
    Welcome to the forum, Kasini! The only thing I would suggest would be to consider getting a genetic test done to see if you carry one or more of the genes associated with celiac disease. About 40% of the general population will carry...
  20. trents
    trents's post in Would really appreciate help interpreting with Test Results was marked as the answer   
    Welcome to the forum, Hen!
    Your physician ran two tests designed to detect celiac disease:
    FEndomysial Antibody IgA Negative Negative BN Ft-Transglutaminase (tTG) IgA <2  0-3 (U/mL)BN Both these tests w...
  21. trents
    trents's post in Newly diagnosed was marked as the answer   
    You are not the first person on this forum to report negative serum antibody levels but a positive biopsy. Having said that, it's too bad that a more complete celiac panel was not run. There are other tests that could have been done and...
  22. trents
    trents's post in Elevated ALT enzymes was marked as the answer   
    Welcome to the forum, Parish!
    Elevated liver enzymes for at least 13 years was what finally led to my celiac diagnosis back around 2000. My GP had no clue that celiac disease could cause elevated liver enzymes. I finally booked...
  23. trents
    trents's post in Small Fiber Neuropathy?? was marked as the answer   
    "Other causes of this condition include a metabolic disorder called Fabry disease, immune disorders such as celiac disease or Sjogren syndrome, an inflammatory condition called sarcoidosis, and human immunodeficiency virus (HIV) infection...
  24. trents
    trents's post in Mast Cell Activation Syndrome (MCAS) was marked as the answer   
    Histamine intolerance and MCAS go hand in hand. If you have histamine intolerance, you will have MCAS and vice versa. I'm not saying they are exactly the same thing but I'm saying you really can't separate the two. Another way putting...
  25. trents
    trents's post in Newbie! Pre Intestinal Biopsy was marked as the answer   
    So, is you question about whether or not you should have the biopsy or whether or not you should follow the doc's recommendation of no Guinness?
    Two things:
    1. Don't equate no discernible reaction to a gluten-containing...
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