trents
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trents's post in Would really appreciate help interpreting with Test Results was marked as the answer
Welcome to the forum, Hen!
Your physician ran two tests designed to detect celiac disease:
FEndomysial Antibody IgA Negative Negative BN Ft-Transglutaminase (tTG) IgA <2 0-3 (U/mL)BN Both these tests w... -
trents's post in Newly diagnosed was marked as the answer
You are not the first person on this forum to report negative serum antibody levels but a positive biopsy. Having said that, it's too bad that a more complete celiac panel was not run. There are other tests that could have been done and... -
trents's post in Elevated ALT enzymes was marked as the answer
Welcome to the forum, Parish!
Elevated liver enzymes for at least 13 years was what finally led to my celiac diagnosis back around 2000. My GP had no clue that celiac disease could cause elevated liver enzymes. I finally booked... -
trents's post in Small Fiber Neuropathy?? was marked as the answer
"Other causes of this condition include a metabolic disorder called Fabry disease, immune disorders such as celiac disease or Sjogren syndrome, an inflammatory condition called sarcoidosis, and human immunodeficiency virus (HIV) infection... -
trents's post in Mast Cell Activation Syndrome (MCAS) was marked as the answer
Histamine intolerance and MCAS go hand in hand. If you have histamine intolerance, you will have MCAS and vice versa. I'm not saying they are exactly the same thing but I'm saying you really can't separate the two. Another way putting... -
trents's post in Newbie! Pre Intestinal Biopsy was marked as the answer
So, is you question about whether or not you should have the biopsy or whether or not you should follow the doc's recommendation of no Guinness?
Two things:
1. Don't equate no discernible reaction to a gluten-containing... -
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trents's post in How do you clean Keurig Machine to remove any potential cross contamination from prior use was marked as the answer
Here is a gluten free k cup coffee: https://www.amazon.com/Donut-Café-Single-Brewers-Classic/dp/B095F8GRL9/ref=sr_1_18?crid=W09BUTUU243X&keywords=gluten+free+k+cups&qid=1690036220&sprefix=gluten+free+k+cups%2Caps%2C151&... -
trents's post in Accidentally eating gluten was marked as the answer
Thank you for the extra information. I remember when Ezekiel bread was a fad. I was diagnosed at about age 51 and I'm 72 now. From what I've read there isn't much difference in the mortality rate for celiacs than for the general population... -
trents's post in Confused about my Celiac Test Results was marked as the answer
"Tissue Transglutaminase (tTG) has been identified as the endomysial antigen."
This not a test result. I believe it is just stating what kind of marker the antibody testing is targeting. Your actual test numbers are all negative... -
trents's post in I might have celiacs was marked as the answer
Rheumatoid arthritis for one. But I was wrong in my earlier statement. Actually GDP-IGA has a 97% specificity for celiac disease. What it lacks is sensitivity at only 85%. I looked it up. So, if it rings up a positive, the chances are... -
trents's post in Extreme constipation was marked as the answer
Yes, could be just an adjustment period. Withdrawal symptoms are experienced by many people when the remove gluten from their diet. Gluten has addictive properties much like opiates. It is also likely that your total fiber intake has... -
trents's post in Worth it to push for an endoscopy after negative blood test? was marked as the answer
Another gluten-related possibility for what is causing your symptoms is NCGS (Non Celiac Gluten Sensitivity). 10x more common than celiac disease and the two share many of the same symptoms. However, there are no definitive tests for... -
trents's post in Pathology report positive but bloodwork negative - help interpreting was marked as the answer
Yes, that is possible. But I'm not sure what further testing can be done to distinguish between celiac disease and some other food intolerance. There are food sensitivity tests out there like ELISA and AlCAT but they are less than definitive... -
trents's post in Help me read my results was marked as the answer
Welcome to the forum, jennmb!
Celiac Ab tTG DGP TIgA
Immunoglobulin A, Qn, Serum01 363 High mg/dL
This one is the only "high" value from your testing. It is not a test to diagnose celiac disease per se but is a measure... -
trents's post in Am I wrong about my symptoms being Celiac? was marked as the answer
Welcome to the forum, tygerlily!
Your symptoms scream of celiac disease but you could also have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. There is no reliable test for NCGS. Celiac disease must... -
trents's post in New to this was marked as the answer
One of the defining characteristics of dermatitis herpetiformis ("DH") is little blisters. Since you've already been diagnosed with celiac disease, there's not much point in getting a skin biopsy to confirm DH but having DH is considered... -
trents's post in Question about child's results was marked as the answer
She probably has celiac disease, judging from the significantly positive tTG-IGA and IgG. One thing to be aware of is that children often don't show damage to the small bowel villi when biopsied even though they do have celiac disease... -
trents's post in Ciliacs and long covid was marked as the answer
Yes, that's an option. The Mayo Clinic guidelines for doing that, the pretesting "gluten challenge" as they call it, is the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the antibody... -
trents's post in Diagnosis in children was marked as the answer
Welcome to the forum, nattalie!
Seldom do people with celiac disease test positive on all tests that can be run for detection. That is normal. Some tests are more specific for celiac disease than others and some are more sensitive... -
trents's post in Getting tested was marked as the answer
It is absolutely possible to develop celiac disease later in life. celiac disease requires the genes but it also requires a triggering stress event, such as a viral infection, to turn the genes on.
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trents's post in Help understanding bloodwork was marked as the answer
I would add to what Russ H said, some of the test results, but not all of them, indicate possible celiac disease. The positive ones are not particularly specific for celiac disease and could be the result of another disease process. The... -
trents's post in help interpreting results? was marked as the answer
Two out of the three antibody tests are positive and you have one gene indicating the potential to develop celiac disease. Yes, I would seek further testing for confirmation but since you have already had the antibody testing done the... -
trents's post in Would you ask for further testing? was marked as the answer
The total IGA is technically with normal range but at the very low end of normal. It is a potential problem.
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trents's post in Investigated for hypothyroidism also wondering if I have celiac disease. was marked as the answer
Where in the world do you live? Does your medical system allow you to request tests beyond the bare bones testing that is normally done for celiac disease? Some medical systems, such as that in the UK, are very rigid in that sense. The...