PhoebeC

Well, I didn't get any responses but in case anyone else finds this thread, we had a good trip and no glutening. Things are really well labeled in Canada. The grocery stores we went to had separate gluten-free sections and we found a few new products to try. We researched restaurants in advance and found great options. The main gluten-free label (similar...

We definitely eat rice products; just try to mix it up. I substitute non-rice where the products are yummy (like using an excellent corn pasta, Le Veneziane brand, instead of pasta made with rice), which leaves room for things like bread and pancake mix. Why don't you try sending a sandwich 2-3 days a week and something else for the other days? That...

The first month is the hardest! You'll get through it! We decided to go all gluten-free for cooking at home; we figured it would be psychologically easier on all of us--my husband and I wouldn't have to constantly worry about cross-contamination, and my daughter could feel like there was one place that was totally safe. My younger child does not have...

We're heading to Canada (Quebec) for vacation later this month. Can anyone give me a quick rundown of gluten-free labeling on products? We will be bringing some food, and I've researched some gluten-friendly restaurants, but I'd like to stop at a grocery store once we get there. Is there a certified gluten-free symbol? I understand that Canadian regulations...

Hi Anne, We did the biopsy with our daughter, and although I know it's awful to put your child through these tests, it feels good to have all the necessary data about what's happening. Although celiac is the most common cause of the elevated antibodies, it's possible it could be caused by a different autoimmune disease, and you really want to know for...

Thanks. She has normal B12 and zinc levels and from her blood work she does not appear anemic. Although she was not tested for vitamin D recently, she almost certainly has low vitamin D since it's winter and we live in the north. She was on supplements last year (before diagnosis) at the suggestion of her allergist, but she went off them because they...

Hi everyone, I thought it might be helpful to check in with an update. My daughter is doing better--not perfect, not amazing, but better. Her bloodwork is improving (TTG-IGA from 112 to 43 in 3 months, CBC normal). She's less nauseated in the evening and is able to get enough calories most days. We've figured out some of her anxiety triggers and realized...

Just wanted to revive this thread with an update. My daughter's appetite/calorie intake is slightly better these days, especially in the morning--though overall I'd say that she usually still has to eat deliberately rather than out of true hunger. The main problem is that she still feels terrible most evenings. She often can barely tolerate dinner some nights...

We are going to try to make our own this year, but I've seen some great gingerbread houses made out of graham crackers. There are plenty of gluten-free graham crackers out there--Pamela's are nice and sturdy for building! If you make your own, the nice thing is that you don't have to worry whether it tastes good. https://www.happinessishomemade...

Thanks for sharing your story. It does sound very similar to my daughter, especially the "witching hour." Please post again if you find anything that turns out to be successful! It's helpful to hear others' experiences.

Thank you! I have been considering lactose, though I'm reluctant to remove more things from her diet. She has not had the classic lactose intolerance symptoms of diarrhea, gas, or bloating, though I know she could still have trouble with it. She's been on the medication for less than a week, so it's not the cause of her symptoms. I did not call the manufacturer...

My 10 year old daughter has been on the gluten-free diet for 6 weeks, and she's feeling worse than before the diagnosis. She has very little appetite, has frequent nausea in the evening, and has lost a pound or two that she really can't afford to lose. Our whole household is gluten free except for a few prepackaged items kept in a different room, so I think...

Thanks, all. I had to take a few days away from the forum because I was making myself insane with research. There are a lot of experts on these forums, but also a lot of other anxious people, and it wasn't really helping my state of mind! So I think I was wrong about the oats recommendation from our doctor. I apologize for the mistake. We still haven...

OK, thank you. We have an appointment with her GI doctor soon, so I will discuss all this with her and make a plan. Honestly, the risk for me and my daughter is not failing to understand the benefits of being gluten free. It's being filled with constant anxiety, stress, and hypervigilance. I've been doing nothing but research for the last 2 months....

Re: giving up oats before reintroducing, I don't think that's our doctor's recommendation (and we are at a major children's teaching hospital with a specialized program for celiac, doctor is MD/PhD). Why not do it the other way around: keep certified gluten-free oats in, and then eliminate later if she's still having trouble or her bloodwork is still positive...