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Juca

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Juca

  1. Most supermarkets will offer at least Gluten free bread and rice crackers. If they are on the bigger size, the gluten free section will be more significant. Organic stores will have a lot of gluten-free products, but usually poorly organized, you will have to look thoroughly. I can usually always find something gluten-free to eat in restaurants, the...
  2. "Don't worry, I disinfected everything." said the cook, spraying a flour filled kitchen with rubbing alcohol... yes, you can "kill" gluten like that.
  3. Before my diagnosis I had gotten to the point I had a hard time remembering in the evening what I did that very morning. I was also living in a foreign country since years, and trying to learn the language. Though I understood a lot of it and had a good vocabulary, I could not put a sentence together. I simply could not remember words when I needed them or...
  4. Hi Beth, I was lucky enough to be diagnosed just before I tried conceiving. I was a Marsh 3C, severely anaemic and with several vitamin deficiencies. I was told (by gastroenterologist and nutritionist) to wait 1 year before conceiving and take care of myself in the meantime. I started with easy to digest meals (low carb, no sugar, no sweeteners...
  5. Time to change doctors. I went through quite a few family doctors (and took about 2 years) until I found one that could diagnose me. A doctor that takes you seriously and is able to diagnose celiac is a keeper. He is better than most but still has a limited understanding of the disease, so I stick with him for general complaints. For celiacs, I am now...
  6. My Tissue Transglutaminase IgA took more than 2 years to normalize, even on a very strict gluten-free diet. Symptoms regressed pretty fast (about 6 months) but my latest endoscopy shows that I am still a Marsh 3C, which would officially, make me a "non-responsive" celiac. However, I am followed by excellent specialists and a nutritionist who is a celiac herself...
  7. The brain fog/memory problems were caused by the gluten. However, I felt even worse in the beginning of the diet, but it eventually gets much better and goes away completely. Some people give up on the diet too soon because of this, that you might feel worse in the beginning, and not give it enough time to work.
  8. Hi everyone, I am doing great on the gluten-free diet and my antibody tests finally normalized after 3 years. However, my repeat biopsy revealed that I am still a Marsh 3C and I am still unable to absorb any iron. Specialists assume I might never heal or, at best, might need quite a few years more for the situation to improve. I have tried both...
  9. 3 years on gluten-free diet: I feel great but still flat villi and zero iron absorption.
  10. Before my diagnosis, my stool would turn much lighter before a flare up. Followed within a few days of fat malabsorption and later all the other nasty and unconfortable symptoms. It seems to be quite typical. I read the old book on celiac disease by Dr. Sidney Haas, and in there he describes this in detail. (Back then there were no tests, they had to rely...
  11. Yes, it is normal to have more gas.. especially if you are eating more fruits (more FODMAPS). It will be temporary, though. Check which foods are FODMAP rich and don't eat too much for a while. Early in my gluten-free diet, I had so much pain, that I almost went to the emergency room. It turns out it was almost always because I ate too much mangoes...
  12. Why are you on the Fasano diet? Isn't it meant to eliminate contaminations on patient's diets, when they are not responding to it? By what you are saying, you seem to be responding positively. In any case, all celiacs benefit from a easy to digest diet in the first few months (or longer): - meat, fish and eggs (no eggs on your case) - plenty...
  13. I might have not understood your predicament exactly but... let me try to help. If your stool isn't completely flat, that leads me to conclude that the "round end" is probably harder that the "flat end". I have had problems with stools that started hard/normal and progressed to soft or even liquid. This happened when I was well into my gluten-free diet...
  14. During my initial recovery period I found that having digestive enzymes with meals (look for ones that also have some acid in it) helped a lot. I keep the ones from Solgar around for any tummy issues. I later found peppermint oil to be quite useful. Whenever necessary, I take a capsule 30min before a meal.
  15. You need to get tested. In the meantime, stop eating sugar and artificial sweeteners. It helps with all sorts of digestive issues and it won't mess with you tests (keep eating bread and pasta).
  16. I know your body better than me surely, but you can also consider that some nuts are high in Fodmaps and that can be causing your bloating, not gluten. I had bloating and really bad abdominal pain, and it was just the Fodmaps. If so, you can only eat small amounts of them at a time (cashews, almonds, dried mango..). It should be only temporary.
  17. Thank you for the positivity, it helps.. I was severely anemic, but since I had IV iron, a normal blood test wouldn't mean much. Unless iron doesn't last much in the body, and poor absorption would already show up.. I will find out. Same with B12, still having injections. Thyroid and liver were normal a year ago. I guess I will still...
  18. Hi everyone, This is going to be a long one, so please bear with me. Finally I have my 1 year review appointment next week. As someone who rarely had any GI symptoms (and so had no way to tell if I am getting glutened), I was really looking forward to this day. I really wanted to find out if all the changes I made in my life I had done the trick...
  19. Very interesting information about cross contamination.. I had no idea. At first I also thought ot could just be a Oligos sensitivity. If you miss hummus, you can make baba ganoush instead. It doesn't have the same nutritional profile (so important to vegetarians) but is very very tasty.
  20. More ideas: - spanish potato tortilla (also good cold, as a snack) - all sorts of fritattas, with leftovers vegetables like bell peppers and zuchinni - Rösti with sausages or egg - rice paper rolls (w/ vegetables and rice noodles, thai seasoning) - fried rice (w/egg, broccoli, carrot, chicken..) - french galette complet (buckwheat ...
  21. It is a traditional, stainless steel, hand cranked, italian pasta maker. I tried to insert a picture, but somehow I can't make it work. Maybe I can take it apart to be thoroughly cleaned. They are not supposed to be washed. It is not gross at all. Properly made dough leaves no visible residue. (But it will leave traces of gluten, that is for sure...
  22. Hi, maybe someone out there has a brilliant idea. I used to enjoy making fresh pasta at home. In the meantime, byebye gluten. I would like to dust off my pasta maker and get back on it with a gluten-free version. The question is.... how do I clean it? It is not possible to use water since it rusts. Maybe run pieces of gluten-free dough through...
  23. I thought I was the only one!
  24. The reason why you seem to have so many allergies might be leaky gut. If your intestinal permeability is compromised, all sorts of stuff gets in your system and your immune system basically reacts to everything that passes through. Many reactions should subside as soon as you can heal your leaky gut. I had very dry skin too. That went away as soon as...
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