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selectivefocus

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by selectivefocus

  1. selectivefocus
    I am a 37 yo female. I have 4 kids, 15, 11, 8, and 5. We are all Celiac. I had my 5th on January 8th, so he is 14 weeks. Celiac pregnancy obviously. I got severely glutened in the hospital with him. I had a very rough 3rd trimester where I could barely eat and developed oral allergy syndrome. My husband eats gluten. Not much at home, our kitchen...
  2. selectivefocus
    This is just a shot in the dark to see if anyone else has this problem. My Celiac 11 year old just finished up her swim session for gym class. She's been in the pool about 4 or 5 times over the past 3 weeks. She missed the first week due to having the flu. Anyway, she has the worst rash right now from the stupid chlorine. It reminds me of how bad...
  3. selectivefocus
    Can I ask what your symptoms were?
  4. selectivefocus
    My 11 year old Celiac daughter has recently started showing some thyroid symptoms. She got glutened pretty bad, had a decent outbreak of DH on her elbows, but she came to me about feeling like there was something stuck in her throat, and itching/bumps on the front of her throat. These symptoms definitely coincide with being glutened. I know gluten is a major...
  5. selectivefocus
    I placed a big Katz order last week. I wanted to bring fall donuts apple picking for my family, we all have Celiac except my husband. Their powdered donuts are my favorite-- but I seem to be reacting to them (cramps, diarrhea, DH). The only difference between the powdered donuts and the rest of the donuts I bought (4 other flavors I did not react to...
  6. selectivefocus
    I have histamine intolerance. My reaction to bananas is as if I ate gluten, and I get DH-like bumps because of it. It is not a histamine reaction (I'm well versed in that unfortunately). Everyone should read the replies by the scientist and doctor on this thread. The phrase "potential gliadin cross-reactivity" needs to be a more frequently used phrase...
  7. selectivefocus
    Celiac disease is in no way a one size fits all autoimmune disease and not thinking outside the box when it comes to food problems will be detrimental in the long run. For me, my banana symptoms cause DH-like bumps, which makes me think that it's a lectin/gluten protein confusion. Symptoms and context matters in ALL situations. Basically, tl:dr, I agree with...
  8. selectivefocus
    I love hearing about supportive spouses!!! Good luck to you on your journey. 😊
  9. selectivefocus
    So, with OAS, things have to be super cooked. I only know with my kid that when we make fajitas with peppers and onions, she can eat them as long as they are really cooked down, whereas she reacts to raw pepper. The banana thing may not be OAS. I really think there is a protein thing going on. Everyone is different with their intolerances. You are still...
  10. selectivefocus
    It may be oral allergy syndrome. I take benadryl every single day because I have mast cell issues. My Celiac 14 year old daughter has oral allergy syndrome and reacts to almost all raw fruits and veggies. She also has an anaphylactic almond/cashew allergy. You have to be careful with OAS. Her symptoms are primary which means her tongue gets itchy and throat...
  11. selectivefocus
    The Quaker ones. They're not certified. I ate literally an entire sleeve of the caramel ones. When I got the trademark migraine the next morning, I knew I screwed up. I had joint pain last night (day 2) and today is day 3 and I'm so freaking irrationally angry. I don't always get the anger symptom but i hate it. I am usually the picture of composure...
  12. selectivefocus
    So I react to bananas as well. I don't think it's latex related. I have read a couple things about how the proteins in ripe bananas are similar to gluten proteins. Do with that what you will...You're not crazy, though. Stop eating the bananas. I live in a sterile gluten-free home...and I react to banana bread, ripe bananas in smoothies, etc. I don't...
  13. selectivefocus
    Yes, I love the insane grocery bill and never having bread and putting my children through all.of the difficulties of Celiac....just for attention 😑 🙄
  14. selectivefocus
    A long rant. I am 20 weeks pregnant. This is my first true Celiac pregnancy. My last baby I was "mostly" gluten free--but at this point with her I could eat all the things that gave me trouble not pregnant, like bananas and sweet bell peppers and milk. I was still cheating occasionally like an idiot back in 2018 so my immune system was still focused...
  15. selectivefocus
    Yeah I'll second the lectins. I can't tolerate them and I used to. I can have peanut butter only occasionally. OP, lactase, the enzyme that digests lactose, is made in the tips of the villi. When the villi are injured, lactase is not made. Celiac also increases issues with the pancreas and enzyme production. My enzymes were super low when my allergist...
  16. selectivefocus
    I myself have to limit dairy except for butter and cream. Seafood, like shellfish, is also very high in iodine. And watch for supplements as well. My daughter's DH is knees/elbows and armpits. She does okay with organic whole milk and occasional cheese, she drinks that daily. Organic dairy has less iodine than conventional. None of us can eat yogurt though...
  17. selectivefocus
    Just chiming in to say this is 100% iodine triggered by the yogurt. Yogurt is so high in iodine. It also triggers my psoriasis! Not just the DH. My celiac daughter stayed in a DH flare for FOREVER because of iodine in dairy, specifically yogurt. I researched everything until I found out what was going on.
  18. selectivefocus
    She has been diagnosed through blood test. But the DH that she had before looked nothing like it. That's why I'm confused. Our household is strictly gluten-free so I'm just confused what caused her to flare.
  19. selectivefocus
    This is on my 8 year old daughter. She gets DH on her elbows and knees but it's much more individual bubbles than something like this. This is in her groin area, and it burns/stings very badly, not itchy whatsoever. Limiting dairy is helping (iodine). It started after I gave her a horizon organic milk box in her lunch. It has added D3 and doesn't say gluten...
  20. selectivefocus
    Remove all sources of iodine from your diet. Iodine will keep you flared. You can reintroduce small amounts once you are clear.
  21. selectivefocus
    How long did it take for stomach pain to stop? What was your experience?
  22. selectivefocus
    Background: Myself and my 3 daughters were gluten free from October 2017 to Thanksgiving 2019. We have never been diagnosed as Celiac although it runs strongly on my dad's side. A lot of our issues were solved but other ones cropped up. I noticed my 8 year old developed a bumpy itchy rash on her elbow after eating gluten for a few months (February...
  23. selectivefocus
    Did anyone have swollen mesenteric lymph nodes, or any swollen lymph nodes in the gut, at or before diagnosis? TIA!
  24. selectivefocus
    Will a celiac blood test show up negative if you have active/new DH lesions and the last time you had gluten was less than a week ago? How long does the body produce celiac antibodies after eliminating gluten?
  25. selectivefocus
    IUGR is relatively common in Celiac pregnant women, although my doctor has been unconcerned about it. I'm an informed patient however. After that appointment I stopped eating ALL grains, with the exception of simple kneads bread, which is a fermented sourdough but has no oats, rice, corn or eggs. (Sidebar: it's an excellent bread and I recommend it to...
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