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selectivefocus

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by selectivefocus

  1. selectivefocus
    Does anyone have experience with Celiac during pregnancy? This is my first pregnancy since being diagnosed in January 2017. I went for a growth scan at 28 weeks (10 days ago) and it looks like she has asymmetrical IUGR. This is my 4th baby. I have never had any issues like this. Her abdomen is measuring about 3 weeks behind. I should add that I...
  2. selectivefocus
    Posterboy, Stop spamming everyone's posts with "I think you have pernicious anemia". You have also messaged me and probably everyone else saying they have that. Neuropathy caused by gluten exposure (or similar proteins i.e. oats or brown rice) is a real thing. It doesn't mean I don't process B12. I have anemia, the regular old iron deficiency kind, and...
  3. selectivefocus
    I would be careful of calling anyone with this disease lucky. We all have our problems. All of my children have different intolerances caused by Celiac. I can't have eggs or red meat. I have one with an anaphylactic allergy to almonds and cashews, one with a horrible soy allergy and salicylate intolerance. She misses school all the time. None of us are lucky...
  4. selectivefocus
    I get horrible neuropathy down my legs into my feet, as well as low back pain and pelvic pain. I get such similar glutening symptoms from brown rice cakes/pasta/flour and oats that I don't touch oats (even certified) and I usually don't touch brown rice either. (It is their proteins not cross contamination). That said, I am 28 weeks pregnant, and I ran out...
  5. selectivefocus
    I love Primal kitchen mayo.
  6. selectivefocus
    Read this: https://scdlifestyle.com/2012/04/the-toxic-truth-about-gluten-free-food-and-celiac-disease/
  7. selectivefocus
    I react to Swiss MIss. It has whey in it I believe, and also corn, but this is not a gluten reaction, even though it can seem that way. Has she been tested for the top 8 allergens since going gluten free? She likely has other intolerances. Cocoa also gives me migraines.
  8. selectivefocus
    I didn't read any above replies, but you probably have other intolerances that are going unchecked. We all do. Right now I feel as though I have been glutened (liver pain, neuropathy, lethargy, just feeling really crappy) and I'm pretty sure it's from brown rice pasta and cheese. My oldest daughter tested positive to the top 8 allergens after going gluten...
  9. selectivefocus
    Anemia was my first symptom. If you don't want to live very long, by all means, continue eating gluten. Are you so set in your ways that you cannot change your diet at 68? Do you have children or grandchildren? People who care about you? If you continue eating gluten you are willingly and knowingly killing yourself. Your quality of life would be greatly improved...
  10. selectivefocus
    I hear you. I had 2 molars pulled a couple years ago pre diagnosis for $100. But I have 3 teeth with major cavities currently and they're so bad I don't think they can save them. Honestly the only thing that has prevented further damage was being diagnosed obviously, but using Xyliwhite toothpaste. I had a back molar that was as you described with pus and...
  11. selectivefocus
    How many people have dental issues associated with celiac? I had nice teeth up until my 2nd child was born. Thats also when most of my other symptoms exploded. My teeth are really bad now and while I think I have stopped some damage from continuing there's nothing they can do for a few of my teeth. It's seriously so depressing. I'm grateful for the celiac...
  12. selectivefocus
    I've been gluten free 13 months. Many of my issues have resolved, but I've gained a lot of other food issues in the wake of eliminating gluten because my gut was so damaged and my immune system was so overactive. My daughters have now joined me in this awful club. It takes a long time. I'd say in the first month my DH on my hands disappeared and my liver...
  13. selectivefocus
    However I found another one that does not!
  14. selectivefocus
    Still contains black mold unfortunately
  15. selectivefocus
    My theory is similar. For someone with undiagnosed celiac, I attribute gluten to being like a hurricane. It keeps your immune system constantly distracted and you can't see the damage it is causing. When the hurricane is taken away, your immune system realizes all the damage that has been done and it goes into overdrive. The other component is that celiac...
  16. selectivefocus
    Hey all. So I have posted about my 9 year old a few times here. I took her off of gluten in October. Back in April 2017 she had a food allergy panel done. She only came up positive for cows milk and just barely. She just had the same panel done a couple weeks back, and came up positive on EVERYTHING and in low-moderate amounts. She had been telling me that...
  17. selectivefocus
    She might not have responses enabled to her posts. I didn't realize you had to enable responses for every individual post and was not getting emails and I thought no one was responding to me.
  18. selectivefocus
    My daughters DH showed up first around her nose. Two theories here: You are either getting glutened without knowing it, your body is mistaking another grain as gluten (i.e. oats, corn, etc.) or you have another allergy that is bringing this out in you. I got a horrible, painful mouth ulcer last night from something containing corn syrup. I didn't react to...
  19. selectivefocus
    I realize this is an old thread, but in the interest of giving more people info who are looking for it, I'll add my 2 cents I get DH around my mouth, blisters on my lips, and DH on my hands. My 8 year old gets it on her face around her nose, and my 5 year old gets it on her knees initially, but then it spreads up and down her legs if she has had a lot of...
  20. selectivefocus
    We actually have a Vitamix. It's well worth the investment for a celiac who makes everything from scratch! When we first got it I was making very spinach heavy smoothies thinking it was sooooo good for me, until I ended up with terrible joint pain from the oxalates! We fell out of making smoothies with it since we moved last September. Anyway! I pack...
  21. selectivefocus
    Yes I have read that about eosinophils and celiac. What is frustrating is that each individual patient is different and an abnormal blood test should not be disregarded just because it isn't as "bad as it could be". Thanks for your input.
  22. selectivefocus
    Sorry, I should have clarified. My implication was not that these medicines are not necessary for her or anyone else. She prescribed her daily zyrtec because I said she was having frequent headaches and automatically gave her a diagnosis of pollen allergies when she has no issue with seasonal allergies. :/ Navigating celiac with myself and my kids has jaded...
  23. selectivefocus
    They did the same thing with mine before I was diagnosed! I had abnormal WBC and my red blood cells were all wonky. I begged for a referral to an allergist and he was the only doctor to look further into my issues.
  24. selectivefocus
    What's frustrating is that her doctor just thinks a pill cures everything. I will literally try everything before putting my child or myself on a medicine unless its absolutely necessary. I think once this package of Miralax is gone, I'm going to stop, and see what happens with her on a limited dairy diet.
  25. selectivefocus
    My daughter had a CBC done, and her white blood cells are off. The dr, said everything was normal. I can view her results online however, and her nuetrophils are low, and eosinophils are high. Anyone have any idea what that means? Her neutrophils were 45 and the threshold was 50-80, and eosinophils were 6.3 and the threshhold is 0-3.
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