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Patty harrigan

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Patty harrigan last won the day on September 25

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  1. That’s exactly what happens to me. I have been unconscious twice, vomiting afterwards for up to 9 hours and then the bone breaking chills start. I have never vomited while unconscious, thank god. It’s an unusual presentation and my doctors were reluctant to think it was due to gluten ingestion. However, I know it was gluten as both times it happened wit...
  2. I stopped eating out 5 years ago….sadly. I have a friend who owns a number of successful restaurants in NYC. Many years ago at my behest, he completed Columbia Celiac Center’s “training” and developed beautiful menus at his restaurants. HOWEVER, he feels that mistakes will happen in a busy kitchen no matter how hard they try, no matter how much they train. ...
  3. All the doctors I have seen think it’s a vasovagel reaction. I only eat food prepared in my own kitchen so I have not been glutened for nearly five years. It’s a hard way to live but passing out while behind the wheel is not ok by any stretch. And BTW, I’m only out for a very short time. Going out for a few hours must be very very scary!
  4. https://www.grainful.com they produce purity protocol lentils. I have used these without any problems and I get extremely sick. I still thoroughly sort and wash. They were tested by the Gluten Free Watchdog. I have bought them right from the company but they may be available on Amazon. Unfortunately they are in high demand and not always available. If they...
  5. I’m by nature a happy, upbeat, energetic person. After I get glutened, I become a lethargic, weeping mess. I actually don’t care if I sit down and die. This can take months to disappear. It’s not suicidal, it’s an overwhelming feeling of ennui; that life is too hard and I just would like to sit down and close my eyes. That I’m not safe anywhere. I become...
  6. Has anyone used this? It states it is gluten-free and has no MSG. Ingredient list includes yeast extract but doesn’t list substrate. I called and there consumer department could not give me an answer either. My husband made a big meal using it without checking with me first. Hoping someone out there uses it and has no problem!
  7. I have used many different bluebonnet products for decades and have never had I problem. I get seriously sick from gluten and am extremely careful.
  8. I have gone to the ER as my brother, who is an ER doctor, felt I should be monitored. I passed out while there. The ER staff had no idea what to do other than give me sofran to stop the vomiting. I went unconscious while there and they actually thought I fell asleep. The other time I was in a car driving, pulled over and passed out. I wake up on my own but...
  9. This was not dizziness or falling. I was laying on a gurney in the hospital one time and the other I was laying on the floor vomiting. This was a severe reaction to cross contamination that started 2-3 hrs after eating out. I go into shock.
  10. I have passed out twice after eating out. I have been gluten free for about 12 years and had no intestinal reaction to gluten until I became gluten free. My reactions to accidental glutening has become progressively more severe. I started vomiting and shaking with cold for hours. The last 2 times I was glutened I went unconscious. I was thoroughly tested...
  11. I just don’t eat out anymore...ever. Sad but keeps me safe. Nothing is worth the reaction.
  12. I too vomit and pass out and then get hypothermic. This ha only happened 2 hrs after eating out. I’m extremely careful and rarely eat out so my episodes have been 2 yrs a part. I am being told by a celiac doctor, allergist etc that this is not a celiac reaction. I am currently being tested for other food allergies as the doctors I have seen think this is a...
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