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Barbie Wickham

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Barbie Wickham

  1. Barbie Wickham
  2. Barbie Wickham
    In regards to the MacDonald French Fries - I was informed somewhere in this forum that they toss a handful of regular all purpose flour onto the frozen fries before cooking in deep fryer. Why? It stops them from sticking together. Also, another big “hidden gluten” can be in Sushi Rice, Dr. Tom O’Bryan did a podcast about Japanese restaurants that also ...
  3. Barbie Wickham
    MendyLou and RainJane, I got relief within 72 hours of starting the Dapsone, 50 mg a day and a strict gluten-free diet. After a month, I dropped dosage to 25mg a day am almost completely free of rash. Only a few bad, stubborn blisters on my bottom. Best of luck to you.
  4. Barbie Wickham
    MeToo & Squimingitch, I too had many biopsies & cultures that came back negative which I now know is because they were not performed properly. I wholeheartedly agree on NO to the cortisone shots, I had two big loads, a week apart, and initially my rash started to get better, but, within 2 weeks, it came back with a vengeance and a life of its own...
  5. Barbie Wickham
    I am a recently diagnosed & confirmed Celiac with DH. I had the Rash for 1 1/2 yrs with my bottom being the worst, then my elbows, hands, wrists & top of knees. I started 50 mg of Dapsone a day (I too am allergic to Sulfanomides, but my pharmacist & Doctor researched the molecular components of Dapsone and both felt it would be ok to try and...
  6. Barbie Wickham
    Hi SugarSue, I find that after accidentally “glutening” myself, I first feel the itch about 4-6 hours later and then within a few more hours, a bump will start to form, either on my hands or fingers, or my worst area, my bottom. My bottom has almost completely healed, however, it is still discolored all over with a purplish tone, almost like a slight bru...
  7. Barbie Wickham
    Wishing you and your daughter a speedy recovery. I think going gluten-free and feeling better is a good sign in which way to go. For all the negative test results I received, the full Gluten Panel bloodwork finally showed I was sick from gluten and with my family history of Celiac Disease it all made sense. The biggest proof for me though was my body responding...
  8. Barbie Wickham
    My fingers went from little bumps to huge fluid filled itchy blisters that would pop, refill, pop again and then would finally scab over. Almost like a burn blister. Just an incredibly painful experience. I so hope you get a proper dx and you’ll be amazed how quickly you will begin to heal & feel better!
  9. Barbie Wickham
    Jane, my rash didn’t go to the bloody, pressure filled blisters until about a year in. They would get filled with so much fluid they would pop on their own, especially my bottom area and elbows. I hope for you you get a proper dx quickly as I found with each passing week my rash worsened and basically took on a life of its own! Of course, I was poisoning m...
  10. Barbie Wickham
    Jane your fingers look exactly as mine did! So very painful, I remember feeling like I had broken a glass and shards were stuck in my fingers and hands....
  11. Barbie Wickham
    Those elbows look very familiar! I had that rash for a little over a year and a half, and with each break out, the blisters would change, worsen in appearance and the itch got insanely itchier. The only topical product I found that helped a bit, was GoldBond lotion or liquid spray with Lidocaine.... Drs had me then just use Aquaphor (the Vaseline jelly type...
  12. Barbie Wickham
    You might want to give a try to Aquaphor, (the jelly type, just like Vaseline) instead of the Vaseline. I had several Drs tell me it is much better for your skin than petroleum based Vaseline. I found it protected the rash and blisters really well, but I also felt like my skin was able to “breathe” easier than with the Vaseline... Best of luck to you wit...
  13. Barbie Wickham
    Victoria- In reference to my previous replies to Jane, Squirming Itch & Cast Iron Tummy, I’m trying to upload a few more pics of my ever changing (& daily worsening of my DH rash). Site only allows small uploads... I think the iodine is not just bad for the Celiac Disease but your Thyroid Gland as well, it’s not intended as medical advice, just a r...
  14. Barbie Wickham
    Jane, oh I feel for you... I can’t imagine even trying to exercise at the height of my unyet dx’ed DH.... just getting dressed was a dreaded experience for me. The symmetry and bilateral rash and blisters were big clues to my Hero of our family Dr. (not the dozens of specialists I saw!), along with rash on the pressure points of my body... hands, elbows, to...
  15. Barbie Wickham
    A picture is worth a thousand words!
  16. Barbie Wickham
    Image censored by Google for being "too shocking".
  17. Barbie Wickham
    Such a horrid rash, I ended up wearing my hubbys soft cotton boxers, also turned inside and waistband rolled over to prevent the raw rubbing. And yes, no way was a bra in my wardrobe! Good ol seamless cotton tanks, not the bra strap type, was the best I could handle!
  18. Barbie Wickham
    I’ve tried to add a few more pics but am limited to 1.95 mgb - I will try again later to add a few more of my hands and bottom
  19. Barbie Wickham
    Reading back to all DH topics posted here, many references to how the DH rash appears and changes or “morphs” over time. I was affected on my hands, elbows, inside forearms/wrists, tops of thighs and the absolute worst, my bottom. I’m posting a few pics of my year and a half of this unknown Rash from He**... maybe it will help someone else recognize the s...
  20. Barbie Wickham
    I too am anxiously awaiting for that miraculous day of “I FEEL GREAT!!” I do feel a lot better than before my DX and I’m eating 100% gluten-free, and am taking 25 mg of Dapsone a day, every time I try to stop the Dapsone, I break out. So not worth it, guess my body needs that wee boost, but I’m still only about 60% of my former self.... But! We WILL...
  21. Barbie Wickham
    Thank you very much, so much to learn -but thanks to people like you and this forum I am trying to quickly learn & understand! I was aware of cross contamination but didn’t put the ‘CC’ reference together with it! I was stuck on my old receptionist days of letter typing & CC’ing people. ?. So thank you ? for clearing that up for me!
  22. Barbie Wickham
    Thank you so much as I am trending to eat some of the Gluten Free bread products. So being new to all of this, I keep seeing the term “cc’d” & don’t quite understand its meaning... can you translate for me? Thanks so much !
  23. Barbie Wickham
    Hi KD, I am just recently diagnosed with DH, Celiac Disease... I feel for you and what you are going through. I know all too well the pain & frustration. I also have hundreds of photos I’ve taken of my hands, elbows, knees & buttocks. I am by no means a Dr., but your photos look very much like a good friend of mine who suffers from several types o...
  24. Barbie Wickham
    Ravenwoodglass, Thank you for your reply, it’s nice to not feel so alone with this health issue. This is a great forum. I’m not fully aware of the iodine ingestion, should I avoid iodized salt & fish? I no longer have my thyroid gland, I had hyperthyroidism at 21 (I’m 59 now) & had it surgically removed, then became hypothyroid with Graves Disea...
  25. Barbie Wickham
    I was finally correctly diagnosed with DH after 1 1/2 years of being misdiagnosed and miserable. I’m currently eating gluten-free (only 2 weeks) and am taking 50 mg a day of Dapsone. My body is responding incredibly and each day the blisters & rash is better. I think I slipped up yesterday and ‘Glutened’ myself with a German Sausage or a piece of Salam...
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