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Jen1104

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jen1104

  1. Jen1104
    Hi everybody, I'm just curious if anyone has had the ALCAT food sensitivity test done, and if you feel it was accurate--or not? I'm undiagnosed, but have an extremely bad reaction to gluten: stomach issues, severe neuropathy, exhaustion, etc. So, I have been off gluten (very strictly) for about 10 months now. Stomach and related issues are a lot...
  2. Jen1104
    Cyclinglady- Thanks for the suggestion about seeing if there is a pic from my endoscopy. Good idea! I remember getting pics but I'm pretty sure it was just from my colonoscopy. I'll have to dig those up. Yep, I think I may have gluten ataxia. That's scary that if it goes on long enough it could be permanent. I'm hoping I keep getting better being...
  3. Jen1104
    Hey Kareng, Yes, if you can come with me, that would be great! Lol Honestly, I've been treated so badly by some docs over the years I despise going to them, and half the time I forget what to say or ask. But I'm getting better at that! I did ask my dr a few questions about the villi being flattened, he wasn't sure about an answer. He said it...
  4. Jen1104
    Hey everyone, I had an endoscopy and colonoscopy last Nov because of burning, pulsating stomach pain and other lovely colon issues. I had already been gluten free for 6 months when this was done. (I know, I know, I had no idea I had to keep eating gluten for the tests when I first started the diet). The endoscope with magnifier showed some of...
  5. Jen1104
    Yes, I have heard of her and just read a bit about the diet online. I wouldn't mind reading one of her books. It seems like a pretty extreme diet but I'd do just about anything to feel better!
  6. Jen1104
    Hey Cyclinglady, I went to Mayo's clinic about 20 years ago and was tested for MS, and it was ruled out. Mayo's diagnosed me with fibromyalgia. I've thought about having MS tested again. From what I've read though, there's not a definitive test for MS (if I remember correctly). No one in my family has MS or any other autoimmune disorders. But I should...
  7. Jen1104
    Plumbago, I take 500 mcg a day of B12, I'm thinking of doubling the dose. I just had blood drawn again last week to see if B12 has gone up any in 4 mo. with sublingual. I haven't gotten my results yet though. I've had blood sugar checked recently, it's in normal range, so diabetes wouldn't be a cause of my neuropathy. I have been gluten free...
  8. Jen1104
    Very cool you have your own bakery I've tried making own grain free bread and it was expensive and pretty much tasteless. I will definitely check out the Julian Bakery loafs. Thanks for the tips!
  9. Jen1104
    Appreciate your thoughts on this Ennis. I've been taking 500 mg of magnesium for a few years and my mag levels were at moderate levels. I just take magnesium oxide form but will look into the liquid form to see if it absorbs better. And probably up my B12 too. Thanks for recommendations that work for you! My nerve pain is a bit better today. It...
  10. Jen1104
    Hey everybody, I'm pretty new to the forum and to having probable celiac disease. I have an EXTREME reaction to gluten and gastro doc said he saw some flattened villi, but the biopsies were negative. I've been strictly Gluten-Free for about 10 months and my stomach and other gastro problems are about 90% better, which is huuugggge! However, I have...
  11. Jen1104
    Caspi-Ann, thanks for your reply. I'll look into what you suggested. I have given up dairy for the most part so I don't think that could be a problem. I just ordered gluten-free shampoo and gel just to see if maybe it would make a difference. Victoria, thanks for the info and video! I will definitely try the apple cider vinegar soon!
  12. Jen1104
    Hey Jherm21, Thanks for sharing your story and I'm sorry you're having this problem too. It's getting to the point where I don't want to leave the house! I did see a derm and have also been on the ketoconazole shampoo for several months and it helps slightly with itching and burning scalp, but not with hair loss. I was told to use a good conditioner...
  13. Jen1104
    Thanks everybody! I did have my iron levels checked as well as Vit D, magnesium, B6 and B12. All were normal except B12 which was 188 with optimal level being between 200-500. The doc told me I didn't need a B12 injection though, just supplement. I've also been taking multi-vitamin for last month or so. So far not helping. I really feel like the...
  14. Jen1104
    Thanks for reply. I have had my thyroid and some of my vitamins checked. I just had my TSH and T3 checked, which was normal. I need to check for Hashimotos but haven't done it yet. My B12 was a bit low so taking supplement for that. I have not had sleep study done but need to, I guess :-)
  15. Jen1104
    Hey everyone, I've been diagnosed with possible celiac. I have not had the blood test but have had an endoscopy. GI doc said he saw flattening of the villi, but the biopsy was normal. I had been gluten free for about 8 months before the endoscopy though, and doc said this could make biopsies be normal. I am NOT willing to do gluten challenge...
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