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Jane87

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jane87

  1. Jane87
    DH and anxiety? Does anybody have any thoughts or knowledge on a relationship between increase in anxiety/phobias and gluten? I'm only just into the diagnosis stage yet but I've upped my gluten in take x 10 the past few months leading up to my blood tests today and my anxiety (to be precise cleithrophobia) has been through the roof. It's lingered on and off...
  2. Jane87
    Hi! Please check out the Dermatitis Herpetiformis forum on this website. I'm currently in the early stages of being tested/diagnosed. DH is skin presentation of coeliac and some people's can resemble dishydrotic eczema but is often very itchy, bilateral and sometimes painful. I'm not an expert at all so you best head to the DH forum https://www.celiac.com...
  3. Jane87
    Thank goodness you got a Dr in the end that recognised what was happening! I will have to see what my bloods show in January, I really hope they show coeliac, not because I want it but because I feel that's what this is! A fair few people yourself included Barbie have said my elbows remind them of theirs! The only thing I'm wondering is, mine never...
  4. Jane87
    Thank you squirmingitch I had my Drs app on Wednesday, it was over in 5 minutes after he looked at my pictures,heard my family history he booked me in for bloods for Coeliac and Hashimotos in the New Year. I'll wait and see what the results are (should have them by mid January) and I'll book a Drs app to discuss my results whatever they may be. I'll be prepared...
  5. Jane87
  6. Jane87
  7. Jane87
    Hi Barbie thanks for sharing your pictures and story! I'm glad gluten-free and dapsone have finally gotten you relief. How many years did you suffer with this? I've just finished a flare up of this as yet undiagnosed rash so I've the Dr booked me in for bloods tests in the NewYear although Awol and others on this forum have told me that Coeliac blood...
  8. Jane87
    Thank you for all the feedback so far guys! ❤ I finally had my initial Dr appointment this afternoon. I walked in and said I'd like to be tested for DH/Coeliac. He took a look at my pictures (elbows, fingers, back), I gave him a 30 second outline of family history (various autoimmune incl. Crohn's, Hypothyroidism, Lupus, Gluten Intolerance etc). I didn't...
  9. Jane87
    Thanks Victoria. I never scratch my elbows (just run my fingers around the outside as I feel v.uneasy about scratching the bumps, like sickened, so it stops me scratching and my elbows are the least itchy). However when it's on my lower back or both calves I scratch like crazy!!! Could it be the iodine in sweat? I'm wondering now as I've been told...
  10. Jane87
    Thank you for the tips! Fingers crossed at the Drs app tomorrow they'll refer me for the bloods and/or biopsy and I'll continue on my gluten and add more iodine in the waiting time leading up!
  11. Jane87
    DH exacerbated by sweat? Any relation/connection there in your experienced opinions? If I flare up on my (as yet unidagnosed) lower back, it's hugely aggravated by exercise as I sweat on my lower back when I run so it makes it even itchier (100 times itchier)!! My youngest said it looks like "bubble wrap" on my lower back. Anyone else have experiences of...
  12. Jane87
    I've been watin I've been eating gluten my whole life (pretty much) and I meant that the last 4 weeks especially (when my rash was flared up again and I was led the possibility of DH) I've eaten more gluten then normal everyday in preparation for getting tested at some point as I've read here that you need to eat gluten daily for the tests to work...
  13. Jane87
    Thanks for that info. Really helpful. I've been eating gluten everyday for about 4 weeks now and prior to me even considering DH I was regularly eating gluten unaware that it could be the problem!
  14. Jane87
    Hi all! I've had invaluable feedback on my first post "Look like DH? Bilateral Itchy Bumpy Elbows" where I've outlined my symtpoms and family history. My elbows are in "remission" following 5 weeks of bumpy rash, just in time for me to attend my Dr appointment on Wednesday. Luckily I have lots of pictures of elbows and other rashes and I've learnt a...
  15. Jane87
    Hi All! I've had a chat on the phone to my mum in advance of my Drs appointment on Weds. Confirmed my family history: Mum = Hashimotos Thyroiditis Lactose intolerant Gluten intolerant IBS IgA Nephropathy (Kidneys) Diabetes Uncle: Crohns Disease & Coeliac Aunty: IBS & Osteoporosis Uncle: Hughes syndrome...
  16. Jane87
    I can't say what it is but just a tip for alleviating dry skin itch: Epsom salt baths every other/every day. I'm looking to be tested for DH (I have a recent post in this DH forum) particularly for my elbows. My calves where I get dry & incredibly itchy with no rash may have nothing to do with DH and for healing dry skin a few handfuls of Epsom salts...
  17. Jane87
    Thanks to everybody that has taken the time to read and reply to me on this thread! One "symtpom" I forgot to mention is one that I've only noticed in the last year. I was reminded as it happened tonight when I got home from work. I was hungry but considering I'd had a filling breakfast, a late lunch and a snack only about 60/90 minutes earlier, I was...
  18. Jane87
    Hi AWOL, that's okay, I don't seem to get notifications unless someone quotes me in their reply. Thanks for your reply. That sounds like a nightmare for you to try and get a help! I'm pleased that you decided to take it in your own hands in the end and going gluten-free has helped you a least a little. I hope you can become more well as time goes on, sounds...
  19. Jane87
    Hi Knittykitty and JMG (Matt). Thank you both for your input about optic neuritis. That is so interesting to learn that it was related for both of you to gluten. Did your sight come back to you Kitty? I'm glad to hear Matt that you have no longer had any episodes since going gluten-free. Mine was sudden onset acute. Treated with IV & oral steroids but...
  20. Jane87
    Thanks squirmingitch, JMG, awol and Victoria1234. I really appreciate everybody taking the time to give me their thoughts. It's interesting to know that the rash can appear erratically. I certainly don't know when to expect mine. Although I'd never thought to suspect gluten before, as I associated gluten intolerance and/or celiac disease with much more...
  21. Jane87
    Thank you for your comments Greenbeanie and Victoria1234 ? Greenbeanie, no I've not been tested for other allergies. I've used latex products fine over the years. I do remember the finger bumps were particularly bad when I'd been using paint a lot one time. When the lower back rash appears it is greatly exacerbated by exercise as that's where I...
  22. Jane87
    Hello wise people! I'm looking for some advice from those in the know. I have a reoccurring elbow rash (bilateral) that comes and goes. First episode about 10 yrs ago at age 20. It presents as skin coloured bumps that are really itchy on both outer elbows. Over the course of 1 to 2 weeks the bumps may turn pinker and then dry out. I saw a Dr...
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