Foreignlady
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Foreignlady
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I am replying to myself in case someone else is interested in whatever I find... We had arepa burgers yesterday, it was awesome. My husband insists that it was better than traditional wheat buns. Similar to pan de yuca, which I have ready to cook on hand (I will report back on how the kids like it later...)... pao de queijo and pandebono. All three...
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Well, there certainly is no lack of ideas and suggestions on how to deal with crosscontamination, but it occurred to me that I can't very well transform my home into a gluten-free zone until the other kids are tested, since they only ever eat at home (not in school or daycare) and would need to keep eating gluten until a biopsy confirmation. In any...
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Thanks for the tips RE: parenting celiac kids, Sienna. As for testing the rest of the kids, our pediatrician didn't think we should screen the siblings yet as they are asymptomatic, (1.5 y.o. twins, 3.5 y.o.) and are all 97th percentile + in growth charts. He was very prompt to test and refer our daughter for diagnosis, which is why we have confirmed celiac...
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Some interesting suggestions there Ennis, thanks! Found another idea: pan de yuca.
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Hi, I am new to gluten-free and it occurred to me that several parts of the world don't rely on wheat in their diet, so I am looking for authentic world cuisine foods to try. At the moment, my quest is for bread substitutes. I have found a few to try but thought you folks might know others. I was surprised that I can't find a thorough list of the options...
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Thanks again for the tips. As for dairy, I won't eliminate without some evidence that she can't digest it. No reason to believe that now, she is not having any discomfort. But I came to terms with something: before worrying too much about crosscontamination, with a 5 year old I need to worry first about the GIANT contamination in the form of food she...
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Thanks to all who kindly shared all this advice. It will be helpful in making choices for my family and trying to keep us all healthy (and sane!).
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Thank you very much squirmingitch for coming to my defense. I literally interrupted my dinner to come post because I am livid. I came here specifically to ask for help coming to terms with the seriousness of this condition. That I should be received this way and that there should be any implication that I mean my daughter any harm is truly offensive...
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Good afternoon, My 5 year old daughter has just received her diagnosis of celiac's disease after a biopsy. I have not met with the gastroenterologist since the diagnosis (apparently next appointment will only be in a few months) and we have been told that we will be contacted for an appointment with a nutritionist in a few weeks. Until then, I am left...
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FYI - Diagnosis confirmed... I'm getting ready to flood you folks with all my questions and concerns. Thanks for the support!
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OK thanks. I guess I should just stop worrying.
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Good morning, I am the mother of a 5 year old who has tested positive on two blood test for tissue transglutaminase antibodies (results, over 300 then 75). She is scheduled for an endoscopy and biopsy next week. I understand that her pediatric gastroenterologist is a celiac specialist so she should be good... My worry is that my daughter's GI symptoms...
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Thanks for the tips about lactose, cyclinglady. I will try using lactose enzymes and reduce her intake of milk just to be safe. Can't hurt. Ando yes, as far as I understand, the rest of the children will eventually get screened, I will ask for it for sure. I guess my husband and I should request screening too if she's diagnosed. I must say it's a rather...
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Thanks for the encouragement Judy. I will definitely seek advice if we have a diagnosis on adapting for baking. My daughter and I have baked together since she was 2 years old and it saddened me to think we couldn't do that anymore. Instead, I now realize we will have LOTS of trial-and-error baking experiments while we learn to adjust. No Trader Joe...
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Thanks Ennis, but we are in Canada. I have learned that gluten-free food is tax deductible as a medical expense here, but that won't offset the cost difference.
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Wow, what a detailed list of resources for gluten-free options. Not sure if all that is available here. Thankfully, I live in a large urban area and there are several local businesses with products for celiac, including an entirely gluten-free grocery store. Is there anyway to test for and confirm lactose intolerance? She consumes TONS of milk, cheese...
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Thanks for the welcome and advice. I really hesitate to alter anything in her diet, especially gluten intake, since her pediatrician and GI specialist were so adamant about not changing anything. As for lactose, is the intolerance associated with celiac manageable with those lactose pills some folks take when eating dairy? I don't know if they are available...
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Hi, my 5 year old daughter is being investigated for possible Celiac disease after several months of GI symptoms (pain, diarrhea alternating with constipation, recurring bouts of severe nausea, vomiting...). She scored >300 on a blood test where normal values are under 15 (transglutaminase antibodies I think). At the moment, we are waiting for the results...
