Alibu
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Everything posted by Alibu
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Question about PPV and NPV of TTG and EMA
Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know, I know! I'm so impatient, LOL!! I'm just one of those people who does not do well in limbo. So I know want to KNOW, which makes me try to seek out answers. I've had a hiatal hernia for years and years, as I've had reflux since I was like 18 (I'm 41 now). I guess the other stuff, I just don't know. I think it depends on what they... -
As I wait (impatiently) for my biopsy results, I've been doing a lot of research about my conflicting test results (positive TTG at 11, where positive is anything over 4, and negative EMA). Everything I've been reading has said that TTG has a positive predictive value of about 90% and that EMA has a negative predictive value of 100%. So according...
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While I'm waiting on my biopsy results, I thought I'd share my endoscopy report to see if anyone had anything to say about them. My TTG was elevated at 11 (lab range was anything over 4=positive), but EMA negative. No IGA deficiency. Pictures included had following captions: 1) Hiatal Hernia 2) Normal mucosa in the whole examined duodenum ...
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I have been struggling with rosacea for years but this is new and different. It's all on my neck under my chin, and I feel like I should be able to squeeze them, but there's nothing in them, if that makes sense. I do have a lot of very small bumps along my jawline but they're all under the skin and I can squeeze some white stuff out of them. I know, gross...
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1st of all my GI is AMAZING. Not only is he a great doc, but he also is just a great guy. We had a great time, LOL!! The findings were: 1) Hiatal hernia 2) Duodenal tissue looked normal, but he took 10 biopsies to be sure. 3) I may have Eosinophilic Esophagitis, which is an chronic allergic/immune response to a certain food (we don't know what...
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My endoscopy is this afternoon. I'm a little anxious because I just want to get it over with. I honestly think there's a high probability of it coming back negative, but it drives me crazy that I won't know for like a week or two, especially with the holiday. Should they tell me how many samples they took? Anything I should make sure to ask, etc....
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A little background: I was recently tested for celiac and my results are not conclusive (positive TTG, negative EMA). I have a biopsy scheduled for tomorrow. I asked my pediatrician if my kids (ages 14 and 11) need to be tested because my TTG was positive, and he ordered the test (he'll pretty much order anything, LOL). Anyway, I'm totally freaking...
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Oh wow!! Ok, good to know, thank you!
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Hi, I have an endoscopy scheduled on Thursday to confirm celiac. I have a positive tTG IGA test but negative EMA. I know they'll take some biopsies and those will take 1-2 weeks to come back, but can they see the damage by sight too? Is it also possible to see absolutely no damage, but then the biopsies come back showing damage? I'm just going crazy...
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In shock and confused!
Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for your response! I guess I'm trying to cling on to the hope that it's a false positive with the negative EMA, LOL. I have been checked for lupus a few times and it's always negative, so that's good. I really didn't expect this to come back positive at all. And yes, I'm eating ALL the gluten while I still can!! -
Hi all! I can't even believe I am on this forum right now! I asked my doctor to run a Celiac Disease Panel to rule it out after dealing with so many digestive and systemic issues for years now. I never in my life expected it to come back positive, but the results are a little confusing and I keep finding conflicting info online. Any help is appreciated...
