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And there’s that brain fog. I went gluten-free the day of my biopsy. The doctor said to keep eating gluten up until then even though we knew it was damaging based on the blood work.

Hi again everyone. I’ve been gluten free for 27 days now, and was officially dx late March with celiac. I received the diagnosis from a nurse over the phone, and my follow up isn’t til late June. I’ve been doing pretty well with everything but have so many questions. When I got my blood work back in December, I upped my gluten intake quite a bit— last...

Yeah I used true health labs. My state actually was one of the blacked out states, but I drove an hour to a draw center out of state. Then I brought he labwork to my primary care and he wrote the referral for the gastro right away.

Haha my husband calls me face blind. There are so many actor pairs that until I saw I side by side I had through they were just one person. Although I think I was thinking Matt damon was Mark walhberg? Lol I would need to see quite the large, multi-ethnic case control study to believe it had anything to do with celiac tho..

This is why I chose a direct to consumer test. I’m sure my doctor may have been open to ordering the test based on my symptoms, but if they weren’t that’s a $300 office visit down the drain, while the test only cost me $200. Hoping for the best for you.

@cyclinglady thanks for the reply, doctor finally called me back shortly after I posted- they think the doctor has the results for review, but they’re changing locations next month and everything’s a mess. When you say put it in writing- do you email your doctor, or physically send a letter? My docs office said they don’t have a secure email and I don...

Hello all- thanks so much for all the kind words on my first post, and hopefully I’m putting this in the right forum! I got my blood work back mid December, and still have not gotten the proper referral from my doctor to proceed with more testing. At first I was going wild eating all the gluten, because I figured I might as well say a proper goodbye, ...

Hi Matt! I think the reputation of being ~gluten free~ is what I’m most worried about. Other than beer I’m not super attached to gluten laden foods, so the diet doesn’t scare me as much , but I’m not always the best at advocating for myself. Hoping overall this experience will be positive and maybe I’ll improve on that skill set now that it’s more of a n...

I definitely will! I had a positive ema iga (among other out of range antibodies) so unless my blood was swapped with someone else’s, i think the diagnosis is fairly eminent, but I do see the utility in the biopsy.

I’m still wrapping my head around bread making me sick! I’ve always been a carb girl- although rice is my favorite, and I never liked pizza or sandwiches until the past few years. I guess it kind of explains why I’m such a bottomless pit haha.

Thanks for redirecting me! Right after I posted I realized I might not be in the right forum. Until having blood work done this past year I thought I had outgrown the anemia, only to find out iron wasn’t my only deficiency. I am a runner though, so I am looking forward to hopefully seeing some changes with that once my nutrition improves. thanks s...

Im so sorry to hear about your family’s reaction. I think if I approach them differently next time I get a bit more understanding, but it is so nice to hear you’ve found a bit of family here i couldn’t imagine dealing with ataxia, is gluten ataxia reversible? I’ve found the most embarrassing symptom (at least I hope it’s related) is my loss for words...

I think I’ve been a little overly emotional lately, but your reply is really nice to read! I do think once the biopsy is over and I start making some real changes Things might set in a bit more and it all just becomes more.. normal? thanks for the reply!

hello! Earlier this month I got my blood work back and it was unambiguously positive. I have my endoscopy next month,so I’m still eating gluten. I feel like this has both upended my life and has been so clarifying for me, but my issue is that none of my friends or family wants to talk to me about any of it. I’m really excited to finally be finding a root cau...