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Geoff01

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  • Gender
    Male
  • Interests
    Geology, travel, scuba, marine biology, cooking, reading
  • Location
    Manila, Philippines

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    geoff_boswell

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About Me

I’m a 56 yr old New Zealander of Scottish, Welsh and Irish descent living in the Philippines. I first started having a gut reaction to gluten at 52 yrs, pinned down the cause at 54 yrs and I believe that long standing idiopathic peripheral neuropathy, headaches, “allergies” and skin complaints since teenage years may be caused by gluten.

  1. Had nerve conduction tests (25% loss M + S) and vitamin deficiency tests. I take vitamin b complex, C and D regularly. but the damage was done in not being correctly diagnosed for 25 yrs. I understand that the nerve damage is permanent and I can feel it relentlessly getting worse by the year. I stay very active and I have cut out ALL cereals. I...
  2. Hi Hector, The gluten-free business has become big business and there are some misconceptions around about what eating gluten-free really means if you have celiac disease. Most celiac are especially sensitive to wheat Rye and Barley but some, perhaps more men, and those with heterogeneous HLA-DQ genes primarily show nerve damage with gut problems manifesting...
  3. I love cheese and don’t have a problem with it. I believe that the fermentation process for strong cheeses destroys the protein that is the problem. I don’t drink much milk.
  4. Hi Hector, please see my other reply to you. Most writers note that gluten only occurs in wheat rye and barley. This is not true or only half of the story. Corn has zein, oats have ovenin and rice has something similar. These are all proteins that do the same job as gluten, discourage animals from over grazing cereal seeds. Most Humans have evolved...
  5. I’ve been struggling with peripheral neuropathy for 30 years but no doctor could work out the cause. Not too bad but has got a lot worse in the last ten years. Now I have significant numbness below the knees, esp in my feet and some burning sensations when in bed. I’m 59 and very active but didn’t realise that I had gluten intolerance until I was about 50. ...
  6. It'sade from milk! Go figure! I buy grated frozen parmesan and keep it in the freezer. Go to the source. The less processing, the less chance of mysterious gluten turning up...
  7. Geoff01

    Rice? !!!

    After the onset of gut problems over 5 years ago I was diagnosed with Celiac. After some experimentation over months (years) I have shown that wheat, rye, barley hurt me. But that Oats, even gluten-free oats hurt me. And now I have realised that I get bloating from RICE!. Living in asia that seems to be the final injustice! I avoid all gluten, Soy...
  8. Thanks. I think? Given that rampant T cell response to ~20ppm gluten appears likely to cause nerve damage for some weeks to months after, I'm still not convinced. I have too much permanent damage to the long nerves already to be an experiment.
  9. This vaccine is all very well and may stop vili destruction but I have significant nerve damage from gluten. I would wonder whether such a vaccine would stop the nerve damaging effects as effectively as a gluten-free diet... the gut reactions are the least of my problems.
  10. Gluten occurs in wheat, rye and barley but all cereals have similar poisonous proteins designed to stop animals from feasting on their seeds. Oats have avenin, rice has orzenin, corn has zein. I seem ok with corn on the cob but I react to corn flour, probably because of the higher conc of bio-available zein in it (most sweet corn grains pass right through...
  11. Dr Ford, Insightful comments! I wish more doctors were as well read as you. I live in the Philippines and I've never had any real help from doctors here but my reasoning has been confirmed as reasonable by a GP and a Neurologist (I'm a scientist and able to understand the biology and genetics of the celiac disease world). Here is what I have said about...
  12. Lectins! Look up lectin intolerance (hint: gluten is a lectin). Huge in legumes. I love my hummus and haven’t noticed this but I do react to beans generally and peanuts. Time for a hummus experiment.
  13. Moggy, sounds like you ate a prepared, processed, quinoa meal. I suspect cross contamination. Having said that, some quinoa strains have been tested as having levels of gluten or gluten like proteins that may cause distress. I assume that a Co preparing gluten-free meals would know this and would use safe strains. Best way to test this will be to...
  14. I’m with Ennis. I get bloated and queasy from beans, and recently found that peanuts give me terrible dreams, bloating etc and spoil the next day. On looking them up, legumes are heavily loaded with lectins. Gluten is a lectin so it’s not surprising that some of us react to lectins other than gluten. A lectin is a plant (carbohydrate?) storage protein gro...
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