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Geoff01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Geoff01

  1. Geoff01
    Had nerve conduction tests (25% loss M + S) and vitamin deficiency tests. I take vitamin b complex, C and D regularly. but the damage was done in not being correctly diagnosed for 25 yrs. I understand that the nerve damage is permanent and I can feel it relentlessly getting worse by the year. I stay very active and I have cut out ALL cereals. I...
  2. Geoff01
    Hi Hector, The gluten-free business has become big business and there are some misconceptions around about what eating gluten-free really means if you have celiac disease. Most celiac are especially sensitive to wheat Rye and Barley but some, perhaps more men, and those with heterogeneous HLA-DQ genes primarily show nerve damage with gut problems manifesting...
  3. Geoff01
    I love cheese and don’t have a problem with it. I believe that the fermentation process for strong cheeses destroys the protein that is the problem. I don’t drink much milk.
  4. Geoff01
    Hi Hector, please see my other reply to you. Most writers note that gluten only occurs in wheat rye and barley. This is not true or only half of the story. Corn has zein, oats have ovenin and rice has something similar. These are all proteins that do the same job as gluten, discourage animals from over grazing cereal seeds. Most Humans have evolved...
  5. Geoff01
  6. Geoff01
    I’ve been struggling with peripheral neuropathy for 30 years but no doctor could work out the cause. Not too bad but has got a lot worse in the last ten years. Now I have significant numbness below the knees, esp in my feet and some burning sensations when in bed. I’m 59 and very active but didn’t realise that I had gluten intolerance until I was about 50. ...
  7. Geoff01
    It'sade from milk! Go figure! I buy grated frozen parmesan and keep it in the freezer. Go to the source. The less processing, the less chance of mysterious gluten turning up...
  8. Geoff01

    Rice? !!!

    Geoff01 posted a blog entry in Geoff

    After the onset of gut problems over 5 years ago I was diagnosed with Celiac. After some experimentation over months (years) I have shown that wheat, rye, barley hurt me. But that Oats, even gluten-free oats hurt me. And now I have realised that I get bloating from RICE!. Living in asia that seems to be the final injustice! I avoid all gluten, Soy...
  9. Geoff01
    Thanks. I think? Given that rampant T cell response to ~20ppm gluten appears likely to cause nerve damage for some weeks to months after, I'm still not convinced. I have too much permanent damage to the long nerves already to be an experiment.
  10. Geoff01
    This vaccine is all very well and may stop vili destruction but I have significant nerve damage from gluten. I would wonder whether such a vaccine would stop the nerve damaging effects as effectively as a gluten-free diet... the gut reactions are the least of my problems.
  11. Geoff01
    Gluten occurs in wheat, rye and barley but all cereals have similar poisonous proteins designed to stop animals from feasting on their seeds. Oats have avenin, rice has orzenin, corn has zein. I seem ok with corn on the cob but I react to corn flour, probably because of the higher conc of bio-available zein in it (most sweet corn grains pass right through...
  12. Geoff01
    Dr Ford, Insightful comments! I wish more doctors were as well read as you. I live in the Philippines and I've never had any real help from doctors here but my reasoning has been confirmed as reasonable by a GP and a Neurologist (I'm a scientist and able to understand the biology and genetics of the celiac disease world). Here is what I have said about...
  13. Geoff01
    Lectins! Look up lectin intolerance (hint: gluten is a lectin). Huge in legumes. I love my hummus and haven’t noticed this but I do react to beans generally and peanuts. Time for a hummus experiment.
  14. Geoff01
    Moggy, sounds like you ate a prepared, processed, quinoa meal. I suspect cross contamination. Having said that, some quinoa strains have been tested as having levels of gluten or gluten like proteins that may cause distress. I assume that a Co preparing gluten-free meals would know this and would use safe strains. Best way to test this will be to...
  15. Geoff01
    I’m with Ennis. I get bloated and queasy from beans, and recently found that peanuts give me terrible dreams, bloating etc and spoil the next day. On looking them up, legumes are heavily loaded with lectins. Gluten is a lectin so it’s not surprising that some of us react to lectins other than gluten. A lectin is a plant (carbohydrate?) storage protein gro...
  16. Geoff01

    Brain Lesions

    Geoff01 replied to jenarella's topic in Doctors

    Great Advice! Also see Dr Hajivassiliou on YouTube and search out from there. It’s a great resource. Research, become an expert. Most doctors don’t have the training to help us. I have UBOs that look like migraine caused, cerebellum damage verging on ataxia, neuropathy in my hands and feet, obviously from years of damage AND celiac gut reactions that cam...
  17. Geoff01
    Hi Bree and JustJ. I’m the same! Never been formally diagnosed as celiac. But boy do I get sick when glutened. The gut reactions came on as an adult. 50ish but I’ve had neuropathy in my legs since I was 25. Although it has progressed slowly, no doctor has ever worked out the cause. My sister is a diagnosed celiac and many of my family have been undiagnosed cel...
  18. Geoff01
    Wow! I'm just seeing this 6 years later. I hope your brother got the memo before now or he may be in serious trouble. All his symptoms can be attributed to celiac disease and if that's the case, he could be a lot worse by now if he still lives on hamburgers and beer. Lots of good advice by all members. Stay on gluten until a celiac disease blood screen...
  19. Geoff01
    Hi Kakaiba, I’m a New Zealander and I’ve lived in the Philippines for 16 years. It has become obvious over some years that I have celiac disease and I have gone gluten-free which is really hard here. I mostly cook at home. Good to know there’s a few others that we can share our stories with here. I’ve had DH twice in 9 years and developed gut rea...
  20. Geoff01
    On furthermore reading and researching I realise that I’ve had Dermatitus hepatiformis at least twice in the last 9 years, both times I think before I started noticing celiac type gut reactions (diarrhoea, constipation, bloating, fatty stools). Interestingly the first time was while I was very sick, The doctors thought dengue fever or some sort of w...
  21. Geoff01
    Hi, Its not so bad really! I really suggest that you don’t look for “normal food” gluten-free look alikes. Just make a break and put together a recipe list that suits you. I have also cut out sugar (still have honey in coffee) and red meat. I feel so much better. Look on Pinterest for paleo and gluten-free recipes. You’ll be surprised how good th...
  22. Geoff01
    Thanks Matt. I’ve also read the papers that suggest that the smallest amount of gluten is likely to perpetuate celiac disease damage. I seem to have most other aspects of my diet sorted. I’ll have to switch to GnT and wine. I sort of know this already. Getting my head around it. BTW, out of interest, can you tell me what your “neuro symptoms” are?...
  23. Geoff01
    Thanks Matt. You're quite right of course. I guess I'm still in a bit of denial regarding beer. Its such an easy sociable drink in this part of the world and anything else is difficult. I've also noticed a reaction to dairy and gluten free oats. I guess I should take all this and all the tests to date to a GI Doc and talk about whether it is celiac...
  24. Geoff01
    I'm male, 55yrs and of European background (NZ). I have lived in the Philippines for 15 years as a scientist/geologist. A few years ago I noticed that i would have diarrhea immediately after breakfast which was toast, butter relish and cheese or jam and coffee. Not sure how long ago this started but maybe 3-4 years. I went through a lot of this at other...
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