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Ranchers Wife

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Ranchers Wife last won the day on September 21 2019

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  1. Ranchers Wife
    My understanding is that it is NOT impossible to have a negative genetic test, and have Celiac disease. It is not likely that someone with a negative genetic test does indeed have Celiac disease. But it is not impossible. There are some uncommon genetic markers that are not included in the current genetic tests, that indicate a possibility of Celiac...
  2. Ranchers Wife
    If you've gone through your food sources very carefully looking for gluten, or cross contamination, and come up with nothing... Look at environmental exposures. Do you have cats or dogs? Wheat or barley are pretty common ingredients in dog and cat food. I use a grain free formula for my dogs, and don't have to obsess about touching the kibble,...
  3. icon Ranchers Wife reacted to a post in a topic: Yeast
  4. Ranchers Wife
    So first off, Cycling Lady's advice is spot on...don't use it, don't buy it unless it is either labeled on the bottle as gluten free, or you make a phone call with a phone number on the bottle and customer service will positively verify that the product is gluten free. If it sounds like the customer service representative is unsure about your question regarding...
  5. icon Awol cast iron stomach reacted to a post in a topic: Holidays and eating at other people's homes
  6. icon cyclinglady reacted to a post in a topic: Holidays and eating at other people's homes
  7. Ranchers Wife
    This is a hard one...because in my experience, yes, absolutely the host/hostess will feel bad. And then try to find something for you. And sometimes, pressure you to eat something that they think is ok as per your explanation...but is not ok as it will be likely cross contaminated. I just will not risk being given something prepared in someone else's...
  8. icon Keight reacted to a post in a topic: Feeling Worse
  9. icon cyclinglady reacted to a post in a topic: Feeling Worse
  10. Ranchers Wife
    Regarding the broth... Almost all broth will contain some form of MSG (monosodium glutamate) which is a source of "umami" flavor, or an intensity of the taste. MSG is a neurological stimulant, and it unfortunately does not limit itself to the taste buds. It is a common migraine trigger, as well as a behavioral trigger for ADHD. You might be sensitive...
  11. icon Ranchers Wife reacted to a post in a topic: Understanding test results
  12. icon NNowak reacted to a post in a topic: Non-Celiac family, can they develop gluten sensitivity by following gluten-free diet
  13. Ranchers Wife
    Mmmmm, chocolate! Kareng brings up an often ignored or misunderstood point: if the doctor runs antibody tests for Celiac disease, and they are negative... and with such information the doctor tells that person that they do not have Celiac disease... it's still totally possible for that same person to test positive for Celiac antibodies in the future...
  14. Ranchers Wife
    So, hopefully you can find a doctor that knows how to deal with a Celiac diagnosis. As far as the home test goes: I don't know what is available in the UK. But as I understand it, the home test in the US is usually the tTg IgA antibody test. This test is the one used for screening, and is pretty accurate. But not at all perfect, for a few...
  15. icon cyclinglady reacted to a post in a topic: Im getting so unwell again...
  16. Ranchers Wife
    Also, many Celiacs don't tolerate xanthan gum well. It can cause bloating, diarrhea, gut pain. Xanthan gum is a common ingredient in gluten free flour, and gluten free baked goods. If you are getting unintentionally exposed to gluten once a week, you need some help staying clean! The Newbie section, as suggested by EnnisTX, is a good place...
  17. Ranchers Wife
    In my opinion, it's your GP that's confused about Celiac disease and antibody testing. Your very high tTg IgA antibody levels should have had your GP sending you immediately to a gastroenterologist for an endoscopy. A slightly high tTg IgA can indicate other disease, such as Crohn's disease: https://www.ncbi.nlm.nih.gov/m/pubmed/21951113/ ...
  18. Ranchers Wife
    I would probably wait for the biopsy, and have your symptomatic six year old tested immediately. If you have other children, test them right away also, symptoms or not, as is currently the standard for first degree blood relatives of a person with Celiac disease. I would very much recommend a gluten free household. If your six year old has Celiac...
  19. Ranchers Wife
    Oh, and to be clear, "cutting back on gluten" to see if things improve can be very confusing and misleading move. If you do indeed have Celiac disease, you have to be pretty much zero tolerance, no gluten ever, no dishes or utensils touching gluten, to keep the autoimmune response at zero. In other words, just picking the croutons off a salad is not...
  20. Ranchers Wife
    So first, I definitely have bladder urgency issues that are triggered by gluten consumption. I get urgency, very bad cramps, and will have blood in the urine when it is really bad. I have been to the ER and to a urologist for the issue, and they just sort of said, sorry, we don't know what to do. At the time of medical attention, I did not know...
  21. Ranchers Wife
    Maybe it's just me... but after all that you've been through, I would confirm that: There were at least six biopsy samples from the duodenum sent to pathology And The biopsies shoe normal villous architecture according to the pathologist s magnified view Before I would agree to more medical testing with this physician. If it turns...
  22. Ranchers Wife
    Well... there are a number of people here, including myself, that never got an official diagnosis. A diagnosis would be nice, but given that a very disruptive spectrum of symptoms that have flummoxed doctors for years.... are gone or minor on a gluten free diet, I assume that I am Celiac. At the very least, it takes a Celiac standards, no cross contamination...
  23. Ranchers Wife
    Go Raise A Really Big Stink. Compare what has happened with the grilled cheese sandwich, with a patient getting the wrong drug/wrong dose of a drug, and the liability and patient harm from that. If your daughter has been diagnosed with Celiac disease, she was unequivocally caused harm by the hospital provided food. Just the same as if she...
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