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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    And the symptom becomes the disease. All it means is that she throws up regularly and they do not know why. Cyclic Vomiting Syndrome (CVS) "Other diagnostic considerations include recurrent pancreatitis, uretero-pelvic junction obstruction, gallbladder disease, hepatitis Have they tested her for vitamin D and homocysteine levels and urine iodine...
  2. Wheatwacked
    The biopsy for dermatitis herpetiformis has to be adjacent to the rash. dermatitis herpetiformis patients with a normal intestinal biopsy and normal celiac serology (blood test) will still respond to a gluten-free diet. dermatitis herpetiformis is commonly diagnosed as eczema. Symptoms normally resolve with a strict, gluten-free diet.
  3. Wheatwacked
    Good job on staying gluten free for a year. Over time the multi may help but for now you need more than the minimum for recovery. The western diet has deficiencies, gluten free copy of western diet even more. Particularly vitamin D, B vitamins, Iodine, Choline, Potassium. High prevalence of vitamin D insufficiency in healthy Irish adults ...
  4. Wheatwacked
    All the more reason to continue it.
  5. Wheatwacked
    Outback Gluten Free Menu
  6. Wheatwacked
    I ate at Outback last night. No problem. They even list their menu and GFD menu on line. Pricey but good.
  7. Wheatwacked
    In addition to Thiamine you should increase Choline. Liver, eggs, beef or increase intake with Lecithin, Choline or Phoshptidly Choline supliments. I went through a lot of Original Alka Selzer. It is aspirin, (Acetylsalicylic Acid) for inflammation and bicarbonate to calm the stomach. Salicylic acid used to be vitamin B11. People used...
  8. Wheatwacked
    I get mine at pipingrock.com. 5. Additional likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable): The ones that helped me the most was increasing vitamin D blood level to 80 ng/ml and recently Iodine to 650 mcg a day, Thiamine, Choline, and Iodine. They are all important. ...
  9. Wheatwacked
    They are in the US but ship to 160 countries including South Africa. https://pipingrock.com/
  10. Wheatwacked
    What is the difference between Iga and tTg Iga?
  11. Wheatwacked
    Are they planning to do the endoscopy looking specifically for Celiac? Despite the agony, be sure she continues eating gluten, about 10 grams a day until all testing is complete. The igA test is 95% specific and 95% accurate for Celiac Disease, so even a negative biopsy does not negate that positive blood test. the proof will come when the testing...
  12. Wheatwacked
    Thanks for the update. That is good news. This was not a misdiagnosis. Children recover quickly once the gluten is out of the picture. Some things just take more time to heal. Three questions though for my curiosity: What is your sons vitamin D now? How did your husbands Gluten Challenge turn out? How did your Gluten...
  13. Wheatwacked
    I like Original Red Bull because it has only real glucose and sucrose sugar water. The sugar is combined with the Essential vitamins and minerals needed to use sugar to create ATP energy. Unlike most of the soft drinks in the American market like Coke, etc,, that all switched to High Fructose Corn Syrup in the 1970s because it was cheaper. Sugar does not...
  14. Wheatwacked
    I wonder what the vitamin deficiency status was in these groups. I believe that GFD alone without improving vitamin and mineral intake will result in slow healing. One needs higher vitamin D plasma levels to control autoimmune sensitivity, that is, control the ttgIga production. More Iodine to breakdown defective cells and others like potassium, choline...
  15. Wheatwacked
    Try magnesium citrate. Comes in 10 ounce bottles flavored cherry, grape, citrus. Each ounce has 580 mg of magnesium so in a glass of water it covers the RDA for magnesium. The whole bottle is used as prep for procedures so is good for constipation. I always forget to put it in my list but I drink 1 oz. cherry magcit and 1 oz tart cherry juice in 16 oz...
  16. Wheatwacked
    People with Gilbert's syndrome don’t produce enough liver enzymes to keep bilirubin at a normal level. The Relationship among Homocysteine, Bilirubin, and Diabetic Retinopathy "present study investigated the association between the levels of plasma homocysteine and serum total bilirubin" Skip to the part they discuss bilirubin and homocysteine and c...
  17. Wheatwacked
    26 U/ml would therefore be positive. Some thoughts on your BAM Bile Acid Malabsorption. Celiac Disease caused villi damage in your ileum could be one cause of your BAM. In addition 90% of westerners do not consume enough choline. Perfect storm. The major fate of choline is conversion to phosphatidylcholine (the main constituent of lecithin...
  18. Wheatwacked
    Was the biopsy done on the rash or skin next to the rash? I'd get a second biopsy done by a dermotologist with experience in dermatitis herpetiformis biopsy. The biopsy must be skin adjacent to the rash. With most other rashes the rash is biopsied. With no other obvious symptoms it is strange. Silent celiac disease with active dermatitis herpetiformis...
  19. Wheatwacked
    Have you considered having the whole family remove gluten? When my son was diagnosed at weaning in 1976 it was recommended by his doctor. We declined. Worst mistake. Life would have been so much better. We both had symptoms, dismissed as normal, that went away when I started GFD at 63. Some from early childhood. It would avoid the "Do as I say" certain...
  20. Wheatwacked
    A study has found a correlation between vitamin D deficiency and psoriasis severity, suggesting that some people who increase their intake of the vitamin could better control this skin condition. Vitamin D modulates autoimmune responses. In the sixties a sandwich and glass of milk contained 300 mcg of iodine. Since 1970 the daily intake of iodine is...
  21. Wheatwacked
    Inulin is a nondigestible oligosaccharide which seems to regulate the intestinal transit and the stool consistency and frequency, and to modulate the immune response. Moreover, inulin is considered a prebiotic, characterized as ‘functional fiber. Inulin-type fructans have been used in infants and children because of their prebiotic potential to modulate t...
  22. Wheatwacked
    Increase your Choline. Eggs, liver, beef or boost intake with choline in a bottle. Linus Pauling Institute: Choline although there are other vitamins that will cause it, 90% of western world does not have adequate intake. I've recently upped my iodine to 500 mcg - 1200 mcg a day by taking 10 to 20 drops of Strong Iodine in any drink. Seems to be helping...
  23. Wheatwacked
    Start her gluten free journey with your support by also going gluten free. A biopsy would give you a baseline of damage if it is bad enough and they look in the right places. Joining your daughter would almost make it moot. There are many cases of postitive serology and negative biopsy and vice versa. It takes some 10 or more years of being told...
  24. Wheatwacked
    He is wrong. It is not uncommon for it to take 10 or more years to be diagnosed with misdiagnoses of other diseases along the way. "To make matters more challenging, celiac symptoms can also mimic symptoms of other diseases, such as anemia, Crohns disease, gastric ulcers, irritable bowel, parasitic infection, even various skin disorders or nervous conditions...
  25. Wheatwacked
    Low vitamin D can disrupt intrinsic factor production in the stomach mucosa leading to a cascade effect on B12 absorption and to Pernicious Anemia. Since doctors rarely test for vitamin D this is often missed.
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