Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Wheatwacked

Moderators
 View Profile  See their activity

  • Posts

    1,940

  • Joined

  • Last visited

  • Days Won

    39

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    All of the above posts have good information, and I'll give you some specific steps from my recovery, in addition, to maybe quicken your healing. An appointment with a Nutritionist familiar with Celiac Disease would be helpful to you. You have malnutrition and that is why the doctors are baffled. Take a thiamine supplement or benfothiame...
  2. Wheatwacked
    Hopefully it will be an endoscopy of the small intestine and they take several biopsies specifically looking for celiac disease and not just a gastrosopy (stomach). Many are told to continue eating gluten because their tests just are inconclusive according to the accepted cutoffs. It seems 10 years to finally get a Celiac Disease diagnosis is not uncommon...
  3. Wheatwacked
    Budesonide is a corticosteroid that like prednisone. It's advantage is that is doesn't seem to cause Secondary Adrenal Insufficiency. If it helps, take it. As you heal from the Gluten Free Diet and replete your vitamins and minerals and start to store some, your need for the Budesonide will go down. Not remission, but healing. I needed 30 mg and...
  4. Wheatwacked
    work on increasing choline. very common response.
  5. Wheatwacked
    Hi Ellis Aust. I agree with trents and would double down. An endoscopy with Celiac biopsies may show how much damage in your small intestine. Many have said they are negative for blood tests, yet are positive on biopsy. And vice versa. Vitamin and mineral deficiencies to look for. Liver enzymes - insufficient choline intake. Especially...
  6. Wheatwacked
    Quite the journey. I emphasize with you and am sorry for your losses. The key to recovery has to start by fixing your nutritional deficiencies. Since you are on a very restricted diet, and I truly understand your hesitation to change anything you need to fortify your diet. Perhaps a doctor who specializes in malnutrition can help you. But find someone...
  7. Wheatwacked
    Are you on other meds, like blood pressure, cholesterol, or diabetes. They can have debilitating effects on us. Talk to your doctor about them.
  8. Wheatwacked
    I did not mean to say you don't have MLC but that they are missing the cause: malnutrition due to (at this point )assumed) Celiac Disease caused malabsorption syndrome and food avoidance. What I think is to start GFD and vitamin replenishment to start healing. When you are feeling better, then go back and do the Gluten Challenge to verify. If you improve...
  9. Wheatwacked
    This could be a misdiagnosis of Choline Deficiency. primary source is eggs, beef and liver. Diahrrea will cause Potassium depletion. Virtually everyone who is sick has low vitamin D. NHANES study, vitamin C deficiency or depletion existed in 32% of women ages 25–44 in the US. As knitty kitty said, it looks like a gluten challenge would do more h...
  10. Wheatwacked
    Good luck. Don't be a stranger.
  11. Wheatwacked
    Glutamate: The Master Neurotransmitter and Its Implications in Chronic Stress and Mood Disorders Consumed in controlled quantities, free glutamate (as distinct from glutamate contained in protein) functions as a neurotransmitter and building block of protein. Does “glutamate” in a product mean it contains gluten? No—glutamate or glutamic acid ...
  12. Wheatwacked
    If you eat it and doesn't cause you distress, probably OK. It it causes you distress, avoid.
  13. Wheatwacked
    I like to think of the vitamins and minerals as the tools our body uses to process the raw materials in proteins and fats. Like a factory, if you are short a tool, the whole assembly line is slowed.
  14. Wheatwacked
    This chart of vitamins and minerals may help to see the big picture. Here is the list of what I take. I am finally at the point where I can skip days. If you like spreadsheets you can track and total your daily intake using the National Nutrition Database. FoodData Central I think there are websites that say they do it. I used SR28 for mine. ...
  15. Wheatwacked
    Diarrhea is when your stools are loose and watery.There is a strong cultural pressure to blame most symptoms on any thing but gluten found in wheat barley and rye. It is addictive. On a gluten free diet you will not be getting vitamins and minerals that non gluten free foods are fortified with. They are fortified because the western style diet has...
  16. Wheatwacked
    I wear my mutifocal contacts 24/7 and take them out to replace on average, every 6 months. -10 diopter. I rotate between store brand plain optical saline, Refresh, Vision Clarity and Baush and Lomb Eye Relief. Antioxidents like vitamin C and Taurine (essential amino acid may help, food sourced vitamin A . Iodine from kelp has helped my eyes, My...
  17. Wheatwacked
    Hi Sammy7 One of the effects of Celiac Disease is malabsorption of essential vitamins and minerals. Unfortunately it seems that most doctors are happy with, "You have Celiac Disease. Don't eat gluten. Goodbye". Even on a nutritionally complete gluten free diet, most will still have vitamin D deficiency. It is more of a cultural thing. We are advised...
  18. Wheatwacked
    You can use the NIH Fact Sheets for professional to check. for example Google: "fact sheet vitamin D"
  19. Wheatwacked
    The blood test for homocysteine can be an indication of B12, Folate, B6 and Choline status because these are the vitamins that re-methylate homocysteine to methionine. High homocysteine is an independant marker of cardiovascular disease and inflammation.
  20. Wheatwacked
    Almost every article you read about vitamin D emphasizes the danger of too much. Hypervitamosis D is actually quite rare. It seems to go back to an epidemic of infant deaths in the UK due to a manufacturing error in baby formula. They added a thousand times the safe upper limit of vitamin D. I think probably because they used milligrams instead of micrograms...
  21. Wheatwacked
    Dr Brownstein is one of the leaders in Iodine. Here is a link to an interview with him. Why You NEED Iodine - Discussion with Dr. David Brownstein How we got here. The Wolff-Chaikoff Effect:  Crying Wolf?
  22. Wheatwacked
    While it is true that one can't rule out another disease it is far more likely that you have malnutrion with symptoms that mimic the other disease. For example, gall bladder problems and Non Alcoholic Fatty Liver Disease are often simply insufficent Choline intake. They have been recommending that we limit eggs, liver, and beef (the main source of choline...
  23. Wheatwacked
    When you eat gluten free you are not getting the vitamins that are required in non gluten free foods to be fortified. It's not that a gluten free diet is inherently deficient, but the Western Diet is and we continue to eat a Western Diet just without the gluten. There are several different vitamins that could be causing your peripheral neuropathy...
  24. Wheatwacked
    This study was in 2014 in Denmark. Sadly, it does not look like there was much follow up. Then there is the increased cancer risk of vitamin A and E supplements and folic acid. The effect of folic acid on the endometrium hasn't been studied as much as the prostate. "The reproductive systems of the male and female have some basic similarities and...
  25. Wheatwacked
    Increasing your iodine intake may improve your healing. It has mine. The Silent Epidemic of Iodine Deficiency In the developed world, iodine deficiency has increased more than fourfold over the past 40 years. Nearly 74% of normal, “healthy” adults may no longer consume enough iodine.
×
×
  • Create New...