Wheatwacked
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Wheatwacked
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Shaking/Tremors and Off Balance
Wheatwacked replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Whatever the doctors decide, you can not eat wheat. Chasing an official diagnosis is up to you. In addition to the damage the wheat does, it also causes malabsorption syndrome, so even if you eat the same as the next guy your small intestine does not absorb it so you are also dealing with malnutrition. The solution is avoid wheat, rye and replete your... -
Hi @V.Beth Are you taking any vitamins?
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Confused is an understatement
Wheatwacked replied to beyondbabs23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is not your ignorance but your doctors ignorance that is concerning, That’s why the moral of the story at this time is to evaluate how you feel when you eat 100% gluten-free for a couple of months. Until we have highly sensitive tests we can rely on to accurately diagnose gluten sensitivity, diagnosing will involve “building a case” by pulling toget... -
Other Foods That Cause GI Distress
Wheatwacked replied to brightspirit85's topic in Related Issues & Disorders
For most adults to not have lactose intolerance one needs to repopulate their gut with lactobacillus from salt fermented pickles, sauerkraut, olives. Other probiotics can also help like bifidobacteria. Are you getting enough choline from eggs, meat? It is impotant for fat digestion. It can cause false diagnosis of gall bladder disease. -
Too early for diagnosis?
Wheatwacked replied to JForman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is a food list for choline in this fact sheet from NIH Choline Fact Sheet for Health Professionals the safe range for a 6 year old girl is 250 mg to 1000 mg. Beef, ground, 93% lean meat, broiled, 3 ounces is 72 mg. Egg, hard boiled, 1 large is 147 mg. Lecithin contains about 3–4% choline by weight. That's not considering t... -
I think I’ve got it ?
Wheatwacked replied to Chrissyjo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Call and verify you are getting an Endoscopy with Celiac Biopsies. A simple gastroscopy won't clarify anything regarding Celiac Disease. With the family history you have it is virtually a slam dunk. When testing is all done, and they have no answers it will be time to trial Gluten Free diet for at least a few months. Many are negative biopsy... -
Too early for diagnosis?
Wheatwacked replied to JForman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is often deficiency of choline, primary source is eggs, liver, beef. Choline deficiency results in hepatic steatosis. -
Too early for diagnosis?
Wheatwacked replied to JForman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since you are gluten sensitive, and your daughter has positive tests and the doctors don't have any ideas that help, the next step is a Gluten free diet. It does'nt really matter Celiac or NCGS. The only treatment is avoid gluten. Don't make her suffer because of medical beauracracy. Vitamin and mineral deficiencies are common in Celiac Disease. This... -
Blunted villi almost 4 year after diagnosis
Wheatwacked replied to Raquel2021's topic in Coping with Celiac Disease
That's the vitamin D working for you. Pipingrock.com has Liquid Vitamin D3, 5000 IU, $3.50 118 Servings Per Container. double the dose for 10,000 IU. Between malabsorption and avoiding foods and losing the fortififications required in gluten foods (what? our american diet is deficient? There is a reason governments require fortification. Gluten... -
Lecithin is a source of Choline.
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- food intolerances
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Liquid lunch, Most of the market is in Quick Pickles which gives it the flavor but not the nutritional value. Thats what salt fermentation is for.
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trents, Naturally Fermented Pickles [The Complete Guide] I made my own for a while. The hard part was finding the right container. Made 16 at a time and were half sours in a few days. Put in the fridge to stop fermenting and they last. They are cheaper to make yourself, get Kirby pickles in season at the farmer's market to make your own. Plus...
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Get lots of lactobacillus into your gut. Fermented pickles are a good source. The quick pickles you see on the store shelves made with vinegar are not a good source. After a few months try Grass Fed milk. Most people are lactose intolerant without the lactobacillus excreting lactase into your gut. Our western high carb diet tends to kill them. Vitamin...
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Any research is good research. While waiting for these drugs, just raising vitamin D in the 42% of the our population that is deficient would be an economical and efficient solution. Plus vitamin D does it all, not just interferon gamma. "One of the key findings was that ZED1227 blocked the immune response driven by interferon-gamma"
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I feel like I'm a conundrum....
Wheatwacked replied to zebra1975's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your IGA deficiency will cause false negetives in your blood tests. It takes a lot of damage to get a Marsh 3. You are lucky. It really doesn't go away. They are correct. Immunoglobulin A (IgA) deficiency is 10 to 15 times more common in patients with celiac disease (celiac disease) than in healthy subjects. This itself could... -
Ingredients with B vitamins
Wheatwacked replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
meat (especially liver), seafood, poultry, eggs, dairy products, legumes, leafy greens, seeds. I could not get enough iodine from nori. I use Liquid Iodine or Nascent Iodine to get daily 500 mcg to 1500 mcg a day. RDA in US is 150 - 1150 mcg a day. In Japan it is 150 - 3000 mcg a day. Improves muscle tone, skin, hair nails, siow wound healing (including... -
Seeking proper diagnosis
Wheatwacked replied to Julianne101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So the BRAT Banana, Rice, Applesauce, Toast (hopefully gluten-free) is very high carbohydrate. High Carbohydrate Malnutrition is real. Carbohydrates need increase the amount of Thiamine you need, so thiamine is high on the list of supplements that will help the most right now. For general pain and gut issues Alka Seltzer Original. You could try Willow... -
Mast Cell Activation with Gluten reaction
Wheatwacked replied to KelleyJo's topic in Related Issues & Disorders
The krill oil is omega 3. Higher ratio of plasma omega-6/omega-3 fatty acids is associated with greater risk of all-cause, cancer, and cardiovascular mortality: a population-based cohort study in UK Biobank Here is a list I found Vegetables: Contents of Omega – 3 and Omega – 6 -
Mast Cell Activation with Gluten reaction
Wheatwacked replied to KelleyJo's topic in Related Issues & Disorders
Good start. Additional likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable): the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 650 mcg a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D to control autoimmune, improve... -
New and Frustrated
Wheatwacked replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Some people are seronegative and biopsy negative and still have Celiac Disease. You have the genes and the symptoms. Depending on your comorbid deficiencies you should notice some improvements quickly but it can take years to fully heal. Here are what I went through. They will help you heal faster. It took years for me to identify them so your... -
Mast Cell Activation with Gluten reaction
Wheatwacked replied to KelleyJo's topic in Related Issues & Disorders
Don't underestimate the value of thiamin. I get a cramp in my feet after sleeping about an hour and a half, sometimes. It points my big toe straight up and twists my ankle. Getting up, relaxing my ankle and doing anything for a half hour works, but then it comes back. I found that 250 mg 3 times a day and it doesn't happen. -
Mast Cell Activation with Gluten reaction
Wheatwacked replied to KelleyJo's topic in Related Issues & Disorders
I started a 1000. Worked my way up over time until the third day at 10000 it was "Wow this is sunshine in a bottle. But yes. A good idea to get your blood tested for PTH and 25(OH)D though as a precaution. There is a belief the old people should suppement them together for osteoporosis but after 50 years the evidence still does not support it. Besides... -
Mast Cell Activation with Gluten reaction
Wheatwacked replied to KelleyJo's topic in Related Issues & Disorders
Hi @KelleyJo. Welcome to the forum. People with hypermobile Ehlers-Danlos Syndrome (EDS) are more likely to have low levels of vitamin D. Vitamin D plays a key role in stabilizing mast cells and preventing their inappropriate activation Vitamin D: A common deficiency in people with celiac disease most people reporting... -
Arthritis and Coeliac Disease: Can Turmeric Help?
Wheatwacked replied to cristiana's topic in Related Issues & Disorders
Try reducing your omega 6:3 ratios. That is why fish oil works, but it is better to simply choose foods that are low in omega 6. And increase potassium intake. Similar to the DASH diet. Increasing the potassium to salt ratio above 2:1 is heart healthy, but the DASH diet did it by restricting salt instead of increasing potassium. Potassium deficiency...