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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. I commisserate with your story. My wife's was almost word for word. A nurse, allergies, miscarriages, endometriosis, passed of malnutrion after chemo for ovarian cancer at 57. Our son born in 1976 bloated up like a Biafra famine baby as soon as he was weaned. Was colicky from the get go. My mom just said that I got what I gave. Found a pediactric GI who was...
  2. Solgar is the only brand I've found of Thiamine HCl 500 mg. It is free of gluten. The WHO uses a test of 500 mg/day. If symptoms improve it is thiamine deficiency; treatment is to continue. Benfothiamine is a fat soluable synthetic form of thiamine that may work quicker at a lower dose but I think is more expensive. @knitty kitty has the experience with it...
  3. All those symptoms sounds suspeciously like Thiamine deficiency. "The total amount of thiamine in a person is approximately 30 mg, an amount which can be depleted within 2-3 weeks....The refining process for various foods, including rice and wheat flour, results in loss of thiamine (among other nutrients)... In fact, the widespread outbreaks of beriberi...
  4. A serious comorbidity with Celiac Disease is vitamin and mineral deficiencies. There are around 20 absorbed in the small intestine at risk. I have found Inulin (soluable fiber) helpful when I get bloated and anorexic.
  5. We could add to the mix that while only 1% of the population are diagnosed with Celiac Disease, 10% of the population are diagnosed with Non Celiac Gluten Sensitivity and the jury is still out whether NCGS is a precurser to Celiac. That raises the percentage to 11% that have serious problems with Gluten. And that doesn't include the people with Gluten Sensitivity...
  6. For taste and mouthfeel I prefer Ronzoni gluten-free.
  7. Vitamin D intoxication associated with hypercalcemia, hyperphosphatemia, and suppressed parathyroid hormone level is typically seen in patients who are receiving massive doses of vitamin D in the range of 50,000 to 1 million IU/d for several months to years. Total Vitamin D Intake and Risks of Early-Onset Colorectal Cancer and Precursors Calcium...
  8. The retrospective study, to be published in Mayo Clinic Proceedings in September, found that 44% of screened first-degree relatives had celiac disease. Of those patients, 94% had symptoms that were not classic or had no symptoms at all. Mayo Clinic study calls for screening of family members of celiac disease patients August 22, 2019
  9. Since the publication of the guideline in 2013 And that was the belief in 1976 when my son was diagnosed. More recently the Mayo Clinic has upgraded that to 47% of first degree relatives.
  10. You won't be doing her any favors. Make sure she gets plenty of sun for vitamin D, it's the autoimmune vitamin. Stomach acid can break down small amounts of gluten from cross contamination. As she grows there will be enough peer pressure to eat gluten (kids are like that) so teaching her that sometimes it is ok will open a can of worms eventually opening...
  11. "Organic farmers cannot use glyphosate at any point in food production, and their crops are highly regulated and monitored carefully during the certification process. If contamination from any chemical, including glyphosate, is present, organic farmers cannot sell that crop as certified organic.... The best way to ensure you are not consuming products sprayed...
  12. When you give up gluten you give up some vitamins and minerals that are added to fortify our diets. Some like choline we already are low in because we're educated that a healthy diet limits eggs, liver and beef, the major dietary sources. To reach the RDA one needs to eat a minimum of 4 large eggs a day. Or one can eat 10 cups of cooked brocolli. But many...
  13. It's called Seasonal Affective Disorder. Summer is the only time you get enough vitamin D from sunlight. The rest of the year we use up out stored reserves. Anything more than 29 ng/ml vitamin D blood plasma is considered as sufficient, enough to keep Rickets and osteomalacia at bay, but the normal level is 70-90 ng/ml. You need lots of unprotected sunlight...
  14. I get my iodine by eating a sheet of nori with my breakfast coffee. It takes 3 sheets for the RDA 125 mcg. The upper limit is 1100 mcg and the Japanese eat three times that. Iodine Fact Sheet for Health Professionals
  15. Choline is the most abundant salt in BILE and helps keep bile healthy. This powerful nutrient has been shown to improve many health conditions, including, ALL neuro-degenerative conditions, liver conditions, cognitive performance, fetal development, even glaucoma. https://www.panaceanutritionals.com/blog/2018/10/27/choline-the-most-important-nutrient-of...
  16. I would suspect malnutrition, especially if you have Celiac Disease. There are a lot of vitamins and minerals that are affected by malabsorbtion syndrome and many that are just deficient in the SAD diet and more so in the Gluten Free SAD diet. Vitamin D is the mother supreme of our immune system. Low vitamin K will cause bruising. Low iodine and other antioxidents...
  17. You can be reacting to the Roundup independantly of your celiac disease. If you really want to prove you don't have celiac disease, eliminate all Roundup contamination and do a gluten challenge with a safe source of gluten. While celiac can mimic hundreds of other symptoms it does not preclude other toxins and infectious diseases and other diseases don...
  18. While waiting to complete testing for your diagnosis, you can start to replenish the vitamins and minerals deficiencies caused by malabsorbtion due to autoimmune villi damage caused by Celiac Disease and the SAD standard American diet. My personal feeling is that if any test is positive it is just a matter of time until it gets worse. The official diagnosis...
  19. "The Truth Is Out There." - Mulder
  20. That is good news. Finding what you can eat is going to be trial and error. That is the reason for taking vitamins. To ensure your body has the tools to utilize the carbs and fats and proteins. For a weird example, I fasted 36 hours, wasn't hungry so I didn't eat, (black iced coffee only) my blood sugar goes up (500 mg Thiamine HCL daily). Next day I ate...
  21. Please tell me this is all normal for celiac!! Yes it is and more. What Are the Symptoms of Celiac Disease? Is the doctor that says you are not vitamin deficient the same one who says you are not Celiac diseased. Not enough choline. You can believe her or your own body. Vitamin and mineral blood...
  22. This may explain some of your issues. Typical store-bought grain-fed beef has an Omega-6 to 3 ratio of 20:1. Grass-fed beef has a ratio closer to 3:1, well within the 4:1 guidelines of a standard healthy diet. Commercial dairy has a ratio of 5:1; Organic dairy 3:1; and 100% grass fed 1:1. So at least while you are healing try to stick to grass...
  23. The best way to quiet your autoimmune system is by raising your vitamin D level. Mayo Clinic Proceedings: Vitamin D Is Not as Toxic as Was Once Thought Ekwaru et al recently reported on more than 17,000 healthy adult volunteers participating in a preventative health program and taking varying doses of vitamin D up to 20,000 IU/d. These...
  24. What kind of vitamins were they? In a multivitamin or separates, or a targeted supplement? I get most of my vitamins from PipingRock.com, best prices I find and professional. $15 for 250 capsules of 10,000 IU of vitamin D. Cheaper than a psychiatrist visit. It begins to work in days. At the beginning of summer (first day of hurricane season) I...
  25. I noticed that Gluten free Oreos used to be close to the same price as the rest of the oreos, about half the price of other gluten free cookies. Now the price is double.
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