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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    Hi Erica, I'm glad you have your diagnosis, now you can move forward and get even better than you were. Thoughout both threads I don't see any mention of vitamins or a nutrient dense diet. Celiac Disease is a disease of malabsorbtion. Here's what the Merck Manual says: "Celiac disease is an immunologically mediated disease in genetically susceptible people...
  2. Wheatwacked
    Now that your gut is healing you will start to absorb more. Your location in the midwest puts you in the Goiter belt so a good chance you are deficient in iodine. It seems that doctors can only prescribe vitamin D2 which is half as effective as D3. It's an insurance thing. It is hard to find 10,000 IU D3. PipingRock.com carries it in 250 capsule...
  3. Wheatwacked
    Here is a starter list of symptoms of Celiac from an article on Celiac.com. https://www.celiac.com/celiac-disease/what-are-the-symptoms-of-celiac-disease-r1090/page/12/#comment-22626 Abdominal cramps, gas and bloating Acne Anemia Ataxia (gluten ataxia) Borborygmi—stomach rumbling Coetaneous bleeding Delayed puberty ...
  4. Wheatwacked
    GFD saved my life. Vitamin D may it worth living.
  5. Wheatwacked
    The way I read that report is the guy that did the endo believes it is Celiac Disease, but doesn't want to step on the prescriber's toes. Your bloodwork also classic Celiac. Most of the other symptoms are often found to improve with GFD and vitamin therapy. There are upwards of 200 symptoms that can be caused by malnutrion as a result of Celiac Disease...
  6. Wheatwacked
    Hi Ericagl?. You can probably relax. I can't think of anyway the cutter could be contaminated with gluten but there might be residuals from the manufacting process. As you are so sensitive may I ask what your vitamin D plasma is? Most Celiacs are low to deficient unless they take steps to improve it and it is essential to autoimmune and mental health...
  7. Wheatwacked
    Kind of defeats the purpose of PPIs - to reduce the acid put out by the stomach's Hydrocholoric Acid producing proton pumps? I think originally PPI were used to give the stomach lining a chance to heal from ulcers but nowadays you can get them over the counter so you can eat Pizza. I prefer Alka Seltzer and foods high in omega 3.
  8. Wheatwacked
    Giving up the gluten lifestyle is like losing a loved one. There may be a period of mourning and thats ok. After all, your entire life you were told it is an essential part of your life and in the end it is not a good friend at all. Lots of vitamin D is your friend. I have taken 10,000 IU (250 mcg) a day since 2015. It gave me hope. I did not start GFD until...
  9. Wheatwacked
    @knitty kitty mentioned in a recent post that she uses Lugol or Tincture of iodine to paint a patch for absorbtion through the skin and it does not cause an outbreak of her DH. I have read about the skin patch test and some say it is valid, others say it is not reliable. How to Perform the Iodine Patch Test. After about 2 weeks of eating one...
  10. Wheatwacked
    The aspect of Celiac Disease that is often diregarded by doctors is malabsobtion syndrome. There are some 20 essential vitamins and minerals that are absorbed in the small intestine that can be affected and if one is, so may be others, each with its own set of symptoms. That your brother is also experiencing symptoms often comorbid with Celiac increases your...
  11. Wheatwacked
    This vitamin chart below might help in your quest. I thnk the risk of toxicity is much less than the effects of deficiency and is easily reversed. "Urinary iodine reflects dietary iodine intake directly because people excrete more than 90% of dietary iodine in the urine" NIH Iodine Fact Sheet for Health Professionals "Over the last...
  12. Wheatwacked
    Tamari Sauce is soy sauce made without wheat. Funny that wheat is first in the ingrediant list of most soy sauces.
  13. Wheatwacked
    Our lactose tolerance as adults depends on the lactobacillus that live in our guts. Somehow they get killed off and we no longer have the lactase they produced. I restored mine by making my own salt fermented dill pickles for a few months. The other thing is that commercial dairies use feed additives to increase production and that increases the omega 6 to...
  14. Wheatwacked
    If you are iodine deficient or just at the minimum RDA those testosterone supplements won't help. In the US intake of dietary iodine is half what it was in 1970. No wonder there are so many ads on TV for testosterone boosters. Increase your iodine intake. Save your money. Boosts the immune system and has anti-bacterial and anti-viral properties Is...
  15. Wheatwacked
    I started taking 10,000 iu a day in May 2014.. I took until 2019 to get my plasma up to 47 ng/ml. In another two years i reached 86 and the next test was 80. It's been stable at 80 for about 2 years now. My last test I stopped taking it 3 weeks before the blood draw and my D plasma dropped to 72. The doctor said to continue. At first I read your post.as ...
  16. Wheatwacked
    The following is a long winded way of suggesting to increase your intake of vitamin D, vitamin B6, vitamin B12, Choline and Folate. It may help. It won't hurt. It looks like the name of your symptoms is MCS Multiple Chemical Sensitivities. Very little research has been done. The medical industry simply recommends avoidance. As you said No Clue. In...
  17. Wheatwacked
    Susie, I agree with you about the Prolia. To me the potential side effect damage could be worse. The NWHN is concerned that for most postmenopausal women the benefit of denosumab does not outweigh the risks. We recommend that women seeking osteoporosis treatment approach denosumab with caution. A 70 year old produces 10% of the DHEA compared to...
  18. Wheatwacked
    He is in denial. Low vitamin D is common in Celiac Disease and affects mental health and autoimmune diseases in addition to bones. Vitamin D and Depression: Where is all the Sunshine? If you are struggling with stress, fear, depression, and self-defeating thoughts. It’s not your fault. Dr Amen
  19. Wheatwacked
    Iodine was actually the first mineral I identified as a deficiency. I tried some expensive supplement brand but it didn't seem to do anything but lighten my pocket. The first thing I noticed was my upper chest and arms felt more toned. One sheet weighs 2.5 grams. ONE ORGANIC’s roasted seaweed (yaki nori) is 100% natural and certified USDA organic. ...
  20. Wheatwacked
    The important aspect of Celiac Disease is the malaborbtion. Even after starting GFD you need to address the low vitamin status. Low Choline intake can cause gall bladder problems, neuro problems. Vitamin B1 can cause all sorts of problems from fatigue to neurapathy and beyond. vitamin D is classically low and can cause depression, bone loss, other autoimmune...
  21. Wheatwacked
    I do that. One day I'll wake up and be so tired I just go back to sleep. Wake up for a bit, have some coffee and a little food then go back to sleep. Repeat several times until the next morning. No clue why, I figure cumulative sleep deprivation catches up with me. Gluten free since 2014. It is not a gluten x-contamination issue. Not low blood sugar. At his...
  22. Wheatwacked
    The fastist way to tell if it is choline is to use choline supplements. The upper limit is 3500 mg. I take 840 mg of phospotidly choline, it's more like the food sourced, but is only about 500 mg of choline. You'll know in a few days if it helps. Even if it doesn't, the extra goes to free up folate so it can do its other jobs.
  23. Wheatwacked
    If you are eating processed gluten free food, they add stuff that you may be reacting to. My go to for upset stomach is Alka Selzer. Fun fact alka seltzer original is sodium bicarbonate, citric acid and acetlysalicilic acid (aspirin). vitamin B11 is Salicylic Acid. It came from Willow Bark tea, used by Native Americans. Vitamin B11 (Salicylic acid) : The...
  24. Wheatwacked
    A quarter cup 45 grams of Cream of Rice has been gluten free forever. It has 150 calories, 25% RDA of B vitamins, 70% rda of iron, no sugar, sodium or fat, 2 gm protein. It's right next to the Cream of Wheat in the supermarket.
  25. Wheatwacked
    This sounds like a good idea, especially for DH. Iodine is not optional, it is essential. Any way, I am going to stick with my nori wrapped around an ounce of Nova lox 👍
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