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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    I am glad it works for you but I wonder if you are vitamin deficient. Given the typical diagnosis time frame of 10 years for Celiac Disease you are ahead of the curve. But I believe that if a treatment takes more than a short time to show any effects, it is not the optimal treatment. I was so sick I could only lie in bed and listen to TV. Any movement was...
  2. Wheatwacked
    Looks like a duck, quacks like a duck. You get sick eating gluten. If the doctor can't prove that it is, are you planning to eat gluten? Not proving it is, is not the same as proving it is not. Be sure to get enough of all the essential vitamins; especially D and you'll do fine. The hard part is dealing with the social abuse.
  3. Wheatwacked
    I had a similar incident a few times. It came on suddenly as I was eating. It was the same food I've had many times so gluten was not the issue I think. Suddenly my brain started spiraling down, out of control nearly blacking out like the time I had laughing gas at the oral surgeon, then I thew up everything, got chills and shakey, then massive diahrea and...
  4. Wheatwacked
    I have no doubt those deaths might have been a result of malnutrition. I do understand your anger. We've been misinformed and possible downright lied to. I see the same pattern in my family. I believe in addition (though limited evidence) that Karen Carpenter and Elvis would be alive today had they been treated with GFD and vitamin replenishment. New studies...
  5. Wheatwacked
    Aside from the bad reaction did it lower your BP? Ask to try clonidine or atenolol. Not only does it lower my BP to around 130/70 in within 2 hours, lasts 4 hours and I notice a calming effect. I have untreated ADD at 71 years. My previous doctor sent me packing because he decided I was not compliant because the C channel blockers did not work as he expected...
  6. Wheatwacked
    The theory is that the dry toast soaks up the acid and gives you carbs for energy. A long held mistake. Mine was saltine crackers with butter. My wife chose English muffins. Karen Carpenter was crackers and cheese, as I remember. Elvis was peanut butter sandwiches. Trouble is that if it is Celiac you are adding to the inflamation. If it is H. Pylori they...
  7. Wheatwacked
    Two things almost guaranteed. Low vitamin D and insufficient Choline intake. Low choline leads to non Alcoholic fatty liver. Possible Role of Vitamin D in Celiac Disease Onset "Physiologically, choline is critical for a number of functions across the life cycle which include wide-ranging roles in human metabolism from neurotransmitter synthesis...
  8. Wheatwacked
    I cannot tolerate the common BP. Most are diuretics and they cause me big problems. Nothing to do with Celiac. Atenolol and Clonidine lower my BP up to 40 points. They don't know why they work but they can also be used to treat adult ADHD. I can drink a double espresso and go to sleep. SSRI's make me twitch and keep me wide awake. Be aware that...
  9. Wheatwacked
    Natural tendency to fear worst case. So many on this forum were misdiagnosed only to learn it was Celiac Disease all along. To really get a scare look up "200 symptoms of Celiac Disease". It can mimic anything because of autoimmune response and vitamin deficiencies. Once you start GFD and or correcting malnutrition you start healing so you will need...
  10. Wheatwacked
    Sugar and carbs feed the bad bacteria like H. Pylori and helps them flourish. Fiber is good for the good bacteria.
  11. Wheatwacked
    Some types of ADHD respond well to caffeine. It how they got the idea for Ritilin. I fall asleep faster after a strong cup of coffee. Mornings sometimes the coffee makes me sleepy if I am not active.
  12. Wheatwacked
    Take him up on the offer. Teach your chlidren well. Most of our food preferences are culturally based and healthwise our culture isn't doing so well.
  13. Wheatwacked
    Longer than that. Many symptoms are passed off as normal until you start gluten free living and replenish your vitamin deficiencies and realize it was not normal. Among the 19 sypmtoms that started to clear, I was a mouthbreather from birth to GFD. By the way for a large boost of hope: 250 mcg (10,000 IU) of vitamin D3 works in less than a week.
  14. Wheatwacked
    There were no cases of diabetes in Icelandic Eskimo until they were introduced to the Western Diet around 1950. The difference between your sister's Celiac Disease and your NCGS could be vitamin D plasma levels. Even if the role of vitamin D in celiac disease pathogenesis is not completely known, its potential role in immune regulation could link vitamin...
  15. Wheatwacked
    Very possibly. Now taking 500 mg each of B1, B3, B5, B12 and a B comlex for the rest. I was up to 2000 mg each to start replenishment. Note that food source B vitamins have unlimited Safe Upper Limit. Niacin: safe upper limit to supplements was set to avoid flushing ; uncomfortable at first but not dangerous. In some research supplementing with folic...
  16. Wheatwacked
    I had that. Prednisone helped, saved me really. Before starting a gluten free diet I had to take 30 mg a day, Without prednisone I just lay in bed not moving for 22 hours a day. Even Tramadol did not help. After starting GFD two years later am down to 5 or 10 mg a day depending on activity. Because I started prednisone and was on it long term before GFD I...
  17. Wheatwacked
    If the biopsy is positive for Celiac Disease, you definately have it. But if it is not positive it does not mean that you don't. You symptoms could also be Non Celiac Gluten Sensitivity, 10% are diagnosed NCGS while only 1% are diagnosed Celiac Disease. The difference appears to be the autoimmune aspect of Celiac Disease. Much of your discomfort even on gluten...
  18. Wheatwacked
    . There are more than 200 different symptoms associated with Celiac Disease. Your doctor's background will determine which ones you are misdiagnosed with. Bacteria such as Clostridium, E Coli or certain Streptococcus species are actually thought to be some of the most common contributors to SIBO. Infection can cause swollen lymph nodes. If it is a viral...
  19. Wheatwacked
    The Vitamin Shoppe "Miricle Fiber", or Piping Rock "Inulin" Products allowed/disallowed in the Gluten Contamination Elimination Diet (GCED), targeting the elimination of gluten cross-contamination,
  20. Wheatwacked
    What @trents said. Inulin soluable fiber finally helped my bloating and bowel movements. I eat mostly plain canned vegetables that I rinse. Carrots, potato, peas, string beans, corn, beets. Publix prepackage Deli roast turkey, ham and chicken breast is good. For while you heal stay completely away from baked goods, gluten free or not. Vitamins are...
  21. Wheatwacked
    Are you on prescribed meds? Proton pump inhibitors raise your stomach pH so it is not effective at keeping bacteria from proliferating in your duodenum. Make sure you are getting enough vitamin D, B vitamins and choline, I use Inulin to increase fiber. And stay away from ANY processed (boxed or bagged qualifies) while you heal. Work on eating lots of omega...
  22. Wheatwacked
    low vitamin D which is common in Celiac might be worth looking at. Vitamin D Supplementation Modestly Reduces Serum Iron Indices of Healthy Arab Adolescents
  23. Wheatwacked
    Try 100% Pasture Fed milk. It has less omega 6, which causes inflamation.
  24. Wheatwacked
    I was always a mouth breather and had sleep apnea until I started gluten free diet at 63 years. It will clear up. Starting GFD and increasing your vitamin D blood level to 80 ng/ml will help with the histamine. Imagine vitamin D is the sheriff and the immune cells (T,B, histomine, etc. are the deputies. Without enough sherrifs to direct them, the others...
  25. Wheatwacked
    The benfotiamine makes sense because it would not be cleared as quickly. I am drinking 4 or more glasses of whole milk a day to "build strong bones and a healthy body" so theres my calcium, magnesium, potassium, vitamin A and more. Really seems to be helping. I buy 1 gal commercial whole milk and 1/2 gal 100% pasture fed whole milk to keep costs down. I figure...
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