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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    "Exposure of skin to sun light is very effective in reducing blood bilirubin levels..." Like Seasonal Affective Disorder the treatment of choice seems to be phototherapy which in my opinion is not as effective as simply taking vitamin D. A Rare Case of Crigler-Najjar Syndrome Type II in a 14-year-old boy with Celiac Disease: "The patient was prescribed...
  2. Wheatwacked
    Having a weak positive tTG-IGA is like being slightly pregnant. Only doctors who are not Celiac would delay. They still believe it is mostly in our heads.
  3. Wheatwacked
    I've been taking 10000 iu (250 mcg) since early 2015. In 2018 I was up to 47 ng/ml. Jan 2020, 87 then Sept 2021 at 80. People with more fat need more to raise blood level because it is stored in the fat. It seems the major concern is calcification but it is actually quite rare. The study that convinced me was of Kidney transplant patients getting various...
  4. Wheatwacked
    If your immune status is low from nutritional deficiency caused by diet or malabsorption syndrome, it seems to me that any extra load caused by the flu, or covid or similar, could lower it enough to let the immune system get out of control. Low Vitamin D (immune system master controller?) and zinc (antiviral) seem to be integral, but this is a guess, not...
  5. Wheatwacked
    This chart may help give you an idea of what vitamins you are dealing with. The RDA is the minimum determined to keep 95% of the healthy population from having symptoms of deficiency. Us sick people need more. The Fact Sheet for Health Professional from NIH are a good start to dive deeper. For example: Thiamin Fact Sheet for Health Professionals
  6. Wheatwacked
    Low vitamin D is common in autoimmune and mood/anxiety. I also found 5 mg of Lithium Orotate a day helped to dampen urges for immediate action Vitamin D and Depression: Where is all the Sunshine? "Most individuals in this country have insufficient levels of vitamin D. This is also true for persons with depression as well as other mental disorders." ...
  7. Wheatwacked
    Hi , confusing times. How is your daughter doing? You have several indicators of malabsorption syndrome. Your stool could be choline deficiency whiich could be simply not eating enough or not absorbing it. The RDA (the mininimum required to stay healthy) is 3 large eggs a day. B12, B6, Choline, Folate and homocysteine blood tests would help identify. ...
  8. Wheatwacked
    The good news is that on gluten free diet she might not need those allergy shots and medications for the rest of her life.
  9. Wheatwacked
    THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE SIDNEY V. HAAS, M.D. NEW YORK. https://www.scdrecipe.com/scd-uploads/studies/1924-haas_banana.pdf These are his original published case files when it was called Infantism and mortality was high. My adaptation of his diet is lean ground beef, roast turkey breast, oranges, bananas, bell peppers...
  10. Wheatwacked
    @C4Celiac has a good point. It might be worth more healing time on GFD with appropriate nutrition and see if she improves. Why does she say she can't bend over? Because it is uncomfortable or does it hurt, sharp or dull? Could she give it say six months? A lot depends on her pain tolerance and there is not a guaranty the cyst is the problem. Sometimes bending...
  11. Wheatwacked
    How about this? "I can't eat anything with wheat, barley or rye. I don't know why. The doctors don't know why. Only my maker knows, and if you guys keep pressuring me to eat it, I'll be able to ask my maker in person that much sooner" 😁
  12. Wheatwacked
    10 to 40% of first degree relatives have celiac. A Complete Celiac panel periodically seems appropriate. Even better would be the whole family eat gluten free. It can happen any time. My son was a three month old, I was 63. Giving up gluten is hard because of the addiction aspect and staying gluten free is hard because of peer pressure. You are not...
  13. Wheatwacked
    Yours is not necessarily ovarian, though it is good to be aware. If it is ovarian it could be deficiency of iodine, choline or folate, B12, B6, common in child bearing age women and they are amoung the 20 or so nutrients absorbed (or not) by the small intestine. Definately see a gynocologist to rule out endometriosis and ovarian cancer. dietary deficiencies...
  14. Wheatwacked
    My first two nights I had VIVID dreams of donuts. Until this phase passes eat whatever helps, No wheat, barley or rye, though. It is temporary and once you've kicked that little gluten devil off your shoulder your taste buds will find wondrous new things. Here are my hints; take large doses of vitamin D and Thiamine . Raising your vitamin D plasma level...
  15. Wheatwacked
    "Idiopathic arachnoid cysts in children are associated with neural tube defects." https://pubmed.ncbi.nlm.nih.gov/622492/ "An arachnoid cyst is a noncancerous fluid-filled sac that grows on the brain or spinal cord. Symptoms include headaches and seizures, but many arachnoid cysts don’t cause symptoms. Treatment isn’t always necessary. Providers dra...
  16. Wheatwacked
    Some of the confusion with B3 is that Niacin used to be called Nicotinic Acid. Years ago when the war on smoking began, someone decided to change the name to further distance from nicotine. It was announced that there is no connection. In fact Nicotine can be oxidized to Nicotinic Acid. "Niacin was originally called nicotinic acid because it can be...
  17. Wheatwacked
    Just an educated guess but your dyspepsia is from Choline deficiency. If you can get blood tests for vitamim D, homocysteine, vitamin B12, b6, Folate it would be helpful. There is no test for Choline deficiency. Eat eggs and meat or take a Phosphotidly Choline pill. Could we be overlooking a potential choline crisis in the United Kingdom? "Core tip...
  18. Wheatwacked
    The most important step now is helping your son find foods he likes and will choose over wheat, barley and rye. In the beginning the hardest part is breaking the old eating habits. Wheat is addictive, so there will be strong cravings. There will be peer pressure on him. Hard boiled eggs, Fritos, Cheese Doodles, Potato chips, ripe bananas, Snickers, almost...
  19. Wheatwacked
    One more personal note. Does he have a stuffy nose all the time? I was a mouth breather as a kid until GFD at 63. Now 90% nose. No allergies, nothing wrong to be found. Basically they told my parents not to worry. Maybe he'll grow out of it. It was the wheat for 63 years! Might be worth making the whole family GFD.
  20. Wheatwacked
    Here is a clearly written explaintion of the genes in Celiac Celiac Disease Genetic Testing. My son had it at weaning. I had an acute attack at 63, but once on a gluten free, vitamin and mineral rich diet I counted 19 lifelong issues that cleared. See Scott's article link below. While it seems very hypochondriac to do in the case of celiac disease it...
  21. Wheatwacked
    Do you know your vitamin D plasma level?
  22. Wheatwacked
    Those were just diversions to keep you eating wheat which they add to these foods because wheat makes you want to eat more. Wheat is addictive. You stopped eating fried. Did you get better? You stopped eating bbq. Did it help anything? Gave up Chinese and beer. Any better? Use Tamari instead of Soy Sauce. I don't like beer but was addicted...
  23. Wheatwacked
    I like cherry flavored magnesium citrate. 1 or 2 ounces in a glass of water tastes like lemonade to me. makes orange juice instead of water taste interesting. 10 ounce bottle about >$2. Each ounce has 390 mg of magnesium. The RDA is 310 (female, 18-30) . As a laxative the dose is 6.5 to 10 ounces. Start low, work your way up over a few days. What...
  24. Wheatwacked
    After 3 month GFD I increased my vitamin D to 10,000 iu a day. On day 4 I looked at the bottle and exclaimed; "This truly is sunshine in a bottle" Somewhere around that time I started inviting people to my 130th birthday party in 2081. You'll have good days and better days then bad days. These are the foods I eat: cottage cheese, meat, vegatables...
  25. Wheatwacked
    It is likely you have had malnutrion from unrecognized Celiac Disease most of your life, not uncommon with celiac disease. Of the more than 200 symptoms associated with Celiac Disease I counted 19 that improved for me just from GFD and vitamin replenishment. This is the perfect time to get the full panel of Celiac tests and vitamins from your primary...
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