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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    DO IT. Don't wait on the doctors because they have no official guidance in this. Procrastination is dangerous, if it is the problem, improvement will be seen. Fix what you know is wrong and reevaluate. For only $15 a bottle of choline bitartrate or phosphatidyl choline may save her life. The use of prednisone may be an appropriate...
  2. Wheatwacked
    Wheat is an opiate Read this article it may help you understand. https://drdavisinfinitehealth.com/2012/04/wheat-is-an-opiate/ Don't feel guilty about anything. It is sad you are even in the position but remember they are addicted too, just don't know it. That's why they get angry at the suggestion of not eating wheat. It's unamerican....
  3. Wheatwacked
    Could the doctor order a blood draw by the home health nurse to see if the celiac panel results have changed or at least to get a basis to compare again later? No reason for another endoscopy especially in her fragile state I am sure she does not want anesthesia if it can be avoided. The TPN was formulated prior to the celiac disease diagnosis, so...
  4. Wheatwacked
    See if you can get her to do a urine test for iodine deficiency. The NIH maintains that the US population is sufficient so not usually checked. The average intake of iodine has dropped 50% since 1970. Iodine Absorption in Celiac Children: A Longitudinal Pilot Study Iodine Fact Sheet for Health Professionals
  5. Wheatwacked
    Another similar case:
  6. Wheatwacked
    bingo! More information: This case from 2014 seems similar to yours. Their case resolved with only 5 days TPN. "In the majority of RCD type 1 cases, steroid use is effective in inducing clinical remission and mucosal recovery; however, use in RCD type 2 shows clinical response in 75%, but does not induce mucosal recovery or prevent the progression...
  7. Wheatwacked
    It makes sense. He has bloodwork while on gluten and wants to see the change after a gluten free diet. And maybe he wants to test vitamins in the gluten free state. I think he's giving you time to become gluten free. Dive right in.
  8. Wheatwacked
    Do either have choline or phosphatidyl choline?
  9. Wheatwacked
    On the other hand, think of all the new unprocessed foods you can try now that you are not bloated by all the "filler" foods made with cheap wheat. It is kind of like moving to a new culture where your old favorites are not available, so you find new favorites. Some people go through a mourning period at the loss of a best friend.
  10. Wheatwacked
    Hi Sheri, welcome to Celiac.com. Many people have weight gain, others have weight loss. If your GI recognized Celiac Disease from the cat scan it seems that she has experience and knowledge, so you are in good hands. She may want to run a Celiac blood test and endoscopy to verify. Celiac is an autoimmune response to the gluten in wheat, rye and barley. It...
  11. Wheatwacked
    It is my understanding that unless looking specifically for Celiac Disease and picking the right spot for a biopsy, it can easily be missed in a standard endoscopy. How many have posted here with "definitely not Celiac" only to be diagnosed 10 years later? When my son was diagnosed it was finally seen on his third endoscopy. Just the diagnosis of...
  12. Wheatwacked
    As a just weaned infant my son born in 1976 suddenly bloated up. I was shocked when I looked at him and remembered newpaper photos of Biafran babies shortly after the Biafran Relief contracted for supplies of the new "green" wheat instead of the rice they had been buying. Convinced he was not "just colicky", and it was not maternal stress (numerous recommendations...
  13. Wheatwacked
    something to check is if they are adding Choline to the TPN.
  14. Wheatwacked
    NALFD has been linked to Choline deficiency. Add to the fact that most Americans don't eat enough choline (4 eggs or 15 oz steak or 10 cups of cooked broccoli a day) choline is absorbed in the small intestine so the effect of Celiac Disease caused malabsorption syndrome added to not enough choline in the diet could cause significant effects to your liver...
  15. Wheatwacked
    Famous last words. Follow his advice and stay sick or do GFD without antagonizing your doctor and see what happens. You still need the doctor for your TD1. Eventually he may notice the improvement and ask what you are doing to get better. Doctors generally don't care what you eat. Their response to me when I say I am gluten free is "well, everyone has preferences...
  16. Wheatwacked
    The Celiac High Risk was my own notes, based on information I read. Iodine and potassium even though rarely mentioned with celiac disease are absorbed by the small intestine/duodenum and so would be affected.
  17. Wheatwacked
    If you've had a partial gastrectomy, you may be able to get enough vitamins and minerals from your diet by eating foods that are high in nutrients – in particular, foods high in iron, calcium, and vitamins C and D. https://www.nhs.uk/conditions/gastrectomy/recovery/ Funny that article by the NHS does not mention B12. I understand the no oral B12...
  18. Wheatwacked
    though the Power of the Internet: 300 Signs and Symptoms of Celiac Disease (adults and children) Here is a list of some essential vitamins and minerals. VitaminRDA
  19. Wheatwacked
    Go with his diagnosis and ask for a nutrition consult familiar with Celiac/NCGS. Either way the treatment is GFD plus resolve vitamin deficiencies. You could push for a biopsy, but in my opinion, it won't change your treatment. It will expose you to a procedure requiring anesthesia and the low risk of a tear and more costs. Celiac Disease does sound...
  20. Wheatwacked
    Iodine is absorbed in the small intestine. If you are reaching the minimum RDA like most Americans and have malabsorption syndrome (from Celiac) you will be deficient.
  21. Wheatwacked
    Try 100% Grass Fed milk. It tastes better and does not irritate my stomach the way regular milk does. Even picky eaters will eat when presented with food they like. As a picky eater, please don't make eating one food contingent on another. I learned at an early age to just say no when asked if I was hungry.
  22. Wheatwacked
    Even if your tests are negative, who is more right, your gut or a lab test. If the gluten free diet and vitamins help enough to keep you off IBS medications, that's pretty indicative that you have a problem with wheat. Treatment for Celiac and NCWS (NCGS) is the same. Gluten Free Diet and resolve any vitamin and mineral deficiencies. In addition to the vitamins...
  23. Wheatwacked
    Where have we heard this before?🙃 I think 10 years is the average from complaint to correct diagnosis. It is good to have physical evidence biopsy or blood work but your body is already telling you. Whether you choose to continue eating gluten while waiting for tests or start GFD, vitamins are the key to recovery.
  24. Wheatwacked
    There are around three hundred symptoms associated with Celiac Disease and your descriptions match. Has your doctor checked your vitamin D level?
  25. Wheatwacked
    VitaminRDA
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