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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    Since you have "Almost all patients with dermatitis herpetiformis have celiac disease, though the disease is asymptomatic." https://my.clevelandclinic.org/health/diseases/21460-dermatitis-herpetiformis It is not uncommon to have multiple autoimmune diseases simultaneously. I know the autism makes it hard dealing with it but sounds...
  2. Wheatwacked
    "The most bothersome symptoms are itching and burning. Scratching causes the blister to rupture and dry up, but this leaves an area of darkened skin and scarring. A skin biopsy may be taken to see if the rash is dermatitis herpetiformis. The condition will improve after elimination of gluten from the diet, although it may take several weeks to months to see...
  3. Wheatwacked
    My opinion: Why bother? It's not like people who eat wheat are healthier and happier. Keep in mind that wheat has been shown to be addictive. I remember, but not when or where, a person in the wheat industry commenting proudly that wheat is more addictive than potato chips. (bet you can't just eat one)
  4. Wheatwacked
    Dapsone has some potential side effects that to me are scarier than the rash. If you are getting better without it I would wait. Even with the Dapsone it can take 3 months. "It may take up to 12 weeks before you feel the full benefit of dapsone gel. If your acne does not improve after 12 weeks of treatment, call your doctor." https://medlineplus.gov...
  5. Wheatwacked
    It would be interesting to compare the nutrients in your gluten diet before the one year GFD and your gluten diet that ended in DH.
  6. Wheatwacked
    Growing up in the 60's a glass of milk and two slices of bread had about 300 mcg of iodine, but in the US iodine is rarely used today as a dough conditioner and with the increase of omega 6 in milk caused by feed additives to increase milk fat and volume in non-pasture fed cows, more people have negative reactions to milk and so avoid it. Dietary intake of...
  7. Wheatwacked
    For some vitamins, like Thiamine, the only way to tell if thiamin deficiency if causing your symptoms is Hear! Hear! I discussed with my doctor the fact that I've been on 10,000 IU vitamin D3 daily since 2015. Sept 2019 my D plasma was 44 ng/ml, last September (2021) it was 87 and last Friday it dropped to 80 ng/ml. She is fine with me continuing...
  8. Wheatwacked
    While Covid is terrible, it is not the cause of Celiac Disease. Wheat, Rye and Barley gluten is. Any number of triggers can bring it to the forefront. You got the shots, so you are protected from a lethal case of Covid. Personally, I would rather not eat wheat than be dead of Covid. If not the Covid shot, something else would have triggered it eventually...
  9. Wheatwacked
    Canyon House Heritage Style Honey White is my favorite for a sandwich. Keep it in the freezer and defrost only the slices you need. About 15 minutes to defrost a slice on the counter or nuke it for 30 seconds if your Lithium is low and you are impatient. Toasted the texture reminds me of rye bread.
  10. Wheatwacked
    Choline is associated with both anxiety and right quadrant gut pain, which you indicate you have. It takes 4 dozen eggs a day to reach the upper safe limit. The only way to know if you are getting enough choline is by tracking choline intake. You might want to see a doctor about gall bladder disease. Since the Lexipro is helping you, give it more time. In...
  11. Wheatwacked
    Could be that as you heal you will notice things that were masked by the other symptoms. Watch this video, he explains choline deficiency as a cause at around the 7 minute mark https://www.beyondmthfr.com/estrogen-choline-and-the-gallbladder/. Minimum RDA (100% DV) for adult women is 400 mg a day (3 1/2 large eggs). The RDA upper limit is 350...
  12. Wheatwacked
    In 1970 when the Biafra Relief Agency switched from buying rice to the modern wheat because of price, the babies started showing symptoms of Celiac Disease. In my opinion, at the time Norman Borlaug was honored with the Nobel Prize so the symptoms were blamed on protein deficiency (Kwashiorkor) instead of Celiac Disease (caused by wheat).
  13. Wheatwacked
    Dr Daniel Amen, psychiatrist, has written extensively about diet and mental health issues. His meal plans are all gluten free.
  14. Wheatwacked
    Supplements: B12;B complex;B5 1000 mg;Phosphotidyl Choline 840 mg;Lithium 5 mg;Dhea 100 mg;vitamin C 1000 mg;Calcium 1000 mg;vitamin D3 250 mcg (10,000 IU); 7.5mg Nori (for iodine); 20 ml Cod Liver Oil (vitamin A and omega 3); 2 ounces of almonds (for vitamin E); 10 mg fresh parsley (vitamin K). Goal of 4700mg potassium a day from food. I chose them after...
  15. Wheatwacked
    My choice is Alka Selzer (aspirin, sodium hydrogen carbonate and citric acid) for any pain or upset stomach issues I have. For serious pain that doesn't go away, prednisone or prednisolone. I had a black lab with congenital hip dysplasia. He was on 5 mg prednisone all his life, when he was x-rayed at 9 years old he had no arthritis, while all my other dogs...
  16. Wheatwacked
    Call it Devil's Advocate but why do you need medical confirmation of what you already know: you cannot eat wheat, barley or rye because it makes you sick. Consider taking vitamins to supply 100% of essential vitamins because you need more to heal. Look at your potassium, choline, and folate intakes, most Americans do not eat enough.
  17. Wheatwacked
    Wheatbelly: Total Health, by Dr Davis would be a good read for you. The effects of wheat in the general population. Dr Hyman is the head of the Cleveland Clinic's Funtional medicine and has several books. For the psycology effects, Dr Daniel Amen. They all recommend GFD though they arrived there through different paths.
  18. Wheatwacked
    http://nutrientlog.doodlesnotes.net/ A log of what I ate with nutrient totals. My current daily supplement list: B12, B Complex. 1000 mg B5, 840 mg Phosphotidyl Choline, 15 ml Cod Liver Oil (for vitamin A), 5 mg Lithium Orotate, 1000 mg vitamin C, 1000 mg Calcium, 10,000 IU (250 mcg) vitamin D, 2 ounces almonds (for vitamin E), 2 sheets of organic...
  19. Wheatwacked
    The outlier here is actually the one good test in June. Lab error is possible. How are your other labs, BP, homocysteine, lipids. Could your meds need adjusting? vitamin D plasma level and vitamin D intake? t-Transglutaminase (tTG) IgA Optimal Result: 0 - 3 U/mL, or 0.00 - 100.00 ug/g. https://healthmatters.io/understand-blood-test-results/t-transglutaminase...
  20. Wheatwacked
    The minimum RDA for Choline is 550. That is the equivalent of 4 1/2 large eggs or 9 cups of cooked chopped broccoli. The safe upper RDA is 3500 mg, but the negative side effects of too much choline; fishy body odor, low blood pressure; are usually not seen until 7,000 mg (24 ounces of lean beef a day)
  21. Wheatwacked
    It is no one's business why I choose gluten free. I appreciate anyone who eats gluten free, with or without a medical license. The more people ask for gluten free, the more familiar the staff becomes with the concept and the more likely it is to actually be gluten free and not just a catchphrase taught at the 15 minute pre shift meeting. You don't have to...
  22. Wheatwacked
    You are four months into a change you should follow forever. There will be plateaus and roadblocks. Pay attention to your vitamin and mineral intake, the blood tests for many only show current plasma status, not cellular reserves. Most Americans eat less than the recommended amounts of Potassium and Choline. It helps to write down what you eat. I have two...
  23. Wheatwacked
    Was it helpful and what do you consider a megadose? It's been a week since increasing my iodine intake to 3 sheets a day of nori. Today I got 8 hours sleep staight through. My usual is 2 1/2 hour batches. Vitamin D has an antidepressant effect in common with Duloxetine. Lactic acid build up could fit with some toxin caused by eating quantity. It...
  24. Wheatwacked
    So you know something is wrong and Duloxetine partially helps to attenuate. Progress.😃
  25. Wheatwacked
    Poor food choices over time use up our bile salts and lead to all kinds of digestive problems from acid reflux, gas, and bloating to constipation, irritable bowel syndrome, and diverticulitis. Chloine is very effective in restoring GI tract health and improving digestion...Choline is considered a bile salt and it plays a pivotal role in the digestion of fats...
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