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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    Some people are seronegative and biopsy negative and still have Celiac Disease. You have the genes and the symptoms. Depending on your comorbid deficiencies you should notice some improvements quickly but it can take years to fully heal. Here are what I went through. They will help you heal faster. It took years for me to identify them so your...
  2. Wheatwacked
    Don't underestimate the value of thiamin. I get a cramp in my feet after sleeping about an hour and a half, sometimes. It points my big toe straight up and twists my ankle. Getting up, relaxing my ankle and doing anything for a half hour works, but then it comes back. I found that 250 mg 3 times a day and it doesn't happen.
  3. Wheatwacked
    I started a 1000. Worked my way up over time until the third day at 10000 it was "Wow this is sunshine in a bottle. But yes. A good idea to get your blood tested for PTH and 25(OH)D though as a precaution. There is a belief the old people should suppement them together for osteoporosis but after 50 years the evidence still does not support it. Besides...
  4. Wheatwacked
    Hi @KelleyJo. Welcome to the forum. People with hypermobile Ehlers-Danlos Syndrome (EDS) are more likely to have low levels of vitamin D. Vitamin D plays a key role in stabilizing mast cells and preventing their inappropriate activation Vitamin D: A common deficiency in people with celiac disease most people reporting...
  5. Wheatwacked
    Try reducing your omega 6:3 ratios. That is why fish oil works, but it is better to simply choose foods that are low in omega 6. And increase potassium intake. Similar to the DASH diet. Increasing the potassium to salt ratio above 2:1 is heart healthy, but the DASH diet did it by restricting salt instead of increasing potassium. Potassium deficiency...
  6. Wheatwacked
    Markedly increased intake of refined carbohydrates and sugar is associated with the rise of coronary heart disease and diabetes among the Alaskan Inuit Feldman et al2 suggested that the increase in the triglyceride levels in the boarding school Inuit was likely due to ‘A diet rich in carbohydrates...Gottman discovered the true incidence of cardiovascular d...
  7. Wheatwacked
    I found this article very a very clear explanation of test results with example cases. I especially liked this line at the end. "In an effort to justify why we can go against the result of a positive test, we ask “how positive is it’? It’s like getting a positive pregnancy test back and asking “how pregnant am I?” I think it answers some of your spec...
  8. Wheatwacked
    Hello @TraceyG, welcome. I know it is hard. Giving up gluten is like losing a lifelong friend. But in this case it is not a friend. Your doctor is your friend and be thankful he is proactive with you. There is no need for the biopsy. Posistive is positive. Unless you are looking for proof you are not. Be sure to ask about vitamin and mineral...
  9. Wheatwacked
    If you are looking for a good diet to follow to start your real recovery Dr Fuhrman's Eat to Live, 6 Week Plan is a good choice. Dr. Fuhrman’s 6-Week Nutritarian Diet Quick Start Dr Fuhrman is a Cardiologist who began the Nutritarian diet. Helped me immensely with understanding nutrition. Adapt it to GFD. If you can find them Drs Fuhrman, ...
  10. Wheatwacked
  11. Wheatwacked
    Welcome hilly and Schellee94, and JulieF. There is more to recovering from Celiac Disease than simply not eating wheat, barley, rye products. Ceilac malabsorption syndrome causes us to not absorb the nutrients we eat, so we imperceptively slip into malnutrition. Children recover quickly. Adults can take years because of unidentified vitamin...
  12. Wheatwacked
    I take Clonidine for BP no gluten reaction. It was originally prescribed for adolescence who could not take Ritalin.
  13. Wheatwacked
    Hello @Rubii, Since gluten is addictive and effects the opoid rececptors, some people have a withdrawal that lasts 10 to 15 days. When alcohol or substance use is halted, the brain is forced to readjust to its sudden absence. This leads to unpleasant physical and mental withdrawal symptoms. Diarrhea, stomach pain, and vomiting are often experienced...
  14. Wheatwacked
    Hello @Julianne101, It seems you are doing well at avoiding gluten. Well done. The most important thing I have to say is that whether or not the NP is right about the diarrhea not being gluten related, and it seems like you self-diagnosed, maybe even against medical advice, I hope you will continue GFD regardless. You don't need a letter...
  15. Wheatwacked
    Growing up I wondered why restaurants always put parsley on the plates when no one ate it. ten grams of parsley sprigs have Vitamin K (phylloquinone)164µg. The RDA of vitamin K is 19+ years male: 120 mcg female: 90 mcg. Maybe your doctor would agree instead of the pills? The USDA Food Data Centra is a good source of nutrition. USDA ...
  16. Wheatwacked
    Why do you want to eat wheat?
  17. Wheatwacked
    Take the diagnosis and run. In the worst case you can stop eating gluten free after say a six month trial. Some, like recovering alcoholics never get over the craving. Resistance is not futile. Some wait as much as ten years to finally get the diagnosis. Be sure to monitor your diet for vitamins and minerals. During recovery you need way more than the...
  18. Wheatwacked
    Malabsorption is a potential complication of bariatric surgery. Is one your docs monitering vitamin D and other vitamins and mineral? Malabsorption due to the surgery and now adding the malabsorption from Celiac Disease? Nutrition advice? One hears stories; "You've got Celiac Disease, don't eat gluten. Have a nice day". Gluten Free stops the...
  19. Wheatwacked
    Vitamin D concentrations <20 ng/mL are associated with a significant increase in the number of eosinophils in blood. As Scott said, "A weak positive is still a positive". You could insist on an endoscopy with celiac biopsy. One day without eating will not effect your blood work. Weeks or months Gluten free will. It all depends...
  20. Wheatwacked
    Issues with fat digestion often are the result of not enough cloline in the diet from avoiding eggs and red meat. Awesome.
  21. Wheatwacked
    Eating foods that make you feel better. Good Plant based diet, not so good. In addition, for Celiac Disease, when you eat gluten free there are food fortifications that are required in not gluten free processed food but are not in gluten free foods. In addition to the list on this website, consider iodine (in the US population iodine intake deceased...
  22. Wheatwacked
    The good news is that acccording to the tests done she is being compliant about GDF and with no other symptoms is thriving. The bad news is that she is very sensitive to gluten. That would likely indicate a compromised immune system from multiple vitamin deficiencies. Has she been checked for 25(OH)D Serum Level?
  23. Wheatwacked
    Eat Right for Your Spine When your vitamin D levels are restored through supplementation, your pain may significantly decrease. Before taking vitamin D supplements for your lower back pain, talk with your doctor about possible side effects and proper dosage.
  24. Wheatwacked
    Ask about your prescriptions. Some of your symptoms are possible side effects of the drugs. Several BP meds crippled me, I take Clonidine now. Metformin and other diabetes meds turned me zombie like after 3 months on them. They all comprimise the immune system and that is why vitamin D is so important. The impact of methotrexate therapy with vitamin...
  25. Wheatwacked
    Why the iron? Have the doctors tested for vitamin D. Is she eating enough eggs, milk, meat? Start her on the Thiamine today. The minimum for a child of four years is 0.6 milligrams. That's 600 mcg. That is 3X the minimum folate (200 mcg). fThere is no established upper limit for thiamin intake in humans because there is no evidence of adverse...
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